Allison LadavatAbout the Author:

Allison Ladavat is a person who stutters and an SLP. She was born and raised in Pittsburgh, PA, where she still lives today with her husband and their three children. Allison serves as the One-Day Conference program director for Friends, the national association of young people who stutter. She also works as the clinical instructor for the stuttering clinic at Duquesne University. Allison is passionate about educating students and SLPs so they are confident working with people who stutter. 

One afternoon as my youngest daughter Hazel was playing ‘pretend’ with dolls, I overheard something interesting from one of her characters. She stuttered. So, I stopped what I was doing and watched for a minute without my daughter noticing. She held up different dolls, moving them up and down as she spoke for them. Each character had a slightly different tone, different prosody. And one of them just happened to stutter. I’m pretty confident stuttering wasn’t actually essential to the plot line of this pretend play. Instead, by simply having a mother who stutters overtly, this type of speech pattern was as normal to Hazel as not stuttering was at that time. In her 4-year-old brain, stuttering was just something people do. If children can have this perspective of stuttering, then surely adults can as well. And if adults can view stuttering as something that “just is,” then maybe normalization of stuttering can be achieved, resulting in a more accessible and equitable society for people who stutter.

 As an SLP working with individuals who stutter, parents of young clients regularly express concerns to me about their children’s futures. As a parent and a stutterer, I empathize with them. Regardless of what our children’s unique strengths and struggles are, we worry about them and want them to have happy, healthy, fulfilling lives, whatever their paths may be.  And yes, it’s true – being a person who stutters in this world can be incredibly difficult. The world is not made for us. But instead of resigning ourselves to this as something that’s “just the way it is,” we can work to normalize stuttering so that stuttering can be something that “just is,” in the same way it was in 4-year-old Hazel’s pretend world. Though I cannot predict a child’s future or confidently tell a parent that stuttering will never be an obstacle, I can reassure them that it doesn’t HAVE to be. However, I worry that most parents don’t believe me when I tell them this. “But, I’ve never heard a doctor stutter, or anyone in my company, or anyone on tv.” I then tell these parents about all the people I know personally who stutter – doctors, nurses, engineers, lawyers, actors, writers – but it’s not enough. They are not experiencing stuttering enough to accept that truth. If we want stuttering to become normalized, we can’t continue working to hide it. If we want children to truly believe they can achieve all the same goals as people who don’t stutter, then we have to actually show them. Stuttering can be an invisible disorder, but only if we let it. 

I certainly do not criticize or fault any person who avoids or hides stuttering. Most of us were likely conditioned to do just that. Being praised for our “smooth speech,” told to repeat our stuttered utterances, and having our disfluencies counted and pointed out to us – why wouldn’t we learn how to minimize stuttering by any means possible? Beginning as children and continuing throughout our lives, we experience negative messaging about our speech. Some of us have been teased and mocked. Microaggressions occur daily. And unfortunately, discrimination can and does occur. Of course, every stutterer’s experience is unique, but one thing we all have in common is that the society we live in is what ultimately disables us. In order to make everyday life more accessible and equitable for people who stutter, we must continue to work on educating the public and advocating for people who stutter. I don’t want to minimize the importance of this and do not place the responsibility of changing perceptions of stuttering solely on people who stutter. This is where I expect our allies, especially SLP’s, to help and support us. While that work continues, we can help change the experiences and perceptions of stuttering for other people who stutter by being more visible. 

Recently, the mother of one of my teenage clients gave me one of the best compliments on a day I was particularly feeling like I wasn’t doing enough as an SLP to help this girl. “She just loves coming here to see you. I think she really likes hearing you stutter.” By stuttering openly, I was helping this client without even realizing it at the time. I was normalizing something that, up until that point, she had been made to view as “wrong, bad, disordered.” I helped her to not feel alone, just by being myself. The first time I had this feeling as a person who stutters was when I met my friend Caryn. I wonder how my life and stuttering journey could have been much different had our stuttering not been exposed to each other. Caryn and I were undergraduates in college, in the same American Sign Language (ASL) class. In this class, we were not allowed to communicate verbally. Because of this, we had several ASL classes together before actually hearing each other speak. One day after class we started talking to each other and then went to lunch together in the cafeteria. I don’t remember how it all exactly happened, but it was then that we noticed each other’s stuttering. I had never experienced this before. A girl my age who also stutters?? I had always known I wasn’t alone, that there were other people out there just like me. But, until that moment, I didn’t feel it. I had always felt alone. That feeling of being alone and different is what drove me to avoid stuttering and learn how to be as covert as possible in the first place. I was still covert when I met Caryn, but I wasn’t always successful, and now I’m thankful for that. I’m so thankful we noticed each other’s stuttering that day. So thankful I failed to hide my stutter. Failed to pass as fluent. 

