James HaydenAbout the Author:

James Hayden is an HLA technologist, writer, and a person who stutters from the New Orleans area. James is the author of Dear World, I Stutter: A Series of Open Letters from a Person Who Stutters. His work has been published by The Mighty, The Stuttering Foundation, Stamma, Yahoo, and MSN. James has also appeared on several podcasts, presented at the National Stuttering Association conference, the Australian Speak Easy Association Virtual Conference, numerous universities, and was a speaker at TEDxOchsner 2019. He also serves as the chapter leader for the New Orleans chapter of the National Stuttering Association.

Over the past couple of years, awareness for the importance of: diversity, inclusion, and representation in all facets of life has dramatically increased. A lot of incredible work has been done in this area; however, more work still needs to be done. One area that still needs a lot of work is how stuttering is represented and portrayed in the media, specifically television and more specifically reality competition shows. For so long, whenever a person who stutters (PWS) competes on one of these shows, stuttering is their story and not just one small part of their story. They are given an edit that suggests that they overcame this terrible thing and they can now accomplish anything. When in reality, a person who stutters can accomplish anything and the only things they need to overcome are the public perception of stuttering and the voice that tells them they can’t do something. Like with everything else, representation has gotten better but we still have a good work to do on this front. Recently, I did my part in better representing the stuttering community and to somewhat fulfill a bucket list item. 

Back in June, I was one of 17 people to compete on the tenth season of the live reality game (LRG) Surviving Reelfoot, based on the CBS show Survivor. An LRG is a fan made and produced version of a reality competition show for fans of the show. They are typically held at a park or someone’s private property and last several hours to several days. Sometimes, they are livestreamed on Facebook and/or put on YouTube. This game was held at a hunting camp in Hornbeak, Tennessee and lasted eight days.  I applied on a complete whim and to my surprise I made the cast. For a variety of reasons, I knew going into the game that I had very little chance of winning. 

So, why did I do it? Why did I willingly subject myself to living in the elements, sleeping in the dirt, being rained on, eating very little food, competing in numerous physical and mental challenges, being in a constant state of stress and paranoia, all the while playing a cutthroat game? Besides the adventure and a chance to play my favorite game, the reason was simple: representation. The game would be livestreamed on Facebook and I knew this would be an incredible opportunity to represent the stuttering community. I could show that a person who stutters (PWS) is just like everyone else, but sometimes it might take us a few extra seconds to say what we want to say and that our voices are worth being heard. I knew that this was an opportunity for little Timmy in St. Louis who stutters but does not know another PWS to see me and realize he’s not alone. That he can still accomplish any goal he sets for himself. 

Before the game started each contestant did a meet the cast video. This was a one-to-two-minute video where each contestant said they’re name, where they’re from, their job, their strategy going into the game, and why they’ll win. In my video, I said “What’s up y’all? I’m James from New Orleans and I’m a person who stutters.” I then proceeded to talk about my strategy and why I thought I would win. I disclosed my own journey so the audience knew I’m a PWS and that my stuttering moments were not connection issues. 

When the game started, we were divided into two tribes, or teams, and were given a few minutes to introduce ourselves. When it was my turn I said, “Hey y’all. I’m James. I’m from New Orleans and I work as an HLA technologist. I’m also a person who stutters. I just ask that you don’t try to finish my sentences. If you have any questions about stuttering, then feel free to ask me.” I did this for two reasons. The first reason is for my own journey towards continuing to accept and embrace this part of myself. Second was to remove any doubts that I was lying because I was stuttering. As we know, one of the stereotypes associated with stuttering is that people are lying when they stutter. This is a game built on lies and deception and I didn’t want my fellow tribe members to equate my stuttering moments with me lying. When I was swapped to the other tribe, I gave the same speech to them. Being a PWS was a non-issue, as it should be, and had no negative impacts on my game. 

