Tom and Lisa ScharsteinAbout the Author:

Tom Scharstein is a person who stutters and entrepreneur from South Florida, USA. From national board memberships to support group leadership, Tom has been active in the worldwide stuttering support community for over 25 years. Co-founding the World Stuttering Network (WSN) in 2020, he is deeply honored to serve as Chair.

(The following is an excerpt from a larger work)

It’s important to be seen and heard in life. Speaking up helps you get what YOU want out of life. Silence might be safer, but you get walked on a lot. Life begins when we start talking.

Being heard in the stuttering community is vital. Get involved. It’ll be one of the most rewarding things you’ll do in life. And listening to other people gives me options. Being in the community for such a long time has helped me figure out what works for me. You might agree with most of what I say, some of what I say, or none of what I say. I’m not here to win any arguments. I want you to be successful in however you want to live your life. If something I say helps you, then it’s all worth it to me.

“My greatest hope is that you find something in my words that helps.” Tom Scharstein

Don’t be too hard on yourself when you make a mistake. Everyone’s a genius when they look back.

Don’t let the mood of your day be determined by how much you stutter. If you figure that out, let me know how.

Stuttering tells us that we’re not good enough. But trying too hard to be accepted sets an exhausting standard that repels people because they think we’re not authentic. And who knows? They might be right.

When you think everyone’s got it together except you, remember one truth about life: Everyone’s just as screwed up as everyone else. Let people hear your thoughts and feelings. You might be pleasantly surprised and find some answers.

Market your stuttering. It gives you an advantage in sales. In business, sales is everywhere all the time.

When you say it’s OK to stutter, remember that someone is afraid to get out of bed every day because they stutter. They don’t want to stutter, and that’s OK too.

Get to a conference for people who stutter at least once. If you can’t afford it, contact the organization and ask for help getting there. There’s a lot of generous people.

Don’t blame your parents for your stutter. Don’t blame your teachers, your friends, your environment…whatever. Blame doesn’t change anything.

Speaking has less to do with getting what you want out of life than you think.

Does being around people who stutter make you stutter more? Probably. Maybe because you talk more. Maybe because the fear is gone. But you’ll feel an instant deep connection with others, and that’s a special thing. They’ll understand you in ways that’s impossible for others.

Being underestimated hurts. But in the long run, it’s one of the most powerful motivators in the world.

Do things by yourself. Not all the time, but sometimes. You’ll build trust in yourself.

THINK like a fluent person. There’s a difference.

If you want to do something as a group, the question to ask is, “Will this help people?” If the question is, “Will this make money?” . . . you’re in the wrong place. 

“Be the person your 8 yr. old self and 80 yr. old self would be proud of.” Bob Wellington

The stuttering support world is intense, just like stuttering. It’s OK to get what you need and go on with life. But, you’ll never be alone again.

What is the hardest thing about stuttering? The constant fight NOT to underestimate ourselves. Most everything IS reachable.

The next level after advertising your stutter is to promote it.

Silence is agreement. Do you really agree?

You might not be able to control your feelings, but you sure can control your ATTITUDE.

Silence is safe, but limiting. And it’s just not as fun. 

The language of ‘easy’ words might not get the message across.

Don’t worry about being a counselor. Listening to someone is the best help you can give.

Act confident as you stutter. After a while, it won’t be an act.

Loading


Comments

My Life As a PWS – Tom Scharstein — 122 Comments

  1. Hi Tom,

    Although I am not a PWS, I can resonate with your post quite well. It is always important to do the best with what we have. This made me realize if we spend too much time thinking about the “what ifs”, we’ll hardly get anything done! My question for you is, what do you think is the best way to motivate PWS to become confident/comfortable with their condition? I am in my undergrad studying to become an SLP, and would love your input on how to support future clients. Thank you!

    • Hi Justine!

      Thank you for your question:

      >>>what do you think is the best way to motivate PWS to become confident/comfortable with their condition? <<<

      Now we're talking about changing belief systems. Up til they meet you, they're left alone to listen to their inner critic, a life full of "I can't", feeling inferior, and keeping everything inside. Broken spirit for sure.

