My daughter had a piano recital at noon that day.
An 8:30 a.m. voice mail from my mom: “Got up early. The handyman will be here soon to fix my awnings. He should be done by the time you pick me up for the recital.”
The phone rang at approx. 9:03 a.m. No message. Then again. Must be important if they are calling back. “Hello?” A man mumbled something. Connection lost. Then my cell phone rings. Message: “Hi, I’m calling for Stacey. There is something wrong with your mom.” The handyman had found my number on her refrigerator.
I knew in my heart my mom had had a stroke. It was a fear of hers, since her own father passed away at the age of 50. Beating the fire truck to my mom’s, my daughter and I walk in to find my mom in her favorite chair. She was speaking, but it was incoherent to anyone, except for me. She was trying to “pay” the handyman. I reassured her I would take care of it, as the medics worked their magic to stabilize her. Diagnosis: STROKE.
After a few days, speech, physical, and occupational therapies began. My mom made great strides in her recovery. But aphasia was prevalent, making her speech choppy and hard to understand for most. But I knew what my mom was trying to say.
How could I possibly know what she was saying?
I stutter.
It has made me a great listener and very in tune to people’s speech patterns. Stuttering since the age of 3, I’ve been in countless speech therapies, around people who stutter and who have other speaking difficulties. I didn’t need a master’s degree to help my mom. My life experiences were my education. Things that weren’t found in a textbook were key to my mom’s recovery. In my ongoing quest for managed speech, I was able to help my mom find her own voice again.
I modeled speech techniques and went to appointments with my mom. She has said the most useful modeling has been when I’m in a full-on stuttering block. Frozen for mere seconds, it provided a clear picture on forming a word.
I have shared the importance of “advertising”. It is important for both of us to be upfront that our speech is not what people expect. Being transparent helps avoid a lot of hassle and confusion!
Fast forward:
It has been over 7 years since that day.
Looking back at my mom’s own recovery, I saw so many parallels to my own stuttering. One glaring reality is there is no cookie cutter way to speech therapy. The ways to help my mom had to be tailored to her, just as speech/stuttering therapy cannot be streamlined. No two people stutter the exact same way. As we visited the rehabilitation floor, the varying degrees of stroke aftermath was wide. There were no “cookie cutter” answers there, either.
I have witnessed my mom’s desire to be seen. To be heard. To be included. I have had to advocate more than once when people are cruel, impatient, or just unkind. Just as with my own stuttering, we have no choice but to be open and hope for understanding. We cannot control how people react, but we can give them opportunities to be patient and better listeners. I would like to think my mom and I have provided countless teachable moments!
Today, my mom is at about 95% in her mobility and her speech. She knows what she wants to say, but sometimes the words just don’t come out. Out of this entire ordeal, my relationship with my mom has grown stronger. She now truly “gets” what I’ve dealt with since I was three. We share stories of trying to order at a restaurant or make a phone call. We help each other. We support each other. We laugh about our struggles. Sometimes we cry. But we keep going. With hard work, a little luck and the unwavering love of a daughter and granddaughter, my mom is doing better than we could have ever hoped. Just as my mom had helped me find my own voice, it has been an honor to help her find her way back to hers.
Author and professor Brene’ Brown says: “To see and be seen. That is the truest nature of love.”
May all of us who have no choice but to be vulnerable, continue to be brave enough to be seen, make noise and keep talking. May they see and hear us as we are. May we all experience the truest nature of love.
I love this quote “To see and be seen. That is the truest nature of love.” It seems so simple yet it is so powerful as we all want to know and feel that we matter in this world.
What an amazing positive outcome that your moms stroke brought you together through stuttering. How was your relationship with your mother different before her stroke and do you think you guys are much happier being together with each other since the stroke?
This makes me realize in my own life that everything happens for a reason and we control the narrative of what we want to do with these things that happen, whether they are tragic or positive.
Appreciate you sharing!
Hi, Kunal!
I appreciate you reading my story and commenting. My mom and I have always been very close. This just added another dimension to our mom-daughter relationship. It is great we can always lean on each other. All the best to you!