Throughout my time in the game, producers were constantly filming us around the camp and during challenges. That meant during strategy talks with allies and non-allies, tending to camp chores, hanging out around camp, or competing in challenges, a camera was on me. That camera recorded any and all stuttering moments I had whenever I spoke. A couple years ago, I would’ve been horrified at that prospect, but it didn’t bother me at all. I just wanted to show a PWS can collect firewood, be a good ally, hold their own in challenges, and just have a regular conversation where stuttering may or may not show up and it would be no big deal. Just seeing the everyday moments of camp life, I believe, was my best way to show representation. To show that stuttering is no big deal and that it’s ok to stutter. 

Throughout the game, all players gave a few confessionals each day. For those unfamiliar, a confessional is when a player talks to the camera about their strategy and how they view the game. Some were recorded and some were live streamed to the Facebook page. At the end of every confessional, the producer filming our confessions would ask, “Anything else you want to add?” I typically added, “It’s ok to stutter.” I did this so that any PWS watching me knew it was ok. As a child, I never heard those words and I wish I did. It’s only four words, but those words speak volumes when put together. I wanted those who never heard them to know it’s ok.

I was voted out on the morning of day 5 and became the first member of the jury. The jury consists of a group of eliminated contestants who vote for the winner. On the afternoon of day 8 the final tribal council was held. Final tribal council is where the final three contestants pitch their cases to the jury of why they should win. The way this works is that each finalist gave an opening statement, each juror was allowed to ask each finalist one question, the finalist gave closing statements, and then the jurors voted for a winner. Knowing this is the climax of the season and would have the most views, I intentionally wore a shirt that says “It’s really really really really really really really ok to stutter (really)!” Throughout most of the final tribal council, my message could be seen in the background and was prominent when I got to ask my jury question. Our final tribal council video has over one thousand views. That means over one thousand people saw my message and saw it’s ok to stutter. We had a party after the winner was revealed and many pictures were taken that night and later posted to social media. I made a point to wear my shirt to the after party as well. That way the social media followers of production and fellow cast members saw my message as well.  

Over the course of our eight day game, our videos had over 80,000 views. Eighty thousand plus people saw that stuttering is just one small part of our story and not our entire story. Eighty thousand plus people saw what stuttering looked like in action. Eighty thousand plus people heard and saw that it was ok to stutter.  That alone made every bug bite, every lost hour of sleep, every moment of stress and paranoia, and the ten to twelve pounds of weight I lost well worth it. 

And I had fun the entire time.

Loading


Comments

Surviving Reelfoot: Representation – James Hayden — 35 Comments

  1. That’s a badass way to showcase stuttering and put it on the spotlight. I don’t follow those reality shows, but I know how big of a deal it would be to see a person wearing a shirt talking about stuttering on TV.

    Keep doing the good work, my friend.

  2. Wow James this is an amazing story!! You are such a great example of why representation matters and the importance of us in the stuttering community to have the courage and bravery to step up to visible roles that are in the public eye. It is amazing to think you could have easily not been a part of this and the world would have known so little about stuttering from this show without you. This resonates with me so much because a lot of my drive to keep pushing forward is I know that without me at the table stuttering and the disabilities cause will take a back seat but anytime I am involved in something, stuttering is going to be something that people will have awareness about.

    How did you get to this mindset of focusing on D&I and representation for the greater good of the cause as opposed to just focusing on your own insecurities and worrying about your stuttering for yourself?

    Great job and thank you for sharing this amazing story.

    • Hi Kunal,

      Thank you for your kind words about my article. I like to think me doing the show educated at least one person about stuttering and that’s what made it all worth it. I agree. If we don’t sit at the table and talk about stuttering, then who will?

      To answer your question, one of the mottos I live by is “be the person you needed when you were younger.” When I was growing up, I didn’t have any positive representations of stuttering. I didn’t have anyone tell me, “It’s ok to stutter.” Because I didn’t have that, I want to make sure the next generation of PWS has that. If me being open about my own insecurities allows one young PWS to know they aren’t alone and that it’s ok to sttuer, then it’s worth it.