      When I came on the scene, many, MANY years ago (haha), it was an 'us against them' mentality. A few angry PWS mad because SLPs hadn't fixed their stutter, and they somehow became mouthpieces for the stuttering community.

      Times have changed and we've seen time and time again how life impacting it is for PWS to meet other PWS. I ran across a saying, "I can read it 1,000 times, but only have to see it once." My self doubt was changed to self hope when I met PWS doing what I wanted to do. I never thought a person could be cool and stutter, but those are the exact people I met. That's when I became COMFORTABLE with my stuttering.

      It's a partnership involving therapy and support. You show them HOW and we show them POSSIBILITY.

      CONFIDENCE came when I did public speaking about (my) stuttering. Saying to myself, "If I didn't stutter, would I do this?" and then doing it if the answer was YES.

      I'd ask a client, "If you didn't stutter, make a list of what you want to do." and then began formulating the HOW. Some ways to get there might be a little different, but it's the end result that matters.

      Thank you for helping us! Have a great Sunday!

  2. Hi Tom,
    i enjoyed reading your advice, and thank you for it.
    I am going to school to be a SLP, and will definitely share this writing with my future clients. I know many people can feel their stutter is inhibiting them from being as successful and accomplishing what they want to, thank you!
    One think i will write down and make sure i remember if ” Don’t be too hard on yourself when you make a mistake. Everyone’s a genius when they look back.”; i hope your know your advice is what people who do not feel they are good enough need to hear-it tells them to not worry and a stutter may feel handicapping, but it should not.
    thank you,
    desiree

    • Hi Desiree!

      Thank you for the comment! Best of luck with school! And thank you for helping us!

  3. Hi Nataly!

    Thank you for the question!

    >>>I wanted to ask what advice you have for future clinicians when helping clients who stutter? (I know not everyone will want our services but for those who do)<<<

    Don't take it personally if a client stops seeing you. Most times is just about money, or insurance, or funding.

    Speech therapy isn't like piano lessons. After a couple years of lessons & practice, you can play the piano. A couple years of speech therapy & practicing fluency techniques doesn't guarantee fluency. It's important that parents (looking for you to 'fix' their child understand that).

    Don't listen to those mad because you didn't 'fix' them. You're not a car mechanic.

    People meeting other people who stutter IS the life changer. That's where we figure out how normal we actually are. Always maintain a support group within your practice, and get the word out about your group. This is also a good starting point for practicing fluency techniques in front of peers.

    Clients are different. Risk takers WANT you to push them. Those more reserved will respond to little steps. But, if you keep them in the 'safe zone' nothing really changes. Life begins when we start talking.

    You are fighting the belief that "I CAN'T because I stutter". Show them. Voluntarily stutter in public and let them see how other people react.

    Fluency techniques may sound WEIRD. But they'll help you get through situations that'll build your confidence. Remember, they're not called LIFE TECHNIQUES. Pull one out later if you need it.

    Start the fluency technique on the word before the word you'll stutter on.

    Expecting a fluency technique to work without practice is like getting up on stage expecting to perform a concert without practice. You have to KNOW it.

    Stopping mid-stutter and expecting a fluency technique to work is like pulling a parachute 3 feet off the ground.

    Have as many guest speakers who stutter as you can for your group. Older people who stutter love to talk to kids who stutter. If you need speakers, reach out to one of the many stuttering support organizations.

    Push your clients to ASK people in their lives how they feel about their stuttering. It's usually very positive. If we don't ask, we guess. It's not worth being wrong.

    Make sure the parents know that their child doesn't stutter because of something they DID or DIDN'T do. It's NOT their fault.

    Good results aren't always heard. Bright eyes and a happy spirit are good signs of progress.

    Disclosure is one of the most powerful tools out there. It may or may not change the listener, but it sure changes us.

    Never, EVER praise a client for less stuttering. Praise them on content; on pushing themselves to talk; on doing something new.

    Show them that you care about them. Let them talk about what's important to them, speech related or not. Everyone loves to talk about something they're excited about.

    Get us talking 🙂

  4. Hi Tom, I really liked your advice I am a senior at Cal State Fullerton I am going to school be an SLP. I have a disability myself and I want to encourage my clients to be confident can in themsselves. What is your best advice for how to instill confidence in my future clients?