Hi Stacey! I truly enjoyed reading about your journey! It is a beautiful story and highly inspiring. I was wondering if you could remember some differences between you and your mom’s speech therapy. I would love to hear how they differed and how you felt about the SLP’s approach.
Thank you for your kind comments.
The SLP at the rehab unit at the hospital was wonderful! She talked to both my mom and me. She always asked my mom what she wanted to work on and built from there. Unfortunately, her out-patient speech therapy was less than stellar. My mom kept saying she didn’t want to go back, so I took the day off and went with her. This particular SLP talked AT my mom, not with my mom. She kept telling me that SHE was the expert and we had to listen to her. I was kind, but firm, that, I knew my mom WAY longer than her. 🙂 In my own experience, the speech therapies that made the most difference to me were the ones that were tailored to me and addressed what I felt I needed the most.
Hi Stacey,
Thanks for sharing your story with us. I just want to say how amazing you are for supporting your mother every single step of her treatment journey!
Reading your story, I understood how important it is to be included and what it means to have a strong connection.
I think feeling connected through communicating and sharing the same stuttering condition can really bring people together and from that, it can stem new motivators to become more confident as a stutterer.
It was an inspiring story, thanks for sharing!
Thank you for your kind feedback, Heeyeon! All the best to you.
Hi Stacey
Thank you for sharing this story with us. It is wonderful to read that your experience with stuttering enabled you to understand your mom when no one else could.
I appreciate, too, your reference and learning from Brene Brown – “To see and be seen. That is the truest nature of love.”
One of our challenges, and one for humans in general, is that we cannot control what others do. Yes, it is a gift to be seen and to be loved. My challenge has always been to see, accept and love myself. I continue to work on self-compassion, but it’s a journey.
I am interested to know your point of view on the topic of “seeing and hearing” ones’ self as part, perhaps, of our journey.
Thanks
Hanan
Hi, Hanan! I appreciate you reading my story and taking the time to reach out. Seeing and hearing my own self has been a life-long journey. I used to not be able to hear myself on a tape or video. It still is not easy, but not as hard as it used to be. As I get older, I have learned to cut myself some slack. I also have finally realized that either most people don’t care that I stutter, they don’t know what stuttering really is or they just don’t care to get to really know me. I HAVE to be okay with all three (or at least try!), for my own sake and well-being. Stuttering is the card I got and I can either play it or fold. I think working on our self-compassion is so important. Progress, not perfection. All the best to you!
Stacey,
Your story is so powerful, thank you for sharing! I loved how you discussed the importance of tailoring therapy to the individual, and that there is no cookie-cutter answer to things that involve speech therapy. Your mother has to be so grateful for you and for you to share some techniques that have helped you throughout your journey with having a stutter. Thank you again for sharing!
Thank you for reading my paper and your kind comments. It means a lot to me. All the best to you!
Hi Stacey! What a journey you and your mother have been on. I appreciate you sharing this powerful story with us. My question is, what was it like to see your loved one somewhat experience what you have, your entire life? What was it like to advocate for her?
After reading your story, I understand how important it is to actually listen and see others. I am so happy that your mother is doing well and that your relationship with one another has only grown stronger.
Thanks again for sharing!
– Kelby
Hi, Kelby! I appreciate you reading my story and your kind words. To be honest, it was hard to see my mom in the beginning of her recovery. You could see the frustration in her eyes when she knew what she wanted to say, but was unable to form the words. I could relate to her in so many ways others couldn’t. I wanted to help, but I would not say her words for her. I would word it in a way like “Are you asking for…? and then help her say it. I felt that was important to show her that she COULD do it. Maybe not the same way as in the past, but she still could. I did not want to “take over” nor diminish her from trying. (I hope that makes sense). It felt so good to be able to advocate for my mom. She had (and my dad) had always advocated and supported me. I was proud to be her biggest cheerleader. All the best to you.
Hi Stacey!