  3. Hi James. I’m familiar with that shirt, and I think wearing on the show was a terrific idea! It shows how clothing can contribute to the conference’s theme of representation. It discloses one’s stutter while also raising stuttering awareness.

    • Hi Adam,

      Thanks! That’s exactly why I wore the shirt during the finale. I knew my message would be heard even when I wouldn’t be able to talk.

  4. Hi James,

    Thank you for sharing your story and joining that game show to show the world that representation matters and it is so important to see people of different backgrounds. It is so great that you put yourself out there despite not knowing how people will react which is usually a very scary thing.
    Did any of the other contestants or producers say anything or reacted to your stutter?
    How was your experience with the other contestants?

    Thank you,
    Angelica

    • Hi Angelica,

      Every member of the cast and production was very accepting of my stutter. I disclosed immediately when I interviewed with the producers and it was a non issue. When I met my new tribe mates, I disclosed instantly and told them the dos and dont’s. They were very receptive and some asked me questions about stuttering.

      I actually bonded with a couple of my cast members over stuttering. One cast mate used to stutter as a child and another cast member has a family member who stutters.

      Overall, being a PWS had no negative impact on my game. If anything, by being open about it from the start it helped me form early game connections.

  5. Hi James,

    I really enjoyed and appreciate you sharing your experience. I loved the part when you talked about how in your confession videos you would always end them with “It’s ok to stutter”. Those 4 words are so impactful and your reasoning for including them are even more impactful. Although you went into the game for representation reasons (and fun, of course), were you nervous at all about how people would respond to you when you told them you are a person who stutters? Thank you for sharing!

    • Hi Blakeley,

      Thanks for your kind words about my article. I was nervous about disclosing that I’m a PWS. The nerves weren’t due to being embarassased or ashamed of being a PWS. Rather, it was how being a PWS would impact my tribemates view of me. Coming into the game, I knew I had a couple strikes against me and those could be used to vote me out early in the game. I thought being a PWS could be another strike against me because my tribemates would think I had a good story to win if I got to the end. My fear was those three preceived strikes would re

      • I thought being a PWS could be another strike against me because my tribemates would think I had a good story to win if I got to the end, regardless of how I well I played the game. My fear was those three preceived strikes would be validation to vote me out ASAP. Fortunately, that fear did not come true and being a PWS had no negative impact on my game.

  6. Right off the bat you disclose and train them how to treat you. FANTASTIC bro! LOVED your story!

  7. Hi James, this is a fantastic story and genuinely inspiring. My question for you is, what other types of completion shows would you want to participate in if given a chance to participate?

    • Hi Arose,

      Thank you for your kind words about my article.

      The only show I would want to do is The Amazing Race. Before this, I wanted to be on Survivor. After playing this game, my desire to ever do CBS Survivor is non-existent. I would do another game like this though.

  8. Hi James, I truly enjoyed reading your article and I love that fact that yo always showed off stuttering to make it known that “IT IS OKAY TO STUTTER.”

    My question to you is.. are there any speaking or social situations where you can safely say you can talk without stuttering? Or any situations where you know you will definitely stutter.

    • Hi

      Thanks for your kind words about my article.

      To answer your question, no. I like to say I’m consistently inconsistent. I can talk to someone I don’t know that well and barely stutter. A few minutes later I can talk to someone I know very well and hav many stuttering moments.

  9. Hey James,
    I loved everything about this story! It is so important to have more representation on stuttering in the media; you represented it in such an awesome way (love the shirt). My question for you is, are you still educating others via social media? What other ways would you like to bring representation to the media?

    • Hi Justine,

      Thanks for your kind words about my article.

      I am. A good bit of my social media presence is dedicated to advocacy and education for and about stuttering. I would love to see a character on a mainstream show who stutters, but their stutter is barely mentioned. That it would just be one small part of their character and not their entire character.

      I would also to see a PWS on a reality show where stuttering is just one small part of their story and not their entire story.

