About the Author:
Michele Delo is a Registered Dietitian who currently works at a long-term care/rehab facility. Michele has been a Co-chapter leader of the Buffalo, NY NSA adult chapter for the last 7 years and takes great pride in supporting the stuttering community. Michele enjoys hiking, traveling, photography, dancing and learning new things in her free time. She has your own YouTube Channel. |
When is the last time you have seen stuttering portrayed as a good or “normal” thing in the media? I cannot think of anything. The first thing that pops in my head is the opening scene of the movie Urban Legend. The scene at the gas station during the pouring rain used to make me feel uncomfortable but now I wait to see if anyone else has a reaction. The gas station worker has a stutter and tries to tell the lady that there’s a guy in her back seat. He can’t seem to get the words out and the girl gets impatient. She calls him a freak as she speeds away to her unfortunate death.
I recently saw a comedy skit on TV that had about 5 minutes of poking fun at stuttering. I believe the jokes were political based. I felt so uncomfortable watching it with two people I didn’t know too well. One of them might have known about my stutter but not the other one. I made a comment that his jokes were not funny and rather rude. They ended up changing the channel shortly after.
To me, stuttering is not something to be made fun of unless you’re laughing at yourself. The PWS can make fun of their own stutter but when someone who is fluent makes fun of a PWS, that is NOT ok! Stuttering is just a way that some people talk. People tend to laugh or make fun of things they don’t understand or that make them feel uncomfortable. We need to educate, advertise, and be our own advocate! Even if you don’t feel comfortable stuttering, try to make it appear that you do. The more you accept your stutter, the more other people will too. No matter what kind of day you’re having, show up! Do not hide or run away from a difficult task or social event. People need to hear our voices no matter how long it takes the words to come out!
I work in a long-term care/rehab facility and we have a meeting every Wednesday that involves a lot of speaking about the residents. Many sounds I have trouble with attempt to defeat me every time. I get through it no matter how it comes out. I sometimes find myself huffing and puffing about a word I stuttered on but then I move on. I told my coworkers about my stutter before our first Wednesday meeting and it made me feel so much better knowing that they won’t be assuming anything else. I told them a couple jokes to lighten the mood. I said to them “I just wanted to let you all know that I have a stutter. I’m not having a stroke, lying and I’m not drunk!” They laughed with me on the last part! Everyone is different and unique in their own way. Don’t be afraid to be yourself and speak your truth! Your stutter is a part of you but there is so much more to share with everyone.
I was told once before a presentation that people care more about what I’m saying than how I say it. Throughout my educational journey, all I wanted was to be praised for a good presentation. A good presentation to me would be how I got my point across, how interesting the topic was, how much I was able to recall and how comfortable I appeared. I never wanted to be praised for how fluent I was during a presentation. I was successful in this goal before I graduated from college.
We need to speak more and let our stutter shine! I made a YouTube channel about stuttering and thought I would post one video (if that) because the thought of people finding out and hearing me stutter terrified me. Once I posted one video, there was a chain reaction. I now have about 8-10 videos and I plan on posting more! We cannot normalize stuttering in the mainstream if we hide our voices. We need to stutter loud and proud! Do not decline the invitation. Show up!
I love this article so much and the idea of what a good presentation is really all about? I too used to think that a good presentation was all about fluency but after being in Toastmasters and Improv for so many years now, I finally realize how many different components make up a strong and interesting presentation with none of them having to do with fluency.
Do you find that you still have nerves before your presentations or have all those nerves gone away?
Thanks for sharing your perspective as I love this idea of stuttering loudly and proudly to change the narrative of how stuttering is viewed by society and in the media!
Hi Kunal,
I haven’t had to do a presentation in quite a while but I have spoken to an SLP grad class a few times since graduating college. I do still get nervous but my feeling afterwards is different. I don’t let the amount of stuttering effect how I feel about the rest of the day. It also depends on who my audience is and how I feel that day.