I absolutely loved reading your story. I am currently in graduate school to become an SLP and your story really spoke to me. The love and devotion you have for your mother is incredible. I loved when you said, “I didn’t need a master’s degree to help my mom. My life experiences were my education. Things that weren’t found in a textbook were key to my mom’s recovery”. You are about right, everybody’s recovery rate is different, and therapy will look different for every person. When others had a difficult time understanding your mother you were able to be her voice. Your story provided me with a different way of thinking about what treatment “needs to look like”. Your relationship and story are inspirational and I’m so glad to hear that you both are doing well!
Thank you again for sharing!
-Megan
Megan, thank you so much for reading my story and your kind comments. All the best to you in graduate school. 🙂
Hi Stacey,
What a powerful and heartfelt paper your have shared, one in which you seem to illustrate that we can transcend stuttering when helping, but on the same hand, draw from stuttering the grit and resilience you show in helping your mom and raising such a fierce young woman in Ava.
I love how you say life experience is more educational than lecture/textbook education. People often overlook who the real experts are with any kind of communication difference.
Thanks for making the world a brighter place.
Pam
Pam, thank you for your kind words! Speaking up isn’t always easy, stuttering or not, but necessary in so many scearnios. As someone who stutters, I feel being visible is so important. That isn’t always easy, either! 🙂 May we all continue to find our voices and use them for good.
Hi Stacey, I just wanted to reach out and tell you how inspiring and uplifting your story is. I think it’s beautiful how you understand your mom when others don’t, sometimes in the hardest of situations, we learn to be brave and to stand firm in who we are in order to help others. Thank you for sharing your story! May you always be seen and heard! – Maria Balkji
Mariam, thank you for reading my story and your kind comments. It means a lot to me! All the best to you.
*So sorry, Maria! I spelled your name wrong the first time. My apologies!
Hi Stacey I found your story heartwarming. You and your mother got to connect on a different level which ultimately brought you two closer. I’m currently in graduate school to become a SLP, would you say that you and/or your mother found your speech services helpful? I really love the quote you used “To see and be seen. That is the truest nature of love.” I think that can resonate with many people. Wishing you the best!
Thank you so much for taking the time to read my story and comment. For the most part, I have had excellent speech therapies through the years. I gained valuable techniques. However, the most effective speech program that I went through addressed all of that “other stuff” that I had built up over the years: Shame, avoidance, etc. I still stutter, but I’m a lot more comfortable in how I stutter. I hope that makes sense. My mom’s hospital SLP was wonderful. The out patient was crass and not very nice to my mom, until I had to step in advocate for her. This SLP talked AT my mom, not with her. She never asked what my mom was hoping to gain from being there. I feel getting to “know your audience” is crucial. All the best to you in graduate school!
Stacey, how lucky you are to see the beauty arise from this moment of despair that left an everlasting impact on your family – physically, mentally, and emotionally. I would like to think that your personal journey with stuttering had a predestined purpose for these moments of becoming refuge for your mom. It is so inspiring to know that although the road has been challenging for you and your mom, your outlook is so positive. As a future SLP, your closing statement sparked a drive inside of me to be the lips that encourage the vulnerability, the eyes that see the person beyond what is heard, and the ears that support the God given voices of all – stutter or not. Thank you for this challenge and for sharing your story!
Courtney, thank you for reading my story and your kind comments. It means so much to me. Robin Roberts often says “Make your pain your passion”. I saw how frustrated my mom was and how much I could relate to that. I felt so honored to help her find her own voice again. Progress, not perfection. I told her that so many times. 🙂 All the best to you in your SLP career!
Hello Stacey, I enjoyed reading your story. It is fascinating that how your mom helped you since you were three years old with your speech and now you are helping her with her speech. It made you connect with each other more. Just like you mentioned you didn’t have to read books in order to help your mom because you experienced throughout your life. Wishing you the very best.
Thank you so much for taking the time to read my paper. It means a lot to me!
Hi Stacy, I am so glad I came across your article. Your story of you and your mother is truly inspiring. I loved how you were able to understand what your mom was saying because of your own life experiences. Everyone desires to be seen and heard and it can be difficult sometimes because there are people in this world who don’t treat others with kindness. Thanks so much for sharing your story, it is encouraging to all!
Thank you so much for reading my story and taking time to comment. I appreciate it! 🙂
Hi Stacey!
