Tom and Lisa ScharsteinAbout the Author:

Tom Scharstein is a person who stutters and entrepreneur from South Florida, USA. From national board memberships to support group leadership, Tom has been active in the worldwide stuttering support community for over 25 years. Co-founding the World Stuttering Network (WSN) in 2020, he is deeply honored to serve as Chair.

(The following is an excerpt from a larger work)

It’s important to be seen and heard in life. Speaking up helps you get what YOU want out of life. Silence might be safer, but you get walked on a lot. Life begins when we start talking.

Being heard in the stuttering community is vital. Get involved. It’ll be one of the most rewarding things you’ll do in life. And listening to other people gives me options. Being in the community for such a long time has helped me figure out what works for me. You might agree with most of what I say, some of what I say, or none of what I say. I’m not here to win any arguments. I want you to be successful in however you want to live your life. If something I say helps you, then it’s all worth it to me.

“My greatest hope is that you find something in my words that helps.” Tom Scharstein

Don’t be too hard on yourself when you make a mistake. Everyone’s a genius when they look back.

Don’t let the mood of your day be determined by how much you stutter. If you figure that out, let me know how.

Stuttering tells us that we’re not good enough. But trying too hard to be accepted sets an exhausting standard that repels people because they think we’re not authentic. And who knows? They might be right.

When you think everyone’s got it together except you, remember one truth about life: Everyone’s just as screwed up as everyone else. Let people hear your thoughts and feelings. You might be pleasantly surprised and find some answers.

Market your stuttering. It gives you an advantage in sales. In business, sales is everywhere all the time.

When you say it’s OK to stutter, remember that someone is afraid to get out of bed every day because they stutter. They don’t want to stutter, and that’s OK too.

Get to a conference for people who stutter at least once. If you can’t afford it, contact the organization and ask for help getting there. There’s a lot of generous people.

Don’t blame your parents for your stutter. Don’t blame your teachers, your friends, your environment…whatever. Blame doesn’t change anything.

Speaking has less to do with getting what you want out of life than you think.

Does being around people who stutter make you stutter more? Probably. Maybe because you talk more. Maybe because the fear is gone. But you’ll feel an instant deep connection with others, and that’s a special thing. They’ll understand you in ways that’s impossible for others.

Being underestimated hurts. But in the long run, it’s one of the most powerful motivators in the world.

Do things by yourself. Not all the time, but sometimes. You’ll build trust in yourself.

THINK like a fluent person. There’s a difference.

If you want to do something as a group, the question to ask is, “Will this help people?” If the question is, “Will this make money?” . . . you’re in the wrong place. 

“Be the person your 8 yr. old self and 80 yr. old self would be proud of.” Bob Wellington

The stuttering support world is intense, just like stuttering. It’s OK to get what you need and go on with life. But, you’ll never be alone again.

What is the hardest thing about stuttering? The constant fight NOT to underestimate ourselves. Most everything IS reachable.

The next level after advertising your stutter is to promote it.

Silence is agreement. Do you really agree?

You might not be able to control your feelings, but you sure can control your ATTITUDE.

Silence is safe, but limiting. And it’s just not as fun. 

The language of ‘easy’ words might not get the message across.

Don’t worry about being a counselor. Listening to someone is the best help you can give.

Act confident as you stutter. After a while, it won’t be an act.

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Comments

My Life As a PWS – Tom Scharstein — 122 Comments

  1. “The constant fight NOT to underestimate ourselves. Most everything IS reachable”.

    Tom this quote resonates with me so much as that impostor syndrome is such a real feeling so I love this concept that we are our own worst enemies so we can’t continue to underestimate ourselves.

    Looking back, I realize myself how much I underestimated myself and never saw myself as a leader whereas now I realize the sky is the ultimate limit if I can develop expertise on a topic and give people a vision to believe in.

    We all have that moment we will never forget that changed our entire attitude about stuttering. What was that moment for you and why did it make the change in you that it did?

  2. My good friend Kunal, it was more like a series of moments. Life was passing me by, and wasn’t really happy settling for a life that was ‘easy’ for my stuttering. I wanted MORE.
    It’s difficult putting yourself out there, and it adds a TREMENDOUS amount of extra stress to life (at first), but you keep doing more and bigger things until you get to a place that stuttering isn’t in the equation of what you want to do. Don’t get me wrong, stuttering is with my every day, all day, and I still have to force myself to talk in pressure situations. But now those ‘situations’ put me where I need to be. It’s cool, and because of stuttering I’m buds with people like you 🙂

  3. I’m here to learn and I thank you for sharing your wisdon. I can tell you’re a person who likes to take chances even when it’s difficult to do so and so I appreciate your enthusiasm and desire to bring other people along with you. As I said, I’m here to learn about stuttering and perhaps find a way to help people at the same time. What I’ve learned from your post is that just getting out there and participating seems to be your motto, and also to own who you are. As you said, everyone is just as screwed up as everyone else. That goes for whether a person stutters or not. Thanks for normalizing stuttering and educating me.

    • Hi Mary, yep. I was unhappy watching life pass me by. Don’t get me wrong, it was tough (more like HELL) making the transition from smiling silently to being in the middle of everything. I like checking off boxes instead of adding to my ‘wish list’ 🙂

  4. Hello Tom.
    It was truly inspiring to read your story and I feel like it could apply to anyone, not just stutterers. I think it’s amazing how you are able to gain confidence as a stutterer because I know it is not easy to set your doubts and fears aside.

    Now I’m curious about your experiences, how did connecting with other stutters help you grow in your confidence? What was the understanding (which you described as something only each other could know) like?
    I think having that kind of bond is amazing and it’s not something that can be created easily.

  5. Hi Heeyeon,

    Glad you enjoyed my words!

