I can’t say that stuttering didn’t shape my life, because it would be a complete lie, and saying that the experience of stuttering has and still does shape my life is an understatement, because sometimes it’s the only thing in my life I’m 100% certain of. The experience of stuttering is so entwined in my life, that I don’t know who I would be, or what I would be doing with my life if I didn’t stutter. If you ask me the magic pill question, if there was a magical pill cure for stuttering, would I take it, I wouldn’t take it. I’ve spent too long learning to live with stuttering, that I can’t imagine not stuttering, no matter how much not stuttering might positively impact my life. It frustrates me, and sometimes I wish that so much of my life didn’t revolve around stuttering.
Unfortunately, my life does partially revolve around stuttering, and although I’ve learned to live with it, there have been times that I’ve tried to talk about it less in an effort to not let it consume every aspect of my life. But the truth is, I need to talk about it, even if it makes me feel like I’m oversharing or talking too much about myself. Talking about stuttering is more than just talking about myself, it’s also talking about the complex experience of stuttering and everything that comes with it, and it’s vulnerable. It’s easy to talk about the basics of what stuttering is, but not always what it does to a person who grows up stuttering. It isn’t easy to talk about the period of time when I was a kid where I didn’t want to talk much, or growing up watching people’s reactions to me talking. Or feeling like a burden because my parents spent the time and money taking me to speech therapy for so many years, even when it didn’t help, or helped for a little while and then didn’t anymore. Or feeling broken, or anxious, because trying not to stutter makes you stutter more. That stuttering modification techniques are like band-aids, and they remind me of when I went to sleepaway camp, when I would scratch and pick at every mosquito bite and end up with band-aids on my arms and legs for weeks. But band-aids aren’t a cure, they are a temporary covering while whatever is under them heals, and scabs don’t heal if you keep picking at them.
Thankfully, with time comes understanding. Better yet, over the years, I’ve reflected on the impact stuttering has had on my life, and the impact I would like to make in the stuttering community. I’ve realized that I can track my understanding of/and connection to stuttering over the years by the ways I’ve chosen to share information about it, along with my readiness to disclose to people that I stutter. In 7th or 8th grade, I co-led an assembly at my middle school about stuttering with Taro Alexander. In my senior year of high school, I gave a presentation about stuttering in biology class. When I was in undergraduate school, I made sure to disclose in all of my classes that I stutter, and my senior capstone in the theatre department was a one-woman play where I lamented that I was afraid that I would have to be a waitress after I graduated. Thankfully I didn’t have to be a waitress, but I found myself in new environments where I had to learn that telling people that I stutter is at the same time one of the most important, and least important responsibilities I have to myself as a person who stutters. I never envisioned myself having a corporate job, but it forced me to become more comfortable
Then my cabaret show, where I couldn’t find a song that truly captured the experience of stuttering, so I wrote one. And now graduate school, an environment I chose to enter on my own terms, with a joke about not having voldemort on the back of my head, and where my identity as a person who stutters is an asset, not a barrier. During my first semester, I was able to incorporate an exercise that demonstrates how classical conditioning can affect speech patterns, especially in people who stutter, into a presentation on behaviorism. It allowed my classmates to experience a little bit of the conditioned anxiety that I face every day, even though they don’t stutter themselves.
When I was younger, stuttering shaped my path and brought opportunities I might not have had otherwise. Even today, I wonder if the spaces I occupy were won by my actual talents, or if they were just compassionate gifts. Sometimes I wonder if that is still my reality, or if I’ve finally earned my seat through my own experience, insight, and knowledge. Today, the work I’m doing in graduate school is a direct continuation of the path I started on when I was a pre-teen doing improv and learning how to collaborate and create space for other people’s voices and ideas. My stuttering journey is ongoing, and there are still things that I’m exploring and coming to terms with, like, right now I’m interested in the social model of disability, and over the last few years, I’ve talked more than I ever thought I would (or could), and there’s much more to communicating with other people than I ever imagined. Stuttering doesn’t completely define me, it isn’t the most interesting or important thing about me, and it isn’t the end of the world.
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Michelle,
You have definitely earned your seat at the table! I don’t think the spaces you occupy were just given to you as compassionate gifts – they have been earned by your hard work, dedication to your craft and your willingness to talk about stuttering more than you ever thought you would.
I have read many of your contributions to this ISAD conference and I fondly remember when you were a guest on my podcast.
One of the most powerful lines you shared in your piece is “But band-aids aren’t a cure, they are a temporary covering while whatever is under them heals, and scabs don’t heal if you keep picking at them.”
Talking about stuttering, actively participating in the stuttering community and being vulnerable is what drives healing. We must let whatever is under the bandaid heal and allow the scab to fall off on its own before ripping the bandaid off.
Every time you share, that is evidence of healing.
Thank you for this.
Pam
Pam,
Thank you, I always look forward to your comment. I still need the band-aids, the scabs are healing slowly, but being able to contribute to this ISAD conference helps.
Michelle
This is a great and very honest perspective, – It is an honor to watch you soar, and btw, your cabaret show was EXCELLENT!!
Awww thank you!
I love your analogy that if you were asked to take the magic pill, you wouldn’t take it! Like you said, stuttering is what makes you, you! I love that about you! You are also correct that it isn’t the most interesting thing about you either!What an inspiring message, Michelle!
Thank you, stuttering played a major role in shaping my life, but it isn’t completely what makes me who I am.