Thank you,
– Michele
Hey Michele!
I agree that the media often portrays stuttering negatively. There needs to be a push for the media to normalize stuttering and to show it in positive light. Your voice and the voice of others who stutter need to be heard. I love that you mentioned that when you are giving a presentation about well the presentation is presented and not how fluent you are. Your audience should be aware of the goal of the presentation and not about how fluent you are as the speaker. You are a wonderful advocate for yourself and others. Keep speaking up, and let your stutter shine.
Bethie,
Thank you! 🙂
– Michele
Hello, thank you for sharing. Good for you for posting YouTube videos! I think that is a great way to connect with people. Through videos, I think people can feel like they know you better and understand you. I bet your videos help a lot of people and you are making a great impact on the lives of PWS and hopefully other people who are interested in learning more.
Hi Courtney,
That is my goal! Spreading awareness is so important!
Thank you,
Michele
Thank you so much for sharing your experience, Michele. I really enjoyed the way you highlighted that everyone’s voice has a purpose and should be heard. It appears the media forgets this sometimes. I liked how you shared ways in which you advocate for yourself, and the important role confidence plays for you. Confidence is not easy to exude, but it is needed so that the world can hear your powerful voice.
Hi Jlejeune,
I agree and thank you! Confidence is a work in progress. Even the most confident person has their “bad days.”
-Michele
Hi Michele!
Thank you for this powerful message. I completely agree that everyone’s voice has a purpose and needs to be heard! As a non-PWS do you have any tips about how I can best support someone who does stutter?
Hi Ariana,
My tips for supporting someone who stutters would be to try not to finish their sentence. Even if you think you know what they are going to say, sometimes it could be wrong. Try to be patient and give the speaker time to finish their thought. I would also encourage the PWS to do and say what they want and to not let their stutter stop them. I would not pressure someone to do or say something unless they feel comfortable doing so. I would also not give any unsolicited advice such as “slow down, breath more, calm down” because such things can make it even more frustrating for the speaker. I hope this helps!
– Michele
Hi Michele!!
Your stance on stuttering and perspective on life is absolutely inspiring!! Your confidence simply as a human being shines through this piece and makes my heart SO happy as many individuals who stutter struggle with their identity as a PWS or stuttering confidently. I loved how you spoke about not hiding away from difficult tasks as I think this is such a powerful statement in all aspects of life as those who stutter and those who don’t, all struggle with something from day to day in their lives. I think “showing up” and conquering these by facing them head on is such a empowering moment.
I am currently in grad school for speech pathology (I graduate in May yay!!) and was wondering if you could share some advice on factors contributing to your confidence with speaking. I have a few clients who break down in tears at the mention of the word stuttering, and was curious if at any point in your life you felt this way and how you were able to overcome it? Or any tips for helping these clients embody their stutter and be proud of who they are, and what they are saying rather than how you say it as you so perfectly represented in your piece!!
Thanks so much for sharing!!
Hi Abbiems,
Yes, I have felt like that before and cried in one of my first meetings with an SLP in college. I used to try to avoid talking and I was pretty much living a double life. No one knew about my stutter because I was overt and was able to hide it pretty well when I could change words or just avoid talking situations. I feel like what has helped me the most is working on accepting my stutter and then disclosing it to my family and friends. It felt freeing to get the weight of hiding it off my shoulders. I also had another break through when i attended my first NSA annual conference. I never felt more normal than I did when I was at the conference surrounded by over 800 people who understood what I go through every day. I have good and bad days still but the bad days are usually few and far between. Positive self-talk helps a lot too.
– Michele
Michele, thanks for sharing your thoughts! Throughout reading some articles and discussions posted, I have realized this idea of “showing up” is a common theme. Another PWS shared her perspective on this as well in a different article, mentioning that it’s all about your attitude and perspective on stuttering. Education and awareness is key to showing others the normalcy of stuttering and how it’s something to be embraced instead of shunned. A great way of showing your support and being a leader to make change is through your YouTube channel, that’s awesome to hear your initiative!