    I can read a book or watch a video about stuttering. There’s about a zillion of them. BUT when I meet another person who stutters that’s ‘in the arena’…doing things that I want to do…that’s energizing to me! Let’s face it-stuttering is a daily battle. Having access to and becoming friends with people pushing past their limit…that’s where it’s at. I like hanging out with BOLD people who stutter. I think that’s where our world community is heading.

    As far as the ‘understanding’, the best analogy I’ve heard about stuttering is the PANIC one feels when drowning. If you can swim, well, you start swimming. If you can’t swim, panic takes over and it’s out of control. When I stutter, I feel this same type of panic. I can’t just stop and talk, or start ‘swimming.’ It’s difficult to understand that ‘panic’ unless you’ve experienced it.

    What helped me was getting involved in a support group. The thousand member social media groups are cool, but sharing my stuttering experience also means sharing my personal life, which requires the trust of a familiar group. Close friends who stutter 🙂

  6. Hi Tom, thank you for sharing this inspiring excerpt! I enjoyed reading about your positive outlook! My question to you is – what was it like growing up stuttering for you?

    • Hi Elizabeth, glad you enjoyed it! And thank you for your question!

      For whatever reason, my stutter was very significant. I keep mostly quiet, which compounded my low self esteem. I’m not sure if anyone EVER reaches their full potential, but I knew that my personality, my true identity, everything I am…was trapped inside because of stuttering.

      The effects of growing up with a stutter is so underestimated. Kids can be cruel. Their ridicule can last a lifetime. It’s so tough because there really isn’t any socially acceptable options when you can’t say the word. What do you do? Not say your name? Walk away? You know what I mean?

      “Don’t let it bother you” didn’t really work for me. It was like ripping off the bandage and reopening the deep wounds when someone would laugh at me, or give me that “look” of “What’s wrong with you???” Acting like it didn’t hurt was lying to myself.

      The answer to your question is “Isolation.”

      BUT…the vast majority of us blossom. Stuttering makes you tough, which will tremendously help you later in life. I have the life I do now because I stutter. And I wouldn’t trade “Tom 2.0” for anything!

  7. Hello Tom,

    Thank you. For your wisdom, and for sharing some personal parts of your life that were very difficult. This is appreciated very much.

    Your writing, including your responses to others who asked you questions, bring up the question of support groups. It seems to me that participating in support groups of one type or another is key for PWS reading this to being able to achieve the life that you describe. You mentioned conferences. You mentioned “isolation”. Breaking my isolation by starting to attend conferences and then support groups was certainly key for me.

    The question is: what is your opinion about the roles support groups play in helping the PWS get from isolation and shame, to living their life?

    Thanks
    Hanan

    • Hanan, my dear friend and dear HERO to thousands,

      I think talking about it and getting other’s POV i extremely healthy. Among people who understand in a way that only another PWS or a professional in the field can. If not, the only feedback is from my inner critic, who ‘throws my under the bus’ at seemingly every opportunity.
      I also think connecting with others who are living to potential unlocks the possibility to me that I can do the same. “If they can do it, why can’t I???”
      The stuttering struggle is all day every day. Being around other dynamic PWS fills my ‘courage tank.’
      When I first got involved in support groups, it took a while, but finally I found the place to be 100% myself. The authentic self is unlocked through support.
      Thank you for your question and more importantly, THANK YOU for keeping this online conference going!

  8. Hello!

    I’m a speech pathology graduate student, and I really enjoyed reading your post! I believe that it is imperative to listen to the voices of people who stutter to truly learn and grow as a professional. Your words and perspective could act as great encouragement for my future clients.

    Thanks for a great read!
    – Sarah

    • Thank you Sarah! I appreciate your interest in treating people who stutter. We need you!

      Best wishes in your studies!

  9. Hello Tom, I loved every word you wrote and I loved being able to relate to it. I agree with you that the support groups, and the conferences play such a powerful part in giving us the ability to move forward. I found what you wrote inspirational and wise so thank you. Phyllis

    • Phyllis you are an absolute treasure to our world community! To think that you just found us a year or two ago, and have ‘jumped right in’ with involvement is amazing!
      Thank you!!!

  10. Hi Tom!
    I am currently doing my master’s to become a speech pathologist. As a student who is learning about stuttering, I truly enjoyed reading your post. I found your words to be very inspiring, because not only does it help give confidence to PWS but it gave me, as an SLP student, the insight into how important it is to make sure that we spread awareness so that PWS can go out and be confident in their speech and not feel scared to be judged. I also couldn’t agree more with what you said in your post, “The stuttering support world is intense, just like stuttering. It’s OK to get what you need and go on with life. But, you’ll never be alone again”. It is so important to help PWS not feel alone because no one in life is ever alone.
    Thank you so much for such an inspirational post!

    • Hi Emily!

      Thank you for becoming an SLP! Our kids need you!

      I’m not the ‘advice giver’ type, but I’m to the point of putting this stuff down. Some of it might apply or none of it might. I just want to give young ones something to think about.

      Good luck with school!

  11. Hello Tom!
    Thank you for sharing your story and how you view stuttering and your life as a person who stutters! I am in graduate school to be an SLP. I found it interesting when you said “THINK like a fluent person” I am currently seeing students as an SLPA and would love some insight on how to go about my therapy. I feel like it is always about the strategies and I would like to make therapy more about what the client wants and is beneficial to them.

    • Good morning!

      Glad you enjoyed it!

      It doesn’t happen overnight. But taking “I shouldn’t/can’t because I stutter” out of all decision making opens up life. Because I stutter, my method might be a little unorthodox, but I’ll get there.

      It’s not a ‘one and done’ type of deal either. Stuttering remains with me. The more I engage life and get ‘out there’, the less its affect. The more I shy away from activities/opportunities (because of stuttering or just wiped out), the more stuttering has an affect. My stuttering doesn’t go away (I’m 57), but it gets a lot easier.

