About the People Who Stutter Panel (in alphabetic order by first name):
Andrea Callegaro from Italy (Padua), living in Tours (France) is a philosophy teacher and a person who stutters. Between the ages of 7 and 30, he hid his stutter until one day he came across some articles about stuttering pride. He became active in the international stuttering community, where he met many new friends. In his spare time, Andrea enjoys reading, cooking, learning languages and taking long walks in the mountains.
Anita Blom, born and raised in the Netherlands, is living in Sweden. She worked as an operation manager for the Workers’ Educational Association. She has been a board member, incl chairperson, of stuttering organisations on local, national, European and International level, and an advisory board member of several international stuttering organisations. She was a national and international keynote speaker on stuttering, was one of the Stutter Social hosts, a project leader of several stuttering projects and a leader of national and international children and youth camps for over 20 years. She has been an award-winning stuttering activist, acknowledged by Voice Unearthed on the Wall Of Inspiration, Stamma, and many others, on local, national and international level.
Anita, aka Scatsis, has stuttered since she was 9 and had a troublesome youth because of her stuttering. She went from being silent, to giving stuttering a voice, from pre-school children to the European Parliament, now inspiring people who stutter of all ages, they can make a difference. Do check out her previous papers to the ISAD online conferences. Due to health issues she now has to take it slow, but is still an inspiration to many, especially young people who stutter and those with ME/cfs. Her device, that’s now been used all over the world is “Sure I stutter. What are you good at?”.
My name is Ciel Waagenes Udbjørg, 63 years of age and tram driver since 1986. I got “diagnosed” with cluttering speech in 1992-3, but never did anything with it due to wrong chemistry (no rapport) with the SLP’s. By chance (!) I joined the Norwegian Association for Stuttering and Cluttering in 2017 (NIFS), soon got elected to the Board, and am still there as “the Cluttering alibi”. I have held a presentation about Cluttering Speech with Rutger Wilhelm in Stammafest Global in Liverpool 2022, at the Nordic stuttering seminar in Bergen in 2023, and again at Stammafest in Nottingham 2024.
Emmanuel Kwaku Addo is a dedicated advocate for Persons Who Stutter (PWS). As the President of the Ghana Stammering Association, he tirelessly raises awareness and promotes acceptance. He also organizes African Connections, monthly support meetings connecting PWS and their allies across Africa. As a PWS himself, Emmanuel deeply understands the challenges and triumphs of stuttering. He is committed to supporting and empowering PWS worldwide.
James Hayden is a son, brother, friend, and person who stutters from the New Orleans area. He is the author of Dear World, I Stutter: A Series of Open Letters from a Person Who Stutters. His work has been published by numerous outlets and organizations. He’s also presented at numerous universities and conferences. Outside of stuttering advocacy, he enjoys reading, spending time with loved ones, traveling, and consuming way too much Survivor related content.
Paul Goldstein has studied in quite a few fields, including music composition, mathematics, and speech-language pathology. He spent his first 46 years in the United States, during which he worked as nightclub and concert pianist, concert director, music instructor, computer programmer, and speech-language clinician. Twenty-four years ago he moved to Norway to marry. Since then, he has worked in social services as a foster “weekend father”, and as a pianist-composer.
Paul has stuttered since his first sentences at age 3. His journey has taken him through decades of speech therapies, including various fluency shaping programs. Through intensive practice, he enjoyed many extended periods of fluency. However, he now simply accepts himself peacefully as a person who happens to stutter.
Active for decades in national and international stuttering organizations, Paul has attended numerous stuttering conferences, and has published a number of stuttering-related articles. He is also an administrator in Facebook’s largest stuttering forum.
I am happy to answer your questions.
Hi Emmanuel,
I am Camille and I am a current speech and language graduate student. I was wondering what your advice would be to a professional in order to advocate for stuttering.
Hello Camille,
First,I want to thank you for your desire to advocate for PWS. It is a great thing to as a professional and we are appreciate the support of professionals like you.
To your question. There are several ways I would approach this. I can work with my client to do this together as an extension of therapy by visiting them at their workplace, school or home. We can work on activities such as presenting to their colleagues at work, school or even family members during faily events (with prior invitation).