At this point in my life, I’m the most overtly disfluent I’ve ever been. It can be frustrating, annoying, upsetting, and it can complicate everyday interactions that other people take for granted. Instead of dwelling on these moments, I like to think that maybe the vulnerability I’m experiencing through exposing my stuttering is helping to open the door for someone who is not quite ready yet. Maybe through hearing me stutter, someone else feels less alone, like I did when I met my friend Caryn. So, thank you to all of you who were vulnerable before I was ready. Thank you for being visible, seen, heard. As someone who lived as a covert stutterer for so many years, I wouldn’t have been able to learn how to accept my stuttering without you. I wouldn’t have learned how to reject society’s standards of “normal/abnormal, right/wrong.” And most importantly, I could not help other people who stutter without you. Stuttering visibility benefits everyone. By modeling open and overt stuttering, we can help those who are not yet ready. By exposing stuttering to everyday listeners, we are helping to desensitize them to stuttering, hopefully changing their perspective of what stuttering is. Through overt stuttering, we are also continuing to desensitize ourselves, strengthening our ability to reject societal standards of communication. Maybe stuttering won’t ever be as normalized as it was in Hazel’s pretend world. But through education, exposure, higher visibility, stronger advocacy, it CAN be something that “just is.” 

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Comments

Stuttering: Less Is Not More – Allison Ladavat — 20 Comments

  1. As somebody that also grew up feeling alone, and didn’t meet somebody else who stuttered until my late 20s, this resonates with me. I still have yet to see somebody that just stutters regularly on TV, but I feel that our generation is the one that will make it happen. We are loud, we are outgoing, we are making a difference one conversation at a time.

    Proud to know you, my friend!

    • Thanks David, and I agree! So happy we met each other. If I had met people like you earlier in my life, I know it could have helped me navigate the world a little easier in my younger years. But, it’s never too late. Thank you for being you!

  2. Wow this is such a powerful story and I love the part about your daughter playing a doll’s character who stutters. That is so beautiful to think a child that young can see it so normal that it is just another character trait in her made up world.

    I love to this idea you mentioned about how being covert and hiding it actually does injustice to our movement. I feel this a lot — that my stuttering journey is not about me anymore, it is about the great stuttering and disability cause. Having that perspective, has allowed me to take myself out of the equation and really lean into all things stuttering because there is a great feeling of being able to help others aside from yourself.

    Have you noticed any particular changes in your daughter as you have become more and more open about your stuttering? This is a great reminder that its the actions we all take that really influence the kids and younger generations too. I have a 7 and 9 year old niece and I think about that a lot — the narrative around my stuttering is what will inform their own views about stuttering.

    • Thanks so much for taking the time to read this. I love your perspective about taking yourself out of the equation. While I think it’s so important to always honor and validate our own feelings, it does help to focus on helping others. I’ve learned that these can coexist. I can still be upset and frustrated at times. I can still have avoidance tendencies. But focusing on helping others who stutter has helped me learn how to get through these moments easier. I don’t dwell on them like I used to and they don’t affect me as much overall.

      I actually have two older kids as well. My kids are 16, 14, and 7. I’ve never hid my stuttering from them and wouldn’t have been able to if I tried. So they only know their mom as someone who stutters. I can’t speak for them, but I can assume stuttering is very normalized for them. I definitely think at the very least they wouldn’t be surprised or confused if they met someone else who stuttered and wouldn’t react to it.

  3. Hello, and thank you for sharing. I think it’s wonderful that you are an SLP and can help children with their speech needs. What do you think is a positive way for a fluent SLP to work with a stuttering client?

    Warmly, Nikki Rader

  4. Hello, thank you for sharing this story and insight. I have heard testimonies from people who stutter before who have hidden their stutter, than later admitted the negative impact it had on themselves, as they were not expressing or being themselves. However, I have never heard or thought about it from the perspective of a child or parent of a child who stutters. What a powerful message that hiding stuttering is only hurting the youth who stutter, because they don’t see professional adults who stutter and are successful and happy.

  5. Thanks for reading! I think there are so many ways for SLPs to support clients who stutter. Keeping up on the current research, listening to the voices of people who stutter (articles, podcasts, blogs, books), getting involved in stuttering support and self-help groups. I think it’s so important for SLPs to understand their role – they are not there to “fix” anyone. They are there to be allies, to support and advocate.

  6. This is such an insightful and powerful story – thank you for sharing! As a graduate student studying speech-language pathology, I think one of the most important ideas you integrated into this piece is that SLPs should be allies to people who stutter. This has critical implications for how I view my role as an SLP, shifting from viewing myself as an interventionist to viewing myself as an ally who can support and advocate for people who stutter. This paper also has some very important ideas and points about how we should work to normalize stuttering through overt and explicit discussions and examples/models of stuttering in authentic situations. I enjoyed reading your suggestions about how SLPs can support clients who stutter and work to normalize stuttering so that it “just is”, which include keeping up with current research, listening to the voices of people who stutter, and getting involved with stuttering support groups. I am wondering if equipping clients with self-advocacy skills is also important in our practice.