      I’ll give your comment further thought and get back to you. Thank you and have a great day! 🙂

  12. Hi Tom! I appreciate this list of advice. I like the part at the end where you say the best help is to listen (rather than worrying about being “a counselor”). I find if you are a good listener then you will find the right thing to say or the right way to support since you will be attuned to the situation. How does stuttering improve sales? I’m not in sales, and that’s a new idea to me. Thanks!

    • Hey Adam! GREAT to hear from you my friend!

      Sales is based on confidence in your company’s performance and/or product. I (mistakenly) thought that I couldn’t project confidence if I stuttered during a sales call. Sales are about selling yourself as much as selling a product/service. And if I couldn’t sell myself because I stutter, how could I create a successful business? You know what I mean?

      I tried for a while to hide my stuttering during sales calls. It wore me out. And then on one sales call, I just couldn’t. I was tired & hungry (two main triggers of my stuttering). I stopped my presentation, told the people that I stutter and please be patient with me. IT CHANGED EVERYTHING. They were TOTALLY comfortable with me and I got the sale. I COULD NOT believe it!

      I realized that if I told people about my stuttering, trust was established. Then I learned a secret: If I didn’t hide my stuttering, I wasn’t hiding anything else. My authentic self comes out. My product and service is top of the line, and disclosure of my stuttering actually REINFORCES that.

      I bring up my stuttering on EVERY sales call. So far this year, 75 out of 77 sales calls have turned into contracts. Stuttering HELPS my business tremendously!

      My son Sam works with me when he’s not in college. He has taken a few sales calls on his own, and discovered this secret. I advised him NOT to hide his stuttering. He gets 100% contracts on his sales calls!

      I’ve met many successful sales people in our world community. TOP performers!

      Yes, stuttering actually HELPS sales.

      I appreciate hearing from you. Hope you’re doing great!

  13. Hi Tom!

    SLP student here. I enjoyed your piece – you gave such important and valid advice not just for stutters but for everyone in general! “When you think everyone’s got it together except you, remember one truth about life: Everyone’s just as screwed up as everyone else.” I definitely resonated with this little nugget of wisdom.

    I am curious if there is anything in particular in your life that has helped you grow in self confidence and increase your self esteem?

    Thanks for sharing your advice! Keep spreading the positivity, Tom!

  14. Hi Janell!

    So glad you enjoyed it and thank you for this question:

    >>>I am curious if there is anything in particular in your life that has helped you grow in self confidence and increase your self esteem?<<<

    I found my 'voice' in something called Toastmasters. Toastmasters is a worldwide speaking org that consists of 'clubs'. Many cities have several clubs meeting various times and days. Membership to TM is nominal; about $90 annually.

    In TM you practice public speaking and leading a meeting. What's cool is the ability to stretch outside your comfort zone because nothing you do in TM has real life consequences. You can have fun!

    EVERY TM speech I've given (over 200 at this point) has been about stuttering. Early on I learned a secret: giving a public speech about stuttering changes everything. Not only am I disclosing my stutter to a group-they EXPECT me to stutter. They want to see and hear my stutter. And they clap at the end (crowd approval). EXTREMELY powerful!!!

    TM & networking with other people who stutter around the world changed my life. And please remember that stuttering isn't a 'one and done' type of deal. It takes constant, intentional effort to keep my stuttering 'demon' at bay. It's always with me, but the above aspects of my life are constant reminders that I CAN!

    Thank you for helping us!

  15. Hi Tom!
    Thank you for sharing such a well-written, encouraging post on the power of being heard and seen! I loved your statement, “Don’t blame your parents for your stutter. Don’t blame your teachers, your friends, your environment…whatever. Blame doesn’t change anything.”
    May I ask how was your early school years as a PWS? Did you feel supported at school and receive any accommodations?

    • Hi Kennedy!

      Glad you found something in my words that works for you!

      >>>May I ask how was your early school years as a PWS? Did you feel supported at school and receive any accommodations?<<<

      Rough. More like 'hell.' Back in the 70's, the school climate wasn't very supportive for kids who stutter. I think maybe because stuttering was so misunderstood. You know, I can talk one minute and then can't speak the next. Or even mid-sentence. Lot of misconceptions flying around. There was even an obscure theory back then that kids stuttered for attention. Can you believe that???

      Back then, kids openly laughed and mocked us. Couple times teachers joined in the 'fun.' Caused a lot of deep wounds (I can't say scars because every now and then they reopen). If there was a positive out of that, it's the fire in many of us today to change childhoods of kids who stutter.

      There weren't any 'accommodations' so to speak; not sure if that was even a concept back then. I was just skipped over for any oral participations in all my classes.

      Looking back, the MORE I tried to hide my stuttering, by silence or carefully crafted verbiage, the MORE stuttering controlled my life. I can't believe how kids today openly talk about their stuttering. Have you met Sam Wiggins? He's 11. You'll find him on YouTube.

      Bottom line, stuttering is weird. If you pushed me too much; pressured me to talk; it didn't really help. If I felt like I HAD to speak; put on the spot; and I wasn't fluent…well, it hurt.

      But, a gentle nudge…coaching…maybe a 'unique' approach towards an oral presentation in school…that seems to work well. Even if I stuttered, I seemed to feel good, because I MADE THE DECISION to do it.

      Encouraging kids to be assertive works.

      I also value gaining speaking confidence in the MOMENT. I couldn't gain confidence speaking in front of people by practicing in my bedroom. I didn't gain confidence on the phone by speaking into a device with no one on the other end. I HAD TO DO IT. Practice sessions without any consequence to real life really, REALLY helped me. I didn't feel pressure NOT to stutter; that I had to be 'perfect.' I could just have fun and try to relax.

      Thank you for your question!