Mmusso,
Thank you! Youtube is definitely a huge platform and I hope to reach as many people as possible!
– Michele
I find what you say in the last few sentences to be very salient. “We cannot normalize stuttering in the mainstream if we hide our voices.” That is such an important perspective and I think it serves as an important reminder that normalizing stuttering means understanding that it is not inherently better or worse, but just different. It also resonated with me when you mentioned how stuttering is a part of who a person is, but there is always so much more that person can share.
Hi Aloree,
Yes, definitely! It is so much better to be different and unique than to be like everyone else! 🙂
– Michele
This is a brilliant paper, Michele.
Thank you for writing.
Hanan
Hanan,
I am glad you enjoyed it. 🙂
Thank you,
Michele
This is a topic I have been seeing/hearing a lot of recently. I think though that in the past three or four months I have personally seen three movies/series that include a person who stutters. One of the first ones that comes to mind is Bridgerton! It showed one of the main characters who had a stutter as a young child; however, this person’s stutter was developmental and went away after he grew up. The interesting thing about that series was it was set back hundreds of years ago. It showed what stuttering was perceived to be hundreds of years ago. We are nowhere close as a society to where we should be, but this series was very inclusive, and I enjoyed that!
Hi mmcaudle,
I don’t think I have heard of Bridgerton. I will have to check it out.
– Michele
Hello Michele,
I really enjoyed reading your paper! I love that you mentioned that what you say is more important than how you say it. Unfortunately, this world is full of judgements about people that are based on and extrapolated upon the most easily observable traits. The way people look, the way they dress, and the way they talk are often used to draw incorrect conclusions and to make inappropriate assumptions that are contingent upon comparisons with whatever the observer deems “normal.” Anything outside of the arbitrary “normal” is seen as “less than” or wrong. It is simply inaccurate (and rude) for someone to decide how a person should look or talk in order to gain approval. Again, what a person is saying is so much more important than the style in which it is delivered. I really like your message to just “show up” and be yourself. As a society, we need to do better at encouraging people who stutter to feel comfortable being who they are and using their own voices. Everyone looks and sounds unique, and always, everyone deserves to be heard. Thank you for sharing your paper!
Hi Em,
Society definitely needs to change and start accepting differences. I believe the more people are educated on stuttering and the more normalized it becomes in the media; society will hopefully start to be more accepting and understanding. We can’t please everyone but we can educate them! I really like the quote “Those who mind, don’t matter and those who matter, don’t mind!”
– Michele
Hi Michelle,
I found your article very refreshing in that you have developed over time a rare form of courage to be a strong advocate for yourself allowing you to effectively communicate within a world that has very little patience and tolerance for imperfect and unexpected conversational encounters.
Who are your most influental mentors that continually motivate you to verbally communicate your thoughts to others despite society’s consistent negative reaction of people who stutter?
Hi Mark,
I have worked with a few SLP’s in my later 20’s that helped me gain acceptance and helped me disclose of my stutter to others. It took time, patience, and a lot of positive self-talk. It’s super important to disclose to others because many people have no idea what stuttering is and will just assume things. I am not always courageous and still have my moments of dread but I try my best to not let my speech stop me from living my best life.
– Michele
Hi Michelle,
Thank you so much for your reply. I value your encouraging perseverance and sharing your vulnerability on your journey to bring stuttering awareness to people within your sphere of influence!
Hi Michelle!
As someone who does not have a stutter, I love hearing and learning about your personal experiences regarding the media, public situations, and even presentations. Before learning more about the world of stuttering, I’ve never wondered about how it is portrayed in the media. Now that I think about it though, you are completely right. I’ve never seen stuttering shown in a positive light, and I can’t imagine how frustrating that can be. I also really loved when you said, “people care more about what I say than how I’m saying it,” and I think that’s so important for people to hear. Not only for those who have a stutter, but for people who have other types of speech issues as well.