First, I would like to express how proud I am of your mother and happy I am for her improvements. It isn’t just the therapist putting in work to improve their clients, it takes willpower from the clients and the supportiveness of their families as well. Secondly, you have a beautiful family and it was amazing to read about how supportive you and your daughter were to your mother, and the bond that grew between you and your mother. You were able to see the positives in an ordeal and that kind of attitude will only allow you to continue flourishing. Thank you for sharing and for putting emphasis on the fact that there is no cookie cutter way to speech therapy and how SLP’s work to tailor therapy to their clients. Your keen intelligence, strength, and kindness radiates in your words.
Kindly,
Dominique
Dear Dominique, I really appreciate your kind comments. Whenever my mom would say “I can’t”, we’d say YES YOU CAN. Attitude plays a big part in almost everything in life. All the best to you!
I love that! Thank you Stacey! All the best to you as well!
Hi Stacey,
Thank you for sharing your experience! I enjoyed reading your article. An unfortunate circumstance turned into a remarkable story of you and your mother. I thought that was beautiful how you became her support system like how she was for you growing up. It proves that life really comes full circle. You two are truly blessed to have such a loving relationship where you can go through these challenges together.
A question for you: In your own experiences with growing up with a stutter, what were some things that helped you grow in confidence when the world wouldn’t listen?
– Clarissa 🙂
Hi, Clarissa! Thank you for taking the time to read my story and your kind comments. It took me YEARS to feel confident with my stuttering. I’m not 100%, but much better as I get older. I always had a lot of support from my parents and people who grew up with me. Stuttering wasn’t seen as anything more than “how Stacey talks” among my peers. Thank goodness! My own worst enemy was ME. As I grew older, I finally realize that 95% of people don’t really care that I stutter. I also realize there will always be people who won’t take the time to listen. I will say that I always keep going. If someone guesses my words, I will still say them, no matter how long it takes me. I think being a bit stubborn has helped me grow. 🙂
Hi Stacey,
I appreciate you sharing yours’ and your Mothers’ story. Reading about your point of view, of this experience, gave me so much insight and was a great reminder of just how important loved ones are. The part that stood out to me the most was when you explained that no amount of education can equate to how well you know your own Mother. It is important for professionals to remember that the patient’s families are just as resourceful as any piece of research. I am studying to become an SLP, and I am sorry to hear about your previous experience. Reading this post gave me lots of perspective, how do you feel things should have been handled differently in terms of therapy sessions?
Thank you again for sharing.
Gabriela Tarula
Hi, Gabriela! Thanks for taking the time to read my story. I feel the last therapy my mom had would have been handled better if there had been a discussion on day one what my mom felt SHE needed. Even though it was hard for my mom to talk, this particular speech therapist was not interested in actually listening to her. It would have given a great base line to start from and work up to more successes. I agree that families are invaluable and can provide wonderful insight. Sometimes, a client won’t have someone there to advocate for them, though. That is when the SLP can step in as that role, too. I hope that makes sense. All the best to you in your studies!
Hi Stacey! I really enjoyed listening to your story. It is so inspiring to me that you were so helpful in your mothers recovery and being her voice. It seems like your life experiences have led you to that exact moment and you knew what she was experiencing more than anyone. Thank you for sharing your story with us. 🙂
Thank you so much for reading my story and your kind comments. It means a lot to me.
Stacey! Your story is not only so detailed but so so moving! The emotional toll of taking care of a loved one post-stroke is a whole journey in itself, but how wonderful it is to hear that your mother’s recovery brought you two closer. I, like many of my peers, enter the Speech Pathology field after experiences with our loved ones, and it is stories like yours that make it all worth it.
You mention that stuttering is not “cookie cutter” and neither is therapy, and this is something that I plan to remember as I enter the speech pathology field. Thank you for all your insight and all that you have shared!