  16. Hi Tom!
    I really enjoyed reading your article. It was very positive, encouraging, and inspiring. You provided great advice, not only for people who stutter but for everyone!
    Thank you!
    Shay

  17. Hi Tom, thank you so much for sharing bits of your story. As someone who is not a PWS, I gained so much valuable wisdom and knowledge while also being able to deeply relate to much of what you wrote. Your boldness and authenticity made this a very enjoyable read as well. I’m currently studying speech pathology and was wondering if you ever received therapy, and if so, how you feel that experience impacted you? Thank you so much!

    • Hi Rachel,

      Thank you for your question!

      It’s tough for me to talk about my archaic therapy, as my 1970’s early childhood therapy consisted of oral reading in our school therapist’s office. Very nice lady, and I think they just didn’t really know what to do back then. Perhaps the goal was to get me talking in her office with hopes this would build confidence outside.

      I think early intervention is CRITICAL. Deep rooted beliefs are created and wounds are inflicted that can last years. Very tough to change later. A few years of negative reinforcement takes a lifetime to get rid of.

      Recently, I attended a therapy session of my daughter (who stutters) and was very impressed with the emphasis on mental health. EXCELLENT direction! Emphasis was on the whole person.

      Thank you for studying speech pathology!

  18. Hi Tom,

    Nice to see and read your contribution to the conference. It’s important to share our stories and life lessons with others, especially young people, as it really offers hope.

    When did you first realize, beyond owning your stuttering, that you needed/wanted to share your voice and help?

    Pam

    • Hi Pam!

      I knew I wanted to be part of this after my first support group meeting. After some time, it became something bigger. You know when you find your purpose? Like your Women Who Stutter. It’s something I know I HAVE to be involved in.

      There’s nothing like the stuttering community! 🙂

  19. Hi Tom, what great wisdom you have to offer, not only for people who stutter but for anyone struggling in life. Thank you for lending your voice and inspiring people. If it’s not too personal, I was curious as to when you embraced your stutter and if there was an event in your life you can pinpoint it to? – Maria Balkji

    • Hi Mariam,

      As time goes on, my list of ‘too personal’ questions grows smaller and smaller 🙂

      “Embracing my stutter.” That’s a good one. I thought I had embraced it when I wore shirts about stuttering; when I was up on stage saying, “It’s OK to stutter!”; when I would tell people to be proud of their stutter.

      But, my stutter has greatly lessened over the years. Because of Toastmasters, my stutter is very, very minimal. So, I have a different experience with stuttering than someone who stutters more. It’s easy for me to say “It’s OK to stutter!” because my stutter doesn’t affect anything in my life.

      I realized that I was part of a narrative that put pressure on those who DON’T want to stutter. Whose life is hell because of stuttering. I actually made them feel worse about their stuttering.

      I had to be honest with myself and admit that through all the chorus of stuttering support cliche’s, that I really don’t like the physical act of stuttering or blocking. I think I’d be hard pressed to find anyone that does.

      But, the community that I now belong to BECAUSE I stutter…well, I wouldn’t change it for the world. I know for certain that my life is more meaningful, more interesting, more fun…BECAUSE I stutter. I want that for other people who stutter.

      I answer your question differently now than 10 years ago. So “no,” I don’t embrace the act of stuttering/blocking. I embrace my community. It’s caring for others; making them feel value; providing opportunities that give them confidence in the real world.

      As far as an ‘event,’ I now have children in my life that stutter. The comment in my writing of “When you say it’s OK to stutter, remember that someone is afraid to get out of bed every day because they stutter. They don’t want to stutter, and that’s OK too.” That’s about my daughter (21).

      Thank you for your question!

  20. Hi Tom, your post was very well written. Everyone in life strives to be heard and I know that can be difficult when people can be so quick to judge the way one speaks. The message of what someone is trying to say is far more important than the way they say it. I though you did a great job of encouraging a pws to speak up and not letting it hold them back. Thanks so much for the sharing your inspiring words!

  21. Tom,
    I think owning the situation gives power right back to the PWS and helps with quality of life. Though, sometimes others do not understand I agree that trying to be accepted by others can be very exhausting. It is like having an engine running “red-hot” all day everyday with no break in sight. Just let it happen and enjoy the ride!

  22. Hi Tom! I am here just to learn, but this post has really opened my eyes to several different aspects. It was very well written and allowed readers to understand how fast people are to judge and have a lack of empathy. Thank you for encouraging PWS to not let it get in the way of what they want in life. My favorite line that I will use in my life is “You might not be able to control your feelings, but you can control your ATTITUDE”. Thank you!

  23. Hi Anna!

    So glad you found something that resonates in your life!

    A long time ago I came across the concept of “Something good will come out of this.” From that point on, no matter what happened in my life, stutter related or not, I focused on that line. That was the beginning of the self realization that I CAN intentionally control my attitude.

    Always remember: Something good will come out of this! 🙂

  24. Hi Tom,

    These were some great words of encouragement. It provided me with some insight on the thoughts that go through the minds of someone who stutters and helped me better understand the different emotions a person who stutters may experience. I loved that you incorporated perspective into your writing as well. Such as when you stated, “When you say it’s OK to stutter, remember that someone is afraid to get out of bed every day because they stutter. They don’t want to stutter, and that’s OK too.” From this line, I learned how there’s individuals who will embrace their stutter, but there will also be individuals who wish they spoke fluently, and either option is okay, so long as this individual is happy with their choice.

    • Hey!

      Yep, for a long time those who aren’t as vocal & public about their stuttering tended to lurk on the outskirts of our community. NOT ANYMORE. There’s a new focus & encouragement to speak out. The emphasis is meeting people WHERE THEY ARE. We are steering away from the “Look at me!” stories of ‘success’ about people who’ve done this or that and attained stature & prominence in life. It doesn’t really help those who have a greater struggle.