That being said, how did you learn to feel comfortable with presenting, engaging in social situations, etcetera despite the lack of positive representation in the media? Did you have positive figures in your life who helped you overcome fears of speaking? Thank you, and I loved reading your story! -Angela
Hi Angela,
I am glad you enjoyed reading my submission. Honestly, I am not fully comfortable with presenting and social situations. I still get moments where I decide not to say something or it takes a while to muster up the courage to talk to a stranger. I have to give myself pep-talks and remind myself of how far I have come and remember that I have so much more to offer than just my words. I did not have a support system growing up when it came to my speech. It wasn’t until I got speech therapy in my early 20’s, that i started to become more comfortable talking freely. I believe a big turning point was the speech therapy I got in college. I worked on disclosing my stutter and learning to accept it and to realize it is not who I am but something I do. I also went to my first NSA conference in 2018 and since then, I have not felt alone. I would definitely recommend attending the conference. The people, workshops, activities, and atmosphere; there’s nothing else like it. 🙂
– Michele
Hi Michele!
I really enjoyed reading about your personal experiences as well as your thoughts on how stuttering is portrayed in the media. I was wondering if you had ideas for how stuttering could be more positively portrayed in the media? Also what are some of the things you talk about in your youtube videos?
Hi Beccah,
I am not sure about how we can make media more positive towards stuttering except for encouraging PWS to educate others and be open about what stuttering is through media platforms. It would be awesome to see a movie with an actress or actor who stutters and have other characters in the movie have a positive response to it. It would also be nice to see a movie where there’s a PWS but to not have any type of reaction to it. One day when stuttering is normalized, stuttering will just be another way some people speak. My youtube videos are about what stuttering is and I also share about my experiences at the National Stuttering Association conferences. I believe my youtube channel is my name (Michele Delo), if you want to look it up sometime. 🙂
– Michele
Hi Michelle,
Thank you for sharing this. You are so right – showing up is key to success in anything.
Pam
Pam,
It was my pleasure! 🙂
– Michele
Hi Michele,
Thank you for creating and sharing this post! I love this quote you said about PWS and just how important their voices are, as is everyone’s. “People need to hear our voices no matter how long it takes the words to come out!” It is important that everyone’s voice is heard, however it is noteworthy that PWS may experience negative communication interactions. In your opinion, how can one become a better communicative partner and show attentiveness and patience?
I look forward to seeing future uploads on your YouTube!
Gabriela Tarula
Hi Michele, What a great post! I love how you shared your experiences and make some thought provoking points. A few things that really stuck out to me in your post were: I loved how you advocated for others, gave examples from your own life, and showed how you persevere through meetings/presentations at work. You made a great point about stuttering in relation to the media and I agree that this is important. The quality of what we are say is so much more than how we say it. I really enjoyed reading your post, thank you for sharing!
– Taylor
Hi Michele,
This was such an empowering post. I agree with you about it being okay for a PWS to make light of a situation, but for someone else to do it is distasteful. I agree that the message being conveyed is far more important than how it is said. Our words are powerful, and the meaning behind the words is what really matters. Thank you so much for this post!
-Meg
Hi Michele!
Thank you for sharing this as I think it’s an important topic! I agree that everyone needs to be their own advocate. Since the only person that can push us to our true potential is ourselves. Being comfortable with a stutter until you are reminds me of another paper I read. They say that if you act confident, you soon will genuinely be confident in yourself. Simple tasks like that can take us a long way!
Hi Michele,
Thank you so much for sharing your experience. It is awesome that you made those you tube videos to spread awareness.
Hi Michele! I enjoyed reading your article. Thank you for sharing your experience. Standing up for what you believe in and having confidence is not easy. I recently had to do an assignment, where I had to stutter. The reaction was similar to the movie you mentioned. The server was very impatient and wanted to finish my sentence. A lot of people lack knowledge about stuttering. Thank you for spreading awareness through your writing and your YouTube channel.