Hi Stacey! Thank you for sharing with us all your’s and your mom’s stories. I currently work with stroke survivors who have some type of aphasia now. Some of our survivors know that they have a deficit and some are unaware; none-the-less, it is truly important for all of us to approach anyone who appears to struggle with speech and/or language with kindness and compassion. I loved to read that you could understand your mother during such a life altering time for her and your family through your own speech difference. SLPs are not the only people who can help those who need it! Thank you so much for sharing! 🙂
Hello Stacey! I appreciate you sharing this personal expereince about you and your Mother. It made me think of my personal challenges after my grandfather suffered from a life changing stroke. Reading about your strength and resileiency throughout your mother’s entire journey is inspirational. Despite adversity, you put your loved ones first and overcame a challenging life event. I was relieved to read of your mother’s recovery and strength with the support of her loved ones. I also want to highlight the Brene Brown quote, I admire her and her work tremendously! Wishing you and your mother (entire family) good health and love! 🙂
Hi Stacey! thank you for sharing your story. What a rare and beautiful experience you have shared with your mother. I completely agree that there is no cookie-cutter answer to speech and fluency. I wanted to ask you, in your experience in your countless speech therapy, what was one method/experience you used in your own speech therapy sessions that were valuable for when you had to do these sessions with your mother?
Hi, Brianna! Thanks for reading my story and taking the time to comment. I feel one of the most valuable things for both my mom and myself have been with professionals who ask us what we need/want. They listened to what we felt we needed. As for the technical side, I found showing my mom “prolongation” was very beneficial to start her out. All the best to you!
Hi Stacy! I loved listening to your story! I think it’s important to be an advocate for people who stutter especially when they feel so isolated and frustrated. I am a speech pathology student and I volunteer with people who have aphasia. I must say the most important thing they need and want is a support system. I appreciate your feelings and your and your mother’s story!
Hi Stacey. Thank you for sharing! Your story is so inspiring. I love the quote you shared, “To see and be seen. That is the truest nature of love”. I think it resonates and relates to a lot of us, even those who aren’t PWS.
Hi Stacey,
It was a pleasure reading your paper and learning how you helped your mom during her recovery. I found your paper incredibly interesting, especially when you stated that you didn’t need a master’s degree to help her because your life experiences were your education. These two sentences stood out to me because they show how personal experience teaches an individual more about a specific subject than actual textbooks, such as knowing what to do, how to do it, and what not to do. Once again, it was a pleasure reading your story and understanding that individuals need to be seen and heard for who they are and not be defined by their voice disorder. Thank you for sharing!
Hello Stacey! reading your story made me feel a lot of energy and strength. It was really interesting and inspiring ! I totally believe that love is a healer. Also, sometimes the first step for changing anything is embracing it. It is also important to realize that each human has his or her own challenges, and this is what makes us unique. I think instead of rejecting our differences we need to indulge harmony and acceptance to grow from each others uniqueness. this is exactly portrayed in the connection between you and your mother!
I love the quote you mentioned said by Brene Brown ” to see and be seen. That is the purest nature of love.” That is what we need in our world.
Hi Stacy,
i first want to thank you for sharing you and your moms story.
I think it is so beautiful you and your mom grew closer and developed a stronger relationship during this difficult time. I know it might be very difficult for SLP’s to remember there is no one set of therapy activities that will help one with their stutter.
Did you and your mom notice any similar helpful treatment methods?
Do you think you would have been able to be as helpful toward your mom if yuou did not stutter?
Desiree, thank you for reading my story and taking the time to comment. One method/technique that helped me help my mom was “prolongation”. It got her voice ‘started’ and it also was a good way for me to show her how to form her sounds. (I hope that makes sense). Your second question is a bit more difficult to answer. 🙂 I would hope that I would be supportive, but I’m not sure how much I could have actually helped with the speech aspect, w/o having speech therapy myself. All the best to you!
Hi Stacey,
Thank you for sharing your story. This was truly inspiring to read. I was fascinated to read about how you were able to relate to your mom’s speech due to your own experiences. I’m often told that our toughest experiences lead to learning. In that way, do you find that you are grateful for the experiences you had as being a person who stutters?