      I used to think my story was special. WRONG haha. EVERY person that has endured a childhood and younger years struggling with stuttering has a fascinating story of triumph. We need to create space for them to tell it.

      Thank you for commenting! Have a great weekend!

      • Thank you for your reply Tom and thank you for sharing these wonderful perspective and experiences of yours. There’s definitely a lot I can learn from you. Hope you have a great weekend as well!

  25. Hi Tom! Thank you for your words of encouragement. I am studying to become an SLPA and appreciate your viewpoint. I am always wondering how we can best support our clients and sometimes all we have to do is listen.
    Thank you,
    Sarah Korneff

    • Hi Sarah!

      Thank you for becoming an SLP! We need your help!

      Interestingly, we just did a job for the Chair of a non-profit teen recovery program. We had a convo about how to reach teens w/o ‘preaching’ to them or pushing too hard. He said that after years of practice, it comes down to one word: CARE. Show them that you CARE about them. They don’t want to be told what to do. They respond to people taking a personal interest in their life. And of course that’s asking questions & LISTENING.

      Good stuff.

      Glad you enjoyed my post and have a great weekend!

  26. Hello Tom! I really enjoyed reading your post. I am currently studying Communication Disorders at CSUF, and after reading this I really hope many more will read this and speak up. Thank you again for sharing.

    • Hi Sonrie!

      Life changes when we start talking. We take our life back from stuttering.

      Thank you for your comment and have a great weekend!

  27. Hi Tom! I loved reading your text! I am studying to be an SLP and my question to you is what would you like speech language pathologists to know about stuttering?

    • Hi!

      >>>what would you like speech language pathologists to know about stuttering?<<<

      Dr. Murray said that we might not be able to change the fact we stutter, but we CAN change HOW we stutter. Intentionally getting rid of all those habits I picked up along the way helped me. I realized that all those things I did to try to get the word out (ticks, slap my leg, blink, etc) WORKED AT ONE TIME and they somehow became automatic.

      Replacing those old habits with new, intentional habits when I stutter HELPED ME. Total eye contact became a new habit, power posing became a new habit, appropriate hand gestures became new habits and so on.

      The answer to your question is that I wish someone would have told me a long time ago that I didn't have to do all these 'odd' things I did to get the word out that drew MORE attention to my stutter.

      Thank you for your question and have a great weekend!

  28. Hi Tom! Your excerpt was very inspiring and provides insight on the importance of being seen and heard in life. Your positivity and vulnerability are encouraging and admirable. I would love to be able to read your original piece. Thank you so much for sharing!

    • Hi!

      It’s a larger work in progress (same format). I had never intended to do this until asked to contribute to another publication. That kinda started everything flowing.

      When I’m finished, it’ll be available in downloadable and audio format. FREE, of course. I don’t do anything for money related to stuttering.

      Thank you for your comment and have a great weekend!

  29. Hi Tom,

    Thank you for writing this.

    It’s always amazing to me how much emotional crossover there can be in things that make you different than the standard of people around you. I don’t stutter, but I have ADHD, and what you have written here resonates deeply with me. The pressure to appear ‘normal’ is extreme and it’s often difficult to not focus on the parts of me that society views as horribly defective. It often is so visible in the way I deal with the world around me when I’m not masking. Here, you’ve reminded me to look at my strengths, including those given to me by my ADHD.

    Thank you, truly.

    • Hi Laura!

      My good friend created a non-profit called CHAMPS in South Florida for Autism. Through many convo’s with Brett, I get what you’re saying.

      LOVE the ‘mask’ reference! It’s different for us when we take off the mask. I totally get why people keep it on.

      No one walks in your shoes. You decide what works best for you. Build your network with great people that accept your way.

      Thank you for your comment and have a great weekend!

  30. Hello Tom! Thank you so much for sharing! I really enjoyed reading ! I am a Communications Sciences and Disorders undergrad and Im studying tp become an SLP and your piece was very encouraging! Did you ever feel like stuttering was going to stop you from being the person you are today ?

    Thank you for your sharing !
    Michelle Enriquez

    • Hi Michelle!

      Thank you for your question:

      >>>Did you ever feel like stuttering was going to stop you from being the person you are today ?<<<

      Without a doubt. It's easy to let stuttering make life decisions and mold your perceived personality. It's harder, VERY hard, to put yourself out there and take back your life from stuttering. Harder, but then YOU get tougher. And it's a battle all day every day against the fear of stuttering.

      But with students like you on the path towards SLPs, the future is bright for kids who stutter. Early intervention therapy will save years of repair later on.

      Thank you for becoming an SLP! Have a great weekend!

  31. Hi Tom!

    Your article was incredibly interesting to read. It was really uplifting, motivating, and inspirational. You provide fantastic guidance for everyone, not just those that stutter! My question to you is – besides support groups, are there any other resources you believe people who stutter should know about? I am currently an undergrad student studying to become a speech-language pathologist and I am so inspired and energized after reading your words and want to look into more resources!

    Thank you so much for sharing,
    Valerie

    • Hi Valerie!

      >>>besides support groups, are there any other resources you believe people who stutter should know about?<<<

      YES!!! Toastmasters. And do every (or almost every speech) about stuttering. Public speaking about stuttering is very, VERY powerful! Not only does a person disclose to a group of people that they stutter…they are EXPECTED to stutter. The audience WANTS to hear them stutter. And the audience claps at the end.

      Toastmaster clubs LOVE people who stutter. Who gets all the attention at a marathon after winner? It's the people WITH extra challenges!

      It's not for everyone. But, I found my voice in Toastmasters. Good place to cultivate BOLDNESS.

      Thank you for your question and have a great weekend!

  32. Hi Tom,
    I enjoyed reading your post. You’re very encouraging to all who stutter! How did you feel comfortable stuttering in public?
    Could you please get back to me as soon as you can. Thank you!
    Best,
    Cynthia

    • Hi Cynthia!