Hi Michele! I immediately watched the Urban Legend opener on Youtube as soon as I opened your article since I had never seen it before. As a PWNS, I do not know the personal connection to the character with a stutter, but I feel empathetic towards him as he tried so hard to do the right thing. I imagine that if that character were not fictional he would need to hear your encouraging words from your article. He would need to know that, “People need to hear [his] voice no matter how long it takes the words to come out!” Thank you for sharing your story and for letting your stutter shine! It is important for mainstream America to hear your voice.
Hi Michele!
I love that this article is challenging the idea of what it means to have a good presentation and be a good presenter. Being fluent during a presentation means nothing if the content of the presentation is not of quality or understood. This is why being fluent should not matter at all and I love that you are shining light on this. Imagine if everyone stopped being who they are or doing things they enjoyed because they do it in a different way than others. We would all stop following our dreams and doing the things we loved. Keep encouraging and inspiring others. Great Job!
Wow, Michele! You made some excellent points in your post. As someone who doesn’t stutter, I feel very awkward when I see movies or tik tok clips portraying stuttering in a not-so-good manner. I can’t imagine how it feels to view these media clips as someone who stutters; I’m sorry that’s something you have to often go through. Personally, I’d feel very offended and discouraged seeing this content. From your post, I can see that you are working on accepting your stutter. I can’t imagine how someone who is not as comfortable as you with their stutter and is just coming to terms with their stutter would react to seeing such content. However, I am glad you are setting a great example and putting your foot down and letting others know this sort of content isn’t okay. It can be hard to stand up for yourself at times; I struggle with that myself, so I admire you for that. Regarding acceptance of one’s stutter, I really liked how you said, “the more you accept your stutter, the more other people will too.” I feel like this is applicable to a lot of aspects of life. If you act like something is completely normal such as a stutter, (which it is) less and less people will question it. I also really like how you were so understanding of people who don’t know anything about stuttering. Instead of holding a grudge, you stated, “People tend to laugh or make fun of things they don’t understand or that make them feel uncomfortable.” This is so true, and I’m glad you brought this up in your post. I feel as if kids were more educated on what stuttering is at a young age, it would possibly lead to less bullying. For example, I think that if a child who stutters is in a classroom and they are aware they stutter, the teacher should first check with the child and his/her parents and then if agreed on, the teacher should say something like, “This is Y/N, and it can sometimes take her a little more time to get her words out. She is our friend, so we are going to be patient and there for her if this ever happens in class.” If this were to happen, I personally think the children would be less likely to make fun of the PWS because they’re already aware of it and know what to expect. However, it is totally up to the PWS to decide if, when, and where they disclose that they stutter. I also really like how you mentioned, “ The PWS can make fun of their own stutter but when someone who is fluent makes fun of a PWS, that is NOT ok.” Additionally, I appreciate how you opened up about your job at the care/rehab facility and your decision to disclose to them early on that you are a PWS and how it made you feel so much better. I am glad your coworkers were so supportive of you and I’m sure they enjoyed the joke you threw in! Last, one sentence from your post that stuck with me was, “I was told once before a presentation that people care more about what I’m saying than how I say it.” This is such a true statement, and I wish more PWS knew this. Personally, I absolutely hate presentations, so I can’t even begin to imagine how a PWS might feel before a presentation. It’s really eye-opening. Overall, I really loved your post and how you shared your own experiences with stuttering. I admire your strength and wish you the best, especially with your Youtube channel! I know it is going to help people of all ages who are struggling with their stutter in silence, so I’m glad you decided to share.
