About the Author:
My name is Bwalya Jacob Kangwa, a vibrant, young man who is eager to give hope and encouragement to anyone who may feel hopeless and discouraged because of the challenges that come with stuttering. As a person with stuttering, I understand the challenges that people facing this speech impediment go through. My aim is making people with stuttering feel comfortable about themselves and help them realize other skills and talents that they possess therefore enabling them to look at life in a positive perspective. I hold a Bachelor of Science in Banking and Finance, which I acquired from the Copperbelt University. I am currently working for an insurance company. I am a member of the Stuttering Association of Zambia, I wish to contribute to the vision of the association. As an association, we are working hard to conduct sensitization about the subject and create an environment where a person with a stutter feels free to speak without the fear of being labelled as less intelligent and abnormal. |
I have perceived that, in Zambia, many people with a stutter fear to come out openly and talk about it. There is less sensitization about stuttering in the country and because of that, people have come up with misconceptions about the subject. These misconceptions have led some to think that a person with a stutter is abnormal, less intelligent e.t.c. This has led to a situation where a person with a stammer tries to avoid talking, especially in public gatherings, for fear of being hurled at as abnormal.
As a person with a stutter, I strongly feel, my voice is as important as that of a person with no stutter. A person with a stutter deserves to have their voice heard as any other person is.
The Stuttering Association of Zambia is an organisation in Zambia that aims to bring about sensitization about stuttering hence, eradicating the misconceptions surrounding the issue. The Association at the moment consists of few individuals. The Association has had a few radio programs where the issue of stuttering was discussed. There are things yet to be achieved by the Association, one of which is- creating an environment where a stuttering person feels comfortable to talk without being negatively labelled. This can be achieved through sensitization.
I feel there is some level of stigmatisation in the country. I have seen individuals posting videos of a stuttering person on social media platforms and making fun of it. This is putting ridicule on the stuttering community. A stuttering person is normal just like any other person and they should never be deemed to be less smart. When employers are interviewing a stuttering person for a job, they should see that person as a normal human being- with other skills and capabilities. A stuttering child should feel free to answer questions in a classroom. They should never be made fun of.
We may not be able to cure stuttering in a person but we can definitely do something to create an environment where they are comfortable and free to talk without being seen as abnormal.
Hello Bwalya,
This is Puneet from India. I loved how honestly you have described the situation of stammering in Zambia, and I am amazed it is quite similar here in India, too.
I would like to get in touch and discuss more.
Happy ISAD in advance, Bwalya. !!!!
Hi Puneet. Happy ISAD to you too thank you. You may get in touch with me using the email address: bwalyajacobkangwa02@gmail.com.
I love this idea of “creating an environment where they are comfortable and free to talk without being seen as abnormal”. This is so much of creating cultural change and psychological safety which is something I have found the hardest thing to do but it is certainly achievable with persistence and continued story-telling and education like I have seen at my organization.
Have you seen a lot of progress made in Zambia as it relates to stuttering awareness and reducing inequalities or do you feel Zambia has so many other challenges that it is hard for stuttering to be given as much of a focus area as other causes? Appreciate you educating me as I know very little about stuttering in Africa so it is an interesting perspective you bring! I commend you for your great efforts to lead the initiatives over there.
Hi Kunal, thank you for your comment. I have seen very little progress with regards to bringing about stuttering awareness. The challenge is that very few people with stuttering are bold enough to come out in the open and say they stutter. This is because stuttering is considered to be, for lack of a better term, a ‘taboo.’ I am a member of the Stuttering Association of Zambia and it is the aim of the association to eliminate such misconceptions about stuttering. As an association, we are planning to do more sensitizations about the subject so that we can educate the public.
Hi Bwalya, it was interesting to read how stuttering is perceived in Zambia.
It’s a shame that the media in Zambia are projecting such negative notions of stutters without even educating themselves. I felt upset reading about it and felt bad for the people who would be emotionally impacted and would make it harder for them to speak up about their stuttering.
If you are comfortable with sharing, I was wondering if you have had any experience with the media labeling you negatively or “unintelligent” as you stated in the beginning. And if so, how did you deal with that?
Thank you Bwalya for your openness for your work and for your words ,I can’t imagine “how hard it is to break stone over there”. I went to Wikipedia to see where Zambia is in Africa and I came across the fact that it has about 20 million inhabitants and where more than 20 regional languages are spoken. I imagine that it is very difficult with such a variety to make a work an intervention in society where stuttering is concerned. Do you know if there are significant differences by region and local language or is stuttering simply misunderstood equally everywhere?
Pedro
As a fan of radio, I was intrigued by the fact that your association had radio shows! I would love hear more about them. How did they go? Does the Stuttering Association of Zambia still broadcast?
I loved hearing your perspective! I have never heard anyone on the radio stutter, and it made me remember how hard people train to not stutter and create a certain voice to have a radio show. Creating radio shows for those who have a stutter can be a big part of normalizing stuttering! Your comment towards the end about creating a comfortable environment for people who have a stutter is so important! I believe organizations like the one you are in can help create that environment and start the change needed. Especially when you brought up sensitivity training! It is known in the U.S that sometimes people with a stutter are looked down upon during employment time and promotion time. Training in this area would be great to help inform people about stuttering and help them understand that people who stutter are just are valuable.