      >>>How did you feel comfortable stuttering in public?<<<

      I feel comfortable before & after, but not during the actual block. I just get through it and try not to think about it afterwards. I don' know anyone that enjoys the physical act of blocking/stuttering.

      I have the attitude of knowing what I want, and stuttering will NOT get in the way. I got fed up with accepting things because I stutter: not ordering the meal I really want; not disagreeing because I don't want to stutter; tired of what a sheltered life feels like, etc. I wasn't totally happy and didn't know why. Finally figured out that a life controlled by stuttering doesn't satisfy my need for fun & excitement; for adventure.

      Thank you for your question and have a great weekend!

  33. Hi Tom,
    I enjoyed reading your article! You say that getting involved is one of the first steps toward being heard in the stuttering community and beyond. I am curious if you have any advice as far as steps to get involved in your local area other than attending conferences. Do you see social media as a helpful way to get involved as well?

    Thank you so much!
    Megan

    • Hi Megan!

      So you want to get involved?!?! EXCELLENT!

      1. Start a local in-person support group. The World Stuttering Network (WSN) and most national organizations have guides and suggestions on the ‘how’. Local SLPs will help you by telling their clients about your group. Affiliation with an organization puts you on their website and people might find you during a web search.

      2. With social media, there are sooooooo many options. From online support groups to huge online communities, there are many opportunities to get involved. What I like about online stuff is I can do it when it’s convenient for me. Most huge online communities cycle through the various aspects of stuttering and it’s good to go through it at least once.

      3. Local media for advocacy. You’ll find helpful hints at worldstutteringnetwork.net.

      4. Organize a regional event. If you’re in the USA, you could reach out to us at the WSN, FRIENDS or the NSA.

      5. Start a podcast about stuttering. If you need suggestions for guests, contact myself or Tricia Hedinger at worldstutteringnetwork@gmail.com. Podcasts are WILDLY popular!

      6. Create your own FB group based on an idea or segment of our community. Advertise it on all the larger stuttering community FB pages to attract members.

      Whatever you decide to do, remember this: There can NEVER be enough support groups; NEVER enough support organizations; NEVER enough online groups; NEVER enough podcasts or any other endeavor relating to stuttering.

      Keep us as a resource for anything you need as we begin this exciting journey! Thank you!

  34. Hi Tom, thank you for sharing these kinds words and for expressing your feelings towards PWS.

    My question for you as a PWS is…do you have any device or tricks you use to control stuttering?

    • Hi Eve!

      >>>do you have any device or tricks you use to control stuttering<<<

      I don't have any devices.

      My #1: Intentionally shaping my mindset & controlling my attitude.

      As far as 'tricks': word substitution and a thoughtful look while blocking. Not all the time, but sometimes.

      Air buds help me with business calls. So does my phone coming through the car.

      I try to go FIRST with everything. Intro's, ordering, answering the phone on the first ring, etc. I don't give myself time to think about stuttering haha

      Hope this helps! Thank you for the question!

  35. Hi Tom!
    I hope all is well!
    I just wanted to say that I appreciate your words and wisdom! One big takeaway from your article is that silence is an agreement. I know for many years, I used to stay in silence and let others talk and walk all over me. It is very empowering to know that they are many individuals like yourself who speak up and don’t let others who are quick to judge walk all over you!
    I hope to hear back soon!
    Thank you,
    Charlene

    • Hi Charlene!

      Yep, that happened to me over and over again. Networking with people who GO FOR IT helps me.

      Thank you for the comment and have a great weekend!

  36. Hi Tom,
    Your words are so encouraging! It has definitely given me perspective on what a person who stutters has to overcome. I am currently aspiring to be a future speech language pathologist. You mentioned stuttering support groups. How did you get involved with a stuttering support group? Was that your first step in helping overcome your negative thoughts on stuttering?

    • Hi Susie!

      >>>How did you get involved with a stuttering support group? Was that your first step in helping overcome your negative thoughts on stuttering?<<<

      I did an AOL search for 'stuttering' in 1996 and found the Stuttering Home Page. They had a 'chat' for people who stutter and that was my first support group experience.

      My first in-person support group came shortly after that. But the life changer was my first conference of over 600 people who stutter. I needed to see & feel it. I met people with my similar personality. That was the key. Almost like looking in the mirror. It reinforced that I COULD DO IT.

      Thank you for your question and have a great weekend!

  37. Hi Tom!
    Thank you for sharing so many motivating words! Often times I reflect on my elementary school days where I was told over and over the oxymoron of “being different is beautiful but it is equally important to be like your peers.” I never knew who or what I should be or what I should show the world because of how I was conditioned to be a chameleon with a crazy hat; invisible but standing out. Although I do not have a stutter, I was speech delayed which has affected my way of speaking to this day. Some days I feel too embarrassed to even speak my truths; however, reading your post has given me much needed confidence to be my authentic self. I rather just stand out then blend in—that makes me unique, powerful, and beautiful. Please continue doing what you are doing! Have a wonderful night:)

    • Hi Julia!

      I lived the chameleon life for a long time. No one will like me because I stutter, right? I HAD to be (what I thought) they wanted for a partner, a friend, an employee. Always afraid that if I let my true self out, expressed how I really felt, said my preferences…well, that would be the end of it. Discovered that life left a big vacuum. I never felt satisfied. I wasn’t really happy. I was something that I really wasn’t. I couldn’t say ‘no’ to anything because I had to overcompensate for my ‘defect’ of stuttering.

      And you know what? People respect you when you express your opinion and what you want. They value your presence, instead of taking you for granted. Stuttering taught me to be thoughtful and kind, because I know how the other end feels.

      I have many defects (ask Lisa hahah), but stuttering isn’t one of them. I would have NEVER believed that as a young person.