  10. Hi James,

    I really enjoyed reading your post! I think it’s so cool that you participated on a show to raise awareness of PWS. You mentioned that when you introduced yourself to your team members, you asked them not to finish your sentences. Is this something that you typically mention when you meet new people? Do people usually finish your sentences if you don’t mention it? Again, great post and thank you for sharing!

    • Hi Nandini,

      I’m glad you enjoyed my article.

      Whenever I meet new people, asking them to not finish my sentences is part of my standard disclosure speech. Sometimes people do finish my sentences if I don’t mention it.

  11. Hello James ,

    I loved your story . You’re super rad. Regarding the shirt you were wearing where did you get the shirt I’d be interested in getting one .

    Thank You stay cool ,

    Cynthia

    • Hi Cynthia,

      Thanks for your kind words about my article. I got the shirt from the Stuttering Association for the Young online store.

  12. Hi James!

    I loved hearing about your story!! I love Survivor too 🙂 I’m happy you were able to get such an amazing outreach!! I think what you said is so impactful to all the viewers at home who stutter. You are a signifier that they can do whatever they want to do and their stutter doesn’t stop them from doing that. Were you surprised by the audience’s reactions?

    • Hi,

      Glad I found another Survivor fan through this. I’m glad you enjoyed hearing about my experience. To my knowledge, the overall audience reaction was positive. I haven’t read too many of the comments on our videos for a variety of reasons. But from what I’ve been told, there were no negative comments about me being a PWS.

  13. Hi James,

    Thanks for sharing your story! I really enjoyed hearing about your experience. Especially the part in the confessional when the producer asked, “Anything else you want to add?” I typically added, “It’s ok to stutter.” What a powerful message. As you said, more work needs to be done. What can I do to help? Thank you for sharing

    Best,
    Liz

    • Hi Liz,

      Thanks for your kind words about my story. The best way to help is to be an ally for PWS. The best ways to be an ally is: to know the facts about stuttering, give PWS the space and grace to stutter openly and freely, and, unless given permission, don’t finish our sentences.

  14. What a great strategy for spreading the positive message that it’s really, really,really, etc., really ok to stutter for other PWS to see!

    Glad you were able to make it on a survivor type show 🙂

  15. Howdy! I am a university student currently working towards becoming a Speech Pathologist. First of all, what you did is incredible! Enduring those nights and days to represent and display the truth about people who stutter is admirable to the fullest extent. Given the public nature of those events, surely some people have reached out to you in regards to stuttering, yes? Is there a strong community bond for people who stutter? Based on this very website’s existence, I would imagine so, but I ask because I have some knowledge regarding the Deaf community. The Deaf community has its own culture that brings them together through events and regions heavily populated by signing individuals. Would you say there is a culture of some kind for people who stutter?
    Cheers, Evan Milford

    • Hi Evan,

      Thanks for your kind words about my why for playing.

      Yes! There is a strong and large community of PWS. I’ve been active in the community, both in person and virtually, for seven years now. Over the last seven years, I’ve developed close friendships with many members of the community. I like to think I’m a better person because of the people I’ve met through this community.

      A few people within the stuttering community reached out to me after the game ended. They were impressed that I did it and proud that I represented us well.

      Best of luck in your studies.

  16. Hi James!
    I completely agree with you that stuttering is viewed as a negative lifestyle set back due to the media and television. It reminds me of an episode I watched of Dancing with The Stars and they made it seem like if they did not overcome stuttering they wouldn’t be able to dance which seemed crazy! Stuttering is not something that holds someone back. Thank you for sharing your experience getting an opportunity to be on television and you used it to spread awareness is amazing!

    Hope to hear back,
    Ivana

    • Hi Ivana,

      Thanks for your kind words on my article and my experience.

      I hate how stuttering is portrayed as something that’s negative. I agree that stuttering is not something that holds someone back.

      This is the first I’m hearing of DWTS having a PWS as a contestant. I need to look into it. I’m shocked, but not surprised, that the contestant got the edit suggesting that they need to overcome stuttering to be a decent dancer. Remind me how those two relate.

  17. Thank you everyone for reading my article and for participating in this conference!