I really loved the comparison of stuttering modification techniques to band-aids. I had never thought about it that way before, but it really put things into perspective for me. As a future SLP, I think it is easy to get caught up in teaching strategies and focusing on fluency rather than looking at the bigger picture. This was a good reminder that while these techniques can be helpful, there is so much more to stuttering than what we hear.
Thank you. I’m only one person who stutters. Modification techniques didn’t really help me, but that doesn’t mean they don’t help other people.
Wow! I loved hearing your perspective. It is interesting to hear how much stuttering shaped your path and also brought you new opportunities. Your absolutely right, stuttering doesn’t define you! Thank you so much for sharing your story and being so open.
Thank you for reading it!
Hi Michelle! Thank you for sharing your journey! I love how you can reflect how stuttering has shaped you, while not letting it define you. You mentioned some opportunities in school that you took to educate others about people who stutter. How have these experiences shifted your views about stuttering?
I’ve been learning that teaching people about stuttering isn’t the goal, it’s a byproduct of being myself, and being open about stuttering.
Hi Michelle. I loved reading your story. I would love to hear more about the classical conditioning exercise you incorporated into your presentation on behaviorism. How did you implement it? It sounds really interesting!
Hi! Thank you for reading it. The exercise is an interactive writing and paper-moving simulation designed to mimic the physical and psychological anxiety of stuttering. A person tries to write a sentence on a piece of paper, and you physically manipulate the paper while they write—jerking it away, slide it rapidly back and forth, and drag it slowly. You can also introduce psychological pressure by warning them about “feared letters” ahead of time, imposing a strict time limit, and allowing them to change words mid-sentence. It forces the writer to constantly scan ahead in fear, lose physical control of their output, and experience the exhausting mental gymnastics required to communicate under pressure.
Hello Michelle, wow, what a wonderful and relateable paper you wrote. I am proud of you ,how you stepped out at such a young age, to educate others.You will help and encourage and give confidence to , lots of people.
Thank you! I really appreciate your thoughtful words.
Hey Michelle, it was great meeting you earlier this year. I loved hearing your perspective and how you talk about your stuttering in many different situations to many different people. When we speak openly and vulnerably about it, we’re not just making our own path easier, but for those who come after us, too. Sure, there’s so much more to us than stuttering, but every person who hears you share and speak about your experiences is now primed to be more understanding towards the next pws they meet. So, thank you for continuing to share!
All the best
Gina
Hi Gina, It was so nice to meet you at the NSA conference. Thank you for reading it! I agree, our interactions with people impact the next interactions those people might have with the next people who stutter that they meet. But it can also take time for us to become comfortable being open and vulnerable about stuttering, it’s part of the journey.
Hi Michelle! I just wanted to post a comment on your discussion and say how I really appreciated your personal insight. I think that your objective way of measuring your progress through looking at how open you were to talk about stuttering is really great and something other’s could look into if they were interested as well! Thank you so much for posting.
Hi! Thank you, it’s an ongoing journey.
Hi Michelle! As a speech-language pathology graduate student, I appreciated your analogy comparing stuttering modification techniques to band-aids. These techniques serve as temporary coverings but do not address the deeper challenges associated with stuttering. Your willingness to disclose your stutter and speak about it are much better testaments to your journey with stuttering than a measure of “fluency”. Thank you for sharing!
Thank you for reading! Just remember that I’m just one person and don’t speak for everyone who stutters. Just because the techniques didn’t work for me, doesn’t mean they don’t help other people.
Michelle,
Amazing piece of art! I loved your story and the way in which you deeply shared your experiences. As an aspiring slp and current graduate student, I enjoyed your analogy of stuttering modifications acting like a band-aid. How do you perceive the importance of stuttering modification now versus when you were younger receiving speech therapy? Once again, wonderful work!
Thank you for reading! When I was a kid and teenager, I needed the band-aids, and they worked to some extent. The techniques helped because I was frustrated and wanted to talk, but was afraid to talk too much, and they allowed me to talk more, say what I wanted to say, and increase my frustration tolerance. Then the using the techniques became something that was expected of me, they started helping less and less, and I became more frustrated. I stopped that speech therapy when I was around 16 and started acceptance based stuttering therapy when I was 23. I’ve been in it for 10 years, and sometimes it takes a lot of frustration to find what works for you. It’s really an ongoing journey, and different for all of us.
The article shows that stuttering does not have to be an obstacle to achieving personal and professional goals. It also emphasizes the importance of self-acceptance, openly talking about stuttering, and understanding the challenges that people who stutter face in their everyday lives.I think this article can motivate, educate, and broaden everyone’s perspectives, not just those of people who stutter. 🙂
Thank you for reading it. Stuttering is an obstacle that I’m still learning to live with, even into my 30s.
Hello Michelle,
I really enjoyed reading this! Your account of the evolution of your relationship with stuttering and journey with self-acceptance is very well-written and impactful. I am currently in graduate school for speech-language pathology and enjoy learning about the personal experiences of people who stutter. I think that your explanation of stuttering modifications being like a band-aid does a great job illustrating why stuttering modification is not a good fit for all people who stutter and how each person has to discover what will best benefit their quality of life.
I’m glad you enjoyed it. Keep in mind that it’s a journey, and our needs when it comes to stuttering change, so I can take a while before the need to actually accept it sinks in. Also, sometimes speech therapy needs to be more about therapy and less about speech, the psychological aspect should be acknowledged as much as, if not more than the act of stuttering itself.
Thanks for again sharing your thoughts, Michelle . Yes, we’re on a journey. We meet other people, other challenges, but we also meet ourselves and our many different shades, which, to me is the most interesting part of the journey. 🙂
Keep talking
Anita