      Thanks for your comment and have a great weekend!

  38. Hi Tom!
    I loved your words of encouragement, and you really gave me a different perspective and insight of life for PWS. I recently have been doing speech therapy with a 2nd grader student that stutters, and it makes me happy to know she carries the same attitude as you. I hope she takes the current mindset she has now into her future growing up. She always makes sure she’s heard and fearlessly speaks her mind in front of her peers. As a future speech therapist I want to do my best to support, counsel, and make sure my clients have a voice and are comfortable in their own skin.
    Thank you,
    Cristen Opinion

    • Hi Cristen!

      EXCELLENT! That BOLDNESS will carry her through her rough years.

      Thank you for treating us! Have a great weekend!

  39. Hi Tom! What a compelling and inspiring story! I think your message speaks loud to PWS. You inspire me, as an advocate, to continue supporting individuals in my life professionally and personally to continue being their authentic self, stutter or not. My partner is a PWS. I have witnessed him face adversity and challenges but remind himself of his worth and confidence, ultimately overcoming the challenge. Your quote “My greatest hope is that you find something in my words that helps.” is truly inspiring. Thank you for sharing your perspectives and motivation!

    • Hi!

      Cool! Having a supportive partner makes ALL the difference in the world! I am very impressed and appreciative that you are researching his condition.

      Best of luck and hope to meet you both at a future conference!

  40. Hi Tom!

    Thank you for sharing. I really enjoyed reading your post. You mentioned in another comment that it was hard to be a PWS during the early years of school. So I’m curious, how and when did you stop viewing your stutter as something negative and start accepting it?

    • Hi Nandini!

      It’s different times for different people. For me, it was in my early 30’s. Up until then, I HATED it. And now at the ripe old age of 57, I wouldn’t have the blessed life I have now without stuttering. Weird, huh??? 🙂

      Thank you for your question and have a great weekend!

  41. Hi Tom!
    Thank you so much for your advice and your words of encouragement. I believe these are amazing ways to look at life and will definitely help every person who reads them. I especially loved the quote you included by Bob Wellington “Be the person your 8yr. old self and 80 yr. old self would be proud of.” I think everyone goes through moments in their life where they underestimate themselves or wish they were able to do something or be “normal”. However, there is no “normal” and everyone is unique in their own way. For this reason, it is important to be the person we want to be and that we are happy. That way when we are older, we will be able to look back and be proud of ourselves and what we have accomplished.
    Thank you so much for sharing!
    -Maria De La Mora

    • Hi Maria,

      Bob is a special person. You can meet him on most Stutter Social support group sessions (open to all). The days/times are posted on their FB page. He’s an icon of our community.

      Yep, I don’t want any regrets.

      Thank you for your comment and have a great weekend!

  42. Hi Tom! Your article was very eye-opening and encouraging. I see you emphasized frequently that PWS should refrain from blaming themselves and others for their stutter, and you also emphasized that attitude is everything. My question is what would you recommend to a friend or family member of a PWS when it comes to counseling them?

    • Hi!

      >>>My question is what would you recommend to a friend or family member of a PWS when it comes to counseling them?<<<

      *Ask them how they want you to react to their stuttering.
      *Openly talk about their stuttering. Ask them questions about their life relating to stuttering.
      *Always remember when giving advice to them, that no matter what, they are a person who stutters. They won't react verbally the way you do. Don't tell them what to say, esp relating to conflicts.
      *Praise them for achievements, and never "good" speech. You don't want them to think they've disappointed you by stuttering.
      *Ask them if they sometimes want you to speak for them. Develop a sign that says, "Please say it for me."
      *Stuttering is NEVER a fail.

      The above is what we do with our kids and how I like to be treated. We talk about stuttering at large family functions. Openly and candidly. It's cool.

      The hardest thing for me is not to rise to the occasion when one of them, especially my daughter is mistreated because of stuttering. Her college professor asked her not to stutter so much when presenting to the class. Can you imagine??? I went BALLISTIC. Our daughter wanted to handle it herself, and Lisa had to restrain me from involvement. It worked out. She handled it and came out very empowered.

      THAT was tough for me. Letting them handle a situation and NOT jump in. Of course, that's situational (age, setting, etc.).

      Thank you for the question and hope I gave you something to think about. Have a great weekend!

      • Thank you for your response Tom. This was very eye-opening for me. Not only can future SLP/clinicians take note of this, but so can the world. I think we all need to move towards normalizing and accepting PWS. Your words highly encourage and embrace that.
        I hope you have a wonderful weekend.
        Best,
        – Lali

  43. Tom,
    I appreciate your words of encouragement and incite towards both people who stutter and to those who do not. As a future Speech & Language Pathologist, I’m always wanting and welcoming insight on ways to support people who stutter. I understand that everyone’s experience with stuttering is different. Also, it isn’t about letting them know “its ok” if they can’t get a word out, as that can add pressure. Rather just accepting the stuttering and being patient as you await a response. Don’t listen to the stutter, listen to what people who stutter are saying. As you wonderfully stated, “Don’t worry about being a counselor. Listening to someone is the best help you can give”. The more people learn to not treat a person who stutters any different than one who does not, the better. As encouraging as you are, do you ever find days where emotions get the best of you? If so, what do you like to do to try to overcome it?

    Kindly,
    Dominique

    • Hi Dominique!

      >>>As encouraging as you are, do you ever find days where emotions get the best of you? If so, what do you like to do to try to overcome it?<<<

      You won't find me in the "Look at me now!" crowd. Nope, stuttering is a lifelong battle.

      I think my stuttering is triggered when life drags me down. Or being tired and hungry, but those are easily remedied. When I get body slammed by life, I gravitate towards positivity. I'll watch one of my go-to movies or video clips; listen to my special uplifting playlist; just stop and chill. Most times it just passes. I think knowing that whatever it is is only temporary.