Hi Stacey! Wow, I can’t imagine how scary that was to receive the call about your mother. She is very lucky to have such a supportive daughter like you. I can imagine it can be hard for PWS to accept their stutter and look at the bright side. However, in this instance, I think your experience with your own stuttering was truly helpful in allowing you to understand your mom’s speech after her stroke. If it weren’t for you intervening, your mom probably would not have been able to find her voice again as easily, so I applaud you for your part in your mother’s recovery. I am in a stuttering class right now in college, and I found it very interesting how you found so many parallels to your own stuttering when assessing your mother’s speech after her stroke. Our class discusses all the time how there is no “one answer” or “one solution” to stuttering and how stuttering is not a “problem” that needs to be fixed. We were taught how every PWS is individually unique and how their therapy sessions will all look different. I related our class discussions to your post, especially when you stated, “One glaring reality is there is no cookie cutter way to speech therapy. The ways to help my mom had to be tailored to her, just as speech/stuttering therapy cannot be streamlined. No two people stutter the exact same way.” Additionally, we also discuss the transparency of stuttering. Specifically, we talk about how it is up to the PWS to enclose that they stutter. Similarly to you, we had a class speaker who agreed that addressing his stutter helps avoid a lot of hassle and confusion. Therefore, I really like how you stated, “It is important for both of us to be upfront that our speech is not what people expect,” when talking about you and your mother’s experiences with speech. I really admire the both of you, and I thoroughly enjoyed your post; it is amazing that your mom is at about 95% in her mobility and her speech. Congratulations and best of luck for the future!
Hi Stacey,
This story is truly incredible. First off, so sorry about your mother! Props to you for staying calm and taking action to be there for her. Second of all, I love the way this story went. I think it is a phenomenal thing that because you are a PWS, you have turned into a better listener and communicator. Those of us who do not stutter could take a note on this quality of yours, because I bet we could solve a lot of issues if we slowed down and just listened to others. Thank you for being an inspiration to not only your mom, but all around you. Prayers for your mother’s continued healing.
Hi Stacey,
Thank you for sharing your story! I find it amazing that you were able to use your experience as a person who stutters to really understand your mother and be such an advocate in her care. I really resonated with your point that your degree or level of education cannot compare to your relationship with your mother and how well you know her. It is important that healthcare providers always ensure that the patient’s families are a huge part of the treatment and recovery process because families know them best.
Malena
Thank you for sharing such a personal story and in such a beautiful way, Stacey. I’m sorry your mother suffered the stroke, but it was wonderful to hear about the bonding experience you two had afterward.
Thank you for sharing your story Stacey. I’m so happy to hear your mom is doing better. My husband had a brain bleed and a TIA, and also some other issues, but managed to keep his functions. And when I got sick with M.E., I had a better understanding for his situation and he for mine. I don’t want people to stutter, or to get sick, but walking a mile in each other’s shoes, if only for a day, would increase understanding. That’s why we should not only use the ISAD to raise awareness, but also the International Day of People with Disabilities, Dec 3. Getting a glimpse of understanding can change everything. Thank you for your story and for you being such an amazing daughter.
Keep talking
Anita
Dear Anita, thank you so much for reading my story and taking the time to comment. You are so correct about “walking in each other’s shoes”. It is an eye-opener for sure. May we all find more understanding and compassion for each other. I will mark my calendar for December 3 and continue to spread awareness. We all deserve to be seen and heard. All the best to you always!
Hi Stacey,
Thank you for sharing your story. Your story is very interesting and great! my question for you is, Do you have any tips on how to overcome fears of public speaking?
Thank you for taking the time to read my story and comment. I think public speaking is scary for not only people who stutter, for a lot of people. I don’t have any specific tips. I think sometimes the best thing we can do for ourselves is “feel the fear, and do it anyway”. Easier said than done for sure. The more we push ourselves out of our comfort zones the more we grow. All the best to you.
As we wrap up another amazing ISAD Forum for International Stuttering Awareness Day, I’d like to say THANK YOU to all of those who took the time to read my story. Your comments and questions were insightful.
The other entries on ISAD Live were amazing and I hope you got a chance to read/watch them all.
For those of us who stutter, spreading awareness doesn’t stop at just one day. I hope anyone who has accessed this forum will share the information they found. The “ripple effect” is real. We can spread awareness and knowledge to make stuttering more ‘normalized’ in the media, among our communities and around the world!
Your voice matters. Never forget that.