    • Hey!

      My Lisa called me out the other day. She said that I advise people to stuttering BOLDLY, but I don’t talk about HOW.

      Do something you’re afraid of. After you do that, do something else you’re afraid of. You’ll develop less fear in time.

      It’s not BOLD if you’re not afraid to do it.

      🙂

  5. Hi Tom, I truly enjoyed reading your post. It inspired me and I am not a PWS but I loved what you said at the end specifically, “Listening to someone is the best help you can give” which is honestly so true! Learning to be a good listener is critical to participating in enriching conversations and friendships. I also liked “act confident when you stutter, after a while it won’t be an act.” I think faking it til you make it can help in terms of how a person views something that makes them insecure. Great post, as a future SLP I will never forget your wise words!

  6. Hi Tom,
    thank you for taking the time to share your inspiring and motivational words. I agreed with many points you made throughout your post and will definitely use it in the future when I begin to work with my clients in the clinical setting. Many PWS blame themselves for having such a hard time communicating or lose hope during speech therapy because of how tough it can be. Now seeing things through a different perspective has taught me that whenever I run into someone who stutters and is having a difficult time. Instead, I can encourage them to continue working hard and that doubting or blaming themselves is just going to make it 10x harder. Everyone goes through struggles but that doesn’t mean you give up without a fight.

    • Hi Jessica!

      You got it!

      Working hard on personal development and doing things I’d do “if I was fluent” were game changers for me.

      Good luck in your career path and THANK YOU for helping us!

  7. Hi Tom!

    Thank you for taking the time to share your insights and words of motivation. As a graduate student learning about stuttering, it has really opened my eyes to all the difficulties people who stutter can have and have probably faced. It has helped me understand the complexity of stuttering and a person’s perspective of their own stuttering.

    • Hola!

      Yep, stuttering tends to be so underestimated. I heard throughout childhood, “It could be worse”. Well, stuttering is pretty much an 8 on the 1-10 ‘suck scale.’ It can always be worse, right?

      There’s what we thing about our stuttering and what we GUESS others think. People’s reactions GREATLY influence our personal perspective. Open & honest convos with those important to us is a key to unlock self respect.

      Thank you for learning about stuttering and best wishes towards your path!

  8. Hi Tom! I am currently going to school to be an SLP and i am currently taking a class called Introduction to Fluency Disorder. Therefor, I am learning a lot about people who do stutter. I really admire your passion and positivity. My one question to you is, what is one thing you think someone should know going in to Speech Therapy?

    • Hi Kathy!

      It seems so easy to remedy. “Just say it.” The weird thing is, WE CAN’T. Feelings of hopelessness and despair experienced during our formulative years follow us throughout life. Basically, we spend the rest of our lives, or a large part of it, reconstructing the damage.

      We’re always looking for a negative reaction from you as we block/stutter. The ‘one thing’? Just smile and listen to us. 🙂

      Thank you for your question and best of luck with school!

  9. Hi Tom! Thank you for sharing such a fantastic post. As a future SLP, I really love seeing PWS have such a positive attitude about their disfluencies and how they have persisted in their lives. I love the quote blame doesn’t change anything. There really isn’t anyone to blame, especially yourself. I think you should always celebrate yourself and your accomplishments because it encompasses who you are and the communities you represent and share common ground with. I have a better understanding of what difficulties PWS has faced, and I understand the perspective of a PWS from a different view. Thank you so much for sharing this post!

    • Hello!

      So glad you enjoyed it!

      Yep, blame might make me feel better about myself in some way, but does it really change anything in my life? My actions change my life. My positive connection to others changes my life. Taking care of my mental health changes my life. You got my message!

      Best wishes for success in school!

  10. Thanks for your words of advice that are so simple and yet so important. We need to tell ourselves these advices, and be our own friends, instead of being there for others, accepting and understanding, but at the same time being our own worst bullies. Yes, you change lives. So thanks for all you do and for making others to walk alongside with you. Together we can create the butterfly effect.

    Keep talking

    Anita

    • My dearest Anita,

      Thank you for your kind words and most importantly, traveling with me on this amazing journey.