      Basically, I ramp up external influences. And sometimes, I'm just in a sour mood for a day. For whatever reason.

      Does this answer your question? Thank you and have a great weekend!

  44. Hi Tom,
    I really enjoyed reading your story! I think you have an amazing outlook on the world which pushed me to think about stuttering and life in general in a way I never have before, especially when you said “Silence is agreement. Do you really agree?” What pushed you to be more confident in speaking out on what you believe in? That can be extremely difficult for everyone!

    • Hi Katherine!

      >>>What pushed you to be more confident in speaking out on what you believe in? <<<

      Thank you for the question!

      Two things:
      1. I knew that NO ONE would have the passion that I did for my ideas. I HAD to make them happen, and it usually always involved speaking.
      2. If I didn't speak up, I'd end up allowing something to happen that I didn't think was the right/best thing to do. Not that I'm always right, but I need to present my view to give people options or other things to consider from my POV.

      I could either speak and try to make things better or quietly follow others. Following quietly doesn't work for me.

      Thanks again! Enjoy the weekend!

      Tom

  45. Hi Tom!

    Thank you so much for sharing this. I find this very inspiring as the purpose behind your word can work to motivate anyone. However, with this especially it really helped me understand what a PWS can go through and what they may be thinking. It has really opened my eyes and mind for others. I am currently a student studying to become an SLP and after reading this it made me realize that the true goal in helping others is by helping them have a voice and have confidence in using it. Is there any advice that you would give to help others not only try and find their confidence in their voice but to also help maintain it throughout different challenges?

    Thank you,
    Kaydi

    • Hi Kaydi!

      Our family just had his discussion last night. Lisa asked me how a PWS can be ‘bold.’ She hears me suggest to other PWS to practice boldness, but HOW???

      I think if there’s only BOLDNESS if you do something you FEAR. I you KNOW you can do it, how is that ‘bold’? All day every day we face the fear of speaking. FORCING ourselves to speak takes BOLDNESS. The more you do it, the easier it gets (but may never feel ‘easy’).

      If you fear it, DO IT.

      Thank you for the question!

  46. Hi Tom! Thank you for your story. Reading your piece helped me be able to put myself a little more in the shoes of people who stutter. Furthermore, I loved that your piece was meant to help encourage and guide others in your community. Thank you again for sharing!

    • Hi Lexie!

      Thank you for your comment!

      Yep, the effect of stuttering on a person is soooooooo underestimated. “Just say it” or “Relax” or “Breathe” or a zillion other quick & easy solutions are offered by the well-meaning.

      It’s complicated. Causes stuff that we battle over a lifetime.

      Have a great weekend!

  47. I appreciate your post Tom! reading it made me feel a lot of energy. reading about your perspective was interesting and inspiring! Sometimes the first step for changing anything is embracing it. It’s ok not to ok sometimes. learning how to not reject any feeling is essential.

    It is also important to realize that each human has his or her own challenges, and this is what makes us unique. I think instead of rejecting our differences we need to indulge harmony and acceptance to grow from each others uniqueness.

    -Dana Alsadi

    • Hi Dana!

      I spent half my life listening to, and telling myself, that “I shouldn’t feel that way. Stuttering isn’t a big deal…” Well, it is. Like you said, acknowledging & embracing what I feel is the first step of change. Our feelings might not make sense to anyone else, but they sure are real to us.

      The first chapter of my stuttering support journey was EXPERT. I had answers & solutions for EVERYONE.
      Second chapter was listening & replacing “You should do this” with “What works for me”
      And now, this chapter is sharing what I’ve learned. Young people want to hear what we think.

      Thank you for your comment! Have a great weekend!

  48. Hello Tom,

    Thank you for sharing your thoughts and experiences. Reading your article has given me the reminder of how important it is to be a listener. I have been told and advised that listening is a skill. I really like that was your introduction, to be seen and heard. Your piece really really gave me an understanding of what a pws can experience throughout their life. Lastly, I enjoyed the encouraging acceptance and support that you are sharing with others in your community.

    Best,
    Jessica

    • Hi Jessica!

      Listening is a lifelong struggle for me. I focus on what I want to say next AND how to say it without stuttering. Sometimes I catch myself starting to talk off the rhythm of the speaker’s last words, so it appears that I’m interrupting.

      When I listen, REALLY listen, I can feel the connection growing between the speaker and myself. When I feel connected to my listener, it helps my stuttering. It’s more than just relaxation on my part; it’s energy.

      It takes focus to listen to us. When we get our sentence finished, you have to remember what we said and piece it all together. I think we all realize and appreciate that. Listening to us could be called the greatest help you can give us 🙂

      Thank you for your comment and have a great weekend!

  49. Hey Tom!

    Thank you for sharing your story and experience. I am currently working towards becoming an SLP, and I enjoyed reading the part where you said, “Listening to someone is the best help you can give.” and “Being heard in the stuttering community is vital”. Thank you for the advice and sharing!

    Best,
    liz

  50. Hello Tom, nice to meet you!

    I love how empowering your words are. The overall theme I took away from your writing is that it’s okay to be you, and it’s okay to feel however you want to. People, including myself, can blame other things around us for our struggles. But you’re right. Playing the blame game doesn’t address whats happening. I’m taking a fluency class at my university, and we had to perform a voluntary stuttering assignment. I had to stutter in 2 different situations 1.) face-to-face & 2.) over the phone. Although it doesn’t exactly allow me to walk a mile in another person’s shoes, it allows me to at least walk a few steps. I understand a little more about anxiety, fear, and other emotions that come with stuttering. This prepares me to be a better person and clinician because I can provide empathy for PWS, NOT sympathy.

    I wanted to ask what advice you have for future clinicians when helping clients who stutter? (I know not everyone will want our services but for those who do)

    Best,
    Nataly