Michele,
“We need to educate, advertise, and be our own advocate!,” I could not agree more. This work is not only individuals who stutter’s burden, but there are allies such as myself willing to champion this issue. As a SLP graduate student, I hope to be a safe space for individuals who stutter and I hope to assist in changing the narrative that currently surrounds stuttering. I think it will take a collective effort to affect change and there are non stuttering individuals willing to listen and learn alongside people who stutter. You made a point that it’s never okay for a person who doesn’t stutter to make fun of those who do, but it’s okay for individuals who stutter to make jokes at their own dispense. The fact that self-disparaging jokes are the icebreaker for those who don’t stutter is kind of heartbreaking, but I’m all for whatever makes communication easiest for all individuals.
You shared that you work in a long term rehab and I couldn’t help but to wonder if you have consulted/confided in a speech therapist at your facility. What are your thoughts of speech therapy and stuttering?
Thank you so much for sharing!
Iesha L.
Hi Michele! I really loved the point you made about presentations. I have had to take a few public speaking classes throughout high school and college and unfortunately in all of them one of their biggest main focuses was the fluency of how you were presenting the information. But, like you said, what makes a good presentation is about what you’re saying not how you are saying it. If the topic, discussion points, and knowledge is good then it should not matter how fluent someone is when giving the presentation.
Thank you for sharing your story and for the interesting read!
Michele,
First and foremost, thank you for sharing your experiences with us! The media’s depictions of PWS can be incredibly hurtful and harmful. I am glad you have found ways to advocate for yourself. I love your perspective and attitude towards life. I like how you emphasize just “showing up” even when you don’t necessarily want to because of your stutter. I also enjoyed your note about what constitutes a good presentation. It’s not about fluency, but about the content and WHAT you have to say (not how you say it).
– Ellison Hill
Hello, It is crazy to think that in this day and age media is still so comfortable making fun of people with differences. It breaks my heart that it is such a casual thing nobody bats an eye at. I sincerely hope that through advocacy the media can change and stuttering can be seen as normal not something to be made fun of!
Hi Michele, I like how you encourage others to not hide from their stutter. I think it’s important, like you said, to educate people who may not know how to respond to people who stutter and be an advocate. Thanks for sharing!
Hi Michele! I really enjoyed reading your article! As much as I disapprove of the way the media depicts PWS, I am so glad people like you are willing to use your experiences as a PWS to turn that around. I think you writing articles and posting YouTube videos gives inspiration to PWS and comfort to people who do not stutter. As a person who does not stutter, it makes me so much more comfortable to understand how you feel and what is best for you when communicating with other. I love your openness about it and how you stray your goals in speaking to be about what you say not how you say it!
Thanks,
Caroline
HI Michele,
I truly enjoyed reading your post. I am a graduate student and taking fluency at this time. Personally I have seen many fils with actor portraying PWS and I have never thought much of it. It wasn’t until recently I learned that films like those I have seen are actually offensive to others who do stutter. I instantly felt guilt after learning as if I too was oblivious to the pain such films may cause to others. I agree with you, I think we should be educating and advertising to others. Kudos to you for being so confident! Again, I enjoyed reading. Thank you for sharing.
Michele, I really enjoyed reading your post. I think it is brave to share your experiences! When things make us uncomfortable it is so easy to stand down and just ignore it (even when you want to scream to the top of your lungs), I’m glad you mentioned something to your friends when a show made you uncomfortable. I think that is a lesson for everyone: show up and speak up. Education and advocating is so important! I could go on forever, thank you for sharing your story!
Hi Michelle,
Thank your for sharing your thoughts and experiences! It was so thought-provoking for me when you asked the question of when the media positively portrays stuttering? Because it does not happen and that is so frustrating! Stuttering should absolutely be normalized, and I agree with you that we should be educating others! I am a student studying speech language pathology in a fluency course, and I have already found myself wanting to know more about stuttering and talking about it with others than ever before! I hope to only keep going as I continue my journey to becoming an SLP! I also agree that stuttering should only be joked about by the PWS, and that definitely needs to be normalized in today’s society. I really appreciate your openness in your article!