      I’ve realized it’s better just to say it and see what happens. Cut out the additional 1,000 words of my explanation of what I’ve just said. Let the the simple thought blossom in the mind of the reader.

      And THANK YOU for all you do!!!

  11. Hi Tom! I really enjoyed reading your article. While sharing great advice to PWS, you also shared a lot about the internal factors of a PWS. As a person who does not stutter and a future SLP, your advice and words of your own internal thoughts help me to better understand what goes on inside and how to advice clients in the future! I love you positive outlook on stuttering and hope that PWS find this article to too be inspired by you to be positive!

    Thanks,
    Caroline

    • Hi Caroline!

      Thank you! So glad you enjoyed my words!

      Once I figured out the effect of a positive attitude on my stuttering…well, why live any other way??? 🙂

      Thank you for choosing the field of SLP! Good luck in school!

  12. Hi Tom,
    Your post was very nice to read. I am currently taking a stuttering course in undergrad and this gave me a broader perspective for PWS. Your words of encouragement and advice are so important in regards to mental stability/health. I love how you also stated, “Do things by yourself. Not all the time, but sometimes. You’ll build trust in yourself.” This is also key in stepping out of your comfort zone if doing things by yourself wasn’t in your comfort zone. It gives you time to advance your confidence and just being honest with yourself.

    • Hello!

      You got it! We are beginning to tap into just how important mental health is towards our stuttering. Stuttering support organizations are starting to focus on mental health just as much as stuttering; i.e. “Stuttering Awareness Mental Health WellBeing of Ireland”.

      Here’s a joint event the World Stuttering Network (WSN) just had with them: https://www.youtube.com/watch?v=JJXfdVu09V4
      Lot of good stuff in that video; particular from those in the academic field.

      Glad you enjoyed my writing! Best wishes!

  13. Hi Tom!

    Very wise words I probably needed to hear today. Thank you for sharing your insight for PWS. I think as a future SLP-A/SLP it is important to know how PWS feel so we as future clinicians we do not step over boundaries because of what we learned directly from a book. I want to always have a safe space and respect for people whether it’s family, friends, people I work with. Thank you for sharing your perspective. Very powerful!

    Best,
    Anel I.

    • Hi Anel!

      Glad you enjoyed my writing!

      I think the stuttering field would be fascinating. You’re unlocking a personality. Especially with kids, we see a personality shaped and controlled by stuttering. YOU get to see the real person. Very cool!

      Anel, there’s 80 million PWS in the world today, and 80 million UNIQUE ways to stutter.

      Good luck with school! Thank you for helping us!

  14. Hi Tom!
    Although I am not a PWS it really stuck with me when you said just because someone appears to have everything together in their life, remember they are just as screwed up. It is so true and a reminder not to compare ourselves to others which can be so easy to do. I love how positive and meaningful your advice is. I am going to school to become an SLP and I would like to carry the same tone as you to my patients.

    Hope to hear back,
    Ivana

    • Hi Ivana!

      Yep, you got it. And that’s why it’s so important to me to have prominent figures in our community that don’t just get up on stage and talk about how great their lives are NOW. “I used to stutter, but look at me NOW” type of deal. I prefer leaders and presenters to open up and talk about their vulnerability. Sure, look at what I’m doing now, but here’s what I still struggle with every day.

      I’m an old guy at 57, and I still fight the fear of stuttering every day. Funny how I see kids’ eyes open wide when I say that. Years ago when I’d give the “You can do it!” cheerleading type of speech, their eyes would tell me that their brain had set sail… Those type of speeches don’t really help.

      I think I’d appreciate an SLP tell me something they fear. They expect me to open up the most vulnerable side of my life…how about yours? 🙂

      Thank you for becoming an SLP! We need more!

  15. Hey Tom!

    I really enjoyed reading your article in giving advice to PWS. As a future SLP, I am very interested in helping and working with PWS. Your advice is not only helpful but, a great insight on how PWS tend to feel and think. I loved how positive and straight forward you were fully intend to carry this advice to future clients.

    • Hey Raymond!

      Cool! So glad you chose to become an SLP! We need you!

      Thank you and have a great night!