  7. I found this story very powerful and meaningful – I completely agree with your point that it is not the fault of the person who stutters, but the fault of the society which isolates them. While I am not a person who stutters, I can relate to your daughter’s point of view due to my experience growing up with my brother on the spectrum. For me, his behaviors have been normalized for my whole life. I understand that his unique characteristics simply “just are”, they are nothing negative. Because of this, I can understand your point.

    Your story of how your client loved being able to relate to your speech was powerful, in addition to your story of finally meeting a friend who was also a person who stutters. It really highlights the importance of community and companionship in helping someone succeed a world that may not be easy to navigate. I especially loved your point that not hiding from a stutter and making your voice heard is what allows other people who stutter to step into their own confidence.

  8. I thought this was a really great point of view from a PWS, thank you for sharing your stories! When reading your discussion, I like how you mentioned several times that stuttering is often portrayed as a disability. I think your title is fitting that less is not more, in order to empower others about their differences. As a society, what are some ways we can help change the stigma of stuttering? I think the first step is spreading education and raising awareness about stuttering, stutter-like disfluencies, and sharing stories such as these!

  9. Thank you so much for sharing. I found your quote, “Society we live in is ultimately what disables us” very fascinating; as in stuttering does not disable, the environment and society around us disables. What ultimately made you become an SLP and what ways do you like to connect with clients with stutters on a personal level?

  10. Thank you so much for sharing your story. As an SLP-to-be, I see the importance of spreading awareness and bringing light to stuttering! I loved how your daughter, when playing with her dolls, had a doll that stuttered. At just 4 years old, she is showing that she does not see stuttering as “abnormal” but she sees it as the norm. It is so important to teach children that just because an individual has visible differences does not mean that they are “wrong, bad, disordered” as you stated in your story. As research is continuing to come out with more information regarding stuttering, it is our role as SLPs to help spread the information and help educate the public.

    I also found the part of your story about finding a friend who stuttered at your college and not feeling alone to be very powerful. After trying to avoid stuttering and learning how to be as covert, I found it so inspiring that you found someone who helped you learn to embrace your stuttering. Learning to embrace your stuttering, led you to inspire your clients. Your whole story with your daughter, and meeting your friend who had led you to inspire others is honestly just so amazing.

    Thank you again for sharing!

  11. Hi Allison,
    Thank you for sharing your experience and truly encouraging message. It is so important to see yourself in the roles you aspire to be in, especially for children. How old were you when you began to stutter? Is covert stuttering ever something that is intentionally taught by SLP’s, or just an acquired skill that is mastered over time for one’s own comfort? As an SLP, if a patient came to you wanting to learn this skill, what would you say to them? Or when you meet patients who do covert stutter what is your advice to them? How has being overtly disfluent most impacted you? Again, thank you for sharing.

  12. Hi Allison,

    Thank you for sharing your insight and experience. I have been learning about stuttering and treatment for it, but until I read your article, I had not seen the perspective from a person who stutters that stuttering should be normalized. I greatly appreciated your point of view and hope that stuttering can be normalized in society. What do you think is the best way to normalize stuttering? Is it providing education in schools or going through popular media to portray people who as a part of their lives?

    Thank you again for your article.

  13. Hi Allison,

    Thank you for this wonderful submission. Helpful to both PWS and SLPs. We often underestimate the brilliance of young children who take differences in stride. She thinks nothing of stuttering because it truly is just another way of talking.

    What propelled you to share this and be so personal? I love it.

    Pam

  14. Hello Allison ,
    I really enjoyed your story connecting you experience as a PWS . Unfortunately today stuttering is not as normalized as it should be resulting in bullying in schools. As an SLP and PWS what would you recommend how teachers and parents should deal with bullying inside and outside of the classroom. Any resources you can direct me to ?

    Thank You and looking forward to your response ,

    Cynthia 🙂

  15. Hi Allison,

    I love the beginning of your story about your daughter having her dolls stutter! I think it’s amazing that she just sees this as normal, as it should be! Being a future speech-language pathologist, I really want to make sure that I am supporting and advocating for all of my patients and making sure I am never trying to “fix” their stutter. Do you have any specific advice for a future SLP who hopes to work with individuals who stutter? Thank you so much for sharing!

  16. Hello Allison,

    I loved reading about your article and learning about your daughters reaction to stuttering. It’s a great example that normalization of stuttering can occur with the proper representation!
    As an SLP and PWS what do you think other SLPs can do to help build an environment where PWS can feel comfortable?

  17. Hello! My name is Sarah Lane, I am a speech pathology graduate student. I love your article, and I love that your daughter has been exposed to stuttering at such a young age. She sounds precious! I have a question – what is one thing you wish parents taught their children about stuttering/how to respond to their classmates who stutter? My little brother stuttered at a young age, and I remember how tough it was for him to communicate to his peers when he was younger. Thank you!

  18. Your article is well written and so powerful. I am not a person who stutters but this article resonated with me nonetheless because English is my second language and I constantly try to hide my accent and have engaged in negative self talk due to my “shortcomings.” Also, I have experienced the joy of meeting someone with a similar background as you and it is so comforting to know you are not alone. Thank you so much for sharing your experience, it was enlightening.