My best wishes to your success in the Zambia stuttering association.
Hello Bwalya Jacob Kangwa,
Thank you for lending your voice to break the common misconceptions of stuttering. It is evident through your words; you are a phenomenal man of grand intelligence who has garnered his experiences and brought forth positive reinforcements of stuttering. I know through this you will be able to achieve in ensuring that people with stuttering will be able to partake in opportunities such as joining the work force with ease.
As a fellow future clinician for United States, I wanted to ask if Zambia has speech therapy sources and how they are perceived? Thank you for your insight.
Kindly,
Morgan
Hi Bwalya,
Thank you for informing us about the discrimination people who stutter face in Zambia. I want you to know that your feelings are emulated very well in your writing and it’s incredibly moving. I also want to thank you for exposing your readers to the Stuttering Association of Zambia. I’m interested to hear about some of the advantageous work this organization has done in their communities! If you are comfortable with answering this, I’d also love to learn about any possible ideas you believe would be ideal for reaching communities and teaching sensitization in people towards those who stutter in Zambia.
All the best,
Dominique
Hi Bwalya,
Thank you so much for sharing your experience with the stigmatization of stuttering in Zambia. I live in the United States and am aware of and actively learning about the stigma here in our country. However, hearing your perspective reminds me that there is discrimination towards people who stutter worldwide. I appreciate organizations, like the Stuttering Association of Zambia, because they provide a safe, non-discriminatory space for individuals to share their perspectives and learn from others. It is disappointing how social media and entertainment networks depict stuttering, but taking the initiative to go on the radio and share the truth takes confidence and passion I can tell you have based on this article.
I wanted to ask since you mentioned children in the schools, what services or programs do you see benefiting children who stutter in your country? Additionally, what services do you see that are not benefiting the children? I ask due to the effect families have on individuals who stutter, and those childhood years are not only important for language development but also social engagement, confidence, etc.
I would love to hear your thoughts, thank you!
Kori L.
Hello Bwalya,
My name is Robert and I am in graduate school studying to be a speech therapist. I really enjoyed hearing your experience and perspective on stuttering in Zambia. It is apparent that stuttering world wide needs to be talked about more. Just like In Zambia, in the U.S. many people may have preconceived notions about a person who stutters. Creating a safe space for people who stutter is a great idea to allow people to feel comfortable about the way they talk. I also think social media creates false narratives for many groups of people, and this leads people to believe in this false information.
I have a few questions. Are speech services for correcting speech and fluency something that is offered for children in school? When working with families that are from other countries like Zambia, would it be smart to talk to the parents about how they perceive stuttering? What is something you would have wanted a teacher or speech therapist to tell you about stuttering? Is there something that you would not tell someone who stutters?
Thank you,
Robert Hernandez
Hi,
i really enjoyed reading your story.
I am a SLP undergraduate student, can you give me advice on how i can work with a patient who has social anxiety from seeing a person with a stutter being made fun of on social media? Your advice will be deeply appreciated.
Bwalya,
Thank you for being willing to not only share your experience as a person who stutters, but also for being an advocate for others who stutter!
After reading the title of your article, my first thought was if perceptions of stuttering in Zambia were similar to those in the U.S.. Unfortunately, after reading your article, I learned that perceptions of individuals who stutter are in fact similar in both countries.
I believe the organization is doing amazing by reaching a broader audience through radio. Have you all attempted to spread awareness throughout Zambia via other platforms such a social media (Facebook, instagram, twitter), podcasts, and local media (news) outlets?
I hope the narrative toward stuttering, in both Zambia and the U.S., will soon change as stuttering education is continued to be pushed forward.
Thank you,
Iesha L.
Hello Bwalya,
I am so pleased to hear that there is a Stuttering Association all the way in Zambia! I am in a fluency class at the moment in college and have discussed the stigma around stuttering in other countries. I have also realized that the perception of stuttering in Zambia is not too far off from America. Stuttering is ridiculed in TV shows and movies all of the time. Kids in America are raised laughing at these films not knowing the harm that they’re doing. I think a radio station is a great way to reach out to people with technology being something humans tend to lean towards daily. Keep up this amazing support and it is bound to pay off! These people have a positive voice to listen to and you’re doing spectacular.
Thank you for sharing!
Leigh Loyacano
Hi Bwalya! This was a great post that highlights the dangers of stigma and the importance of advocacy! I am glad you have chosen to share your stories with others to show the stigma that occurs worldwide and how communities everyone can create outreach to support one another as well as a personal and noteworthy cause. Amazingly, you are breaking down stereotypes and stigma about stuttering in Zambia daily, and you’ve got support from across the globe! Outreach through radio stations is a great idea to connect with people and give others a voice. So glad people in Zambia have such a positive and supportive voice and organization to connect to, and I hope the community of love and support continues to grow!
Thank you for sharing the situation in Zambia. In Sweden and in many other countries in the “Western world”, it’s important to learn that proper therapy is not always given. That in some countries stuttering is still not OK. That during the pandemic zoom meetings to meet friends who stutter aren’t self-evident due to the lack (or not good enough) of internet. So please keep on sharing and do tell us how we can help.
Keep talking
Anita