Also, a professional can advocate for PWS by collorating with the local chapter of self-help groups for PWS. Opportunities abound for professionals to engage the media in awareness creation and advocacy drives during local events and in October of every month (ISAD celebrations). I would advice they connect with self-help groups in their locality asking for opportunities to support their advocacy work.
Thank you, Camille.
Hi Emmanuel,
My name is Sarah. I am a graduate student who is currently learning about stuttering. I am curious as to what motivated you become confident in your stutter. As a future speech language pathologist I want to motivate my clients to be confident in their stutter and help adjust their mindset to think more positive about themselves.
Hello Sarah,
My main motivation is to learn more about stuttering so I can help others. I believe in the saying that, you can’t give what you don’t have. I got to a point in my life where supporting others became my focus. The more I encouraged and supprted others, the better I got at communication and managing the impact of stuttering. In other words, being a supportive SLP and giving your client the opportunity to support others could help them. You can use group therapy or a stuttering self-help group to achieve this.
Best!
Hello Emmanuel,
My name is Emma and I am currently studying speech language pathology in a master’s program. As students we are learning about stuttering and aiming to provide the best support for our clients. As a person who works so hard to promote awareness and acceptance on a public scale, do you have any advice for the best way to provide support and promote awareness on individual and larger levels?
Hi Emmanuel! My name is Alyssa and I am currently in graduate school to become an SLP. I am currently learning about fluency, and would like to know what words of encouragement do you give to other PWS?
Do any of you have experience with covert stuttering? I am wondering specifically how to best support people who stutter “who don’t stutter.” As a former covert stutterer, I always felt awkward when in groups with other PWS who were obviously overt and was frequently questioned why was I there if I didn’t stutter, or if I was a SLP.
I’ve often wondered if other covert stutterers felt the same way. Now that I have “transitioned” from covert to overt, I just can’t hide anymore. The tricks I used don’t work anymore, and it’s so much easier to just stutter.
I’d appreciate responses from any/all. This may help many others who might be curious.
Hi Pam,
I would only go covert in certain situations. The main ones being large group settings and with people who I didn’t know super well. I haven’t been covert in years.
Hi Pam
I’ve tried to be covert, but never managed to control my stutter. However I’ve been silent and pretended to be mute, have a cold, not “knowing the answer”, etc. I think it’s even harder being covert, as covert PWS told me they always weigh every word in every situation, and don’t feel they belong to neither the fluent world nor the stuttering world, which makes it even more lonely. I think the best message we can give is that it’s OK to stutter and to put your personality and skills in front of your speech, not the other way, as a message to both to overt, and covert PWS. I’m happy you find your voice, as you help others to find theirs.
Hi! I am currently in graduate school getting my masters in speech-language pathology and would love to hear any insight on if you attended speech therapy and if so, how did you feel best supported? What qualities in a speech pathologist did you appreciate or not appreciate?
Hello Lucy.
I have not attended any formal speech therapy my entire life but having worked with people who stutter as an SLP as a support group leader, I think my response might be helpful.
First, Speech therapy that is tailored to the client is always the best. There are many approaches out there that a therapist can use, but such approaches must be adjusted to the needs of clients and their family if we expect positive outcomes. Listening to the need of the client and/or their family and incorporating that into your functional goals (plus of course your EBP), I understand is very helpful to PWS.
Anecdotally, SLPs who are excellent listeners, empathetic, and work together with clients are noted to be among the best.
Hi Lucy,
I was in speech therapy from the ages of 5-12 and then 20-22. As a child, what really helped me was my SLP incorporating my interests into our sessions. It made me feel involved and I looked forward to going. In my 20s, allowing me to set my own goals really helped. I cared and wanted to be there because I felt involved in the process. In both eras, I appreciated the fact that I knew I could trust my SLPs and that they had my best interest at heart.
Hello James,
I am currently in graduate school for my master’s in speech-language pathology, I noticed how you went to speech therapy from ages 5-12 and then again from 20-22. I was curious as to what led to your break from speech therapy and what led to your return in your early twenties?
Hi Alayna,
By the time I was 12, I really didn’t stutter any more. Around the age of 18, my stutter returned. After some conversations with family members, I went back to speech therapy when I was a junior in college and continued going until I graduated. I haven’t been to speech therapy in almost 10 years. As of now, I have no plans on going back because I’m in a good place with my stutter.
Hi Lucy. Have a look at my reply to Alayna and others in this thread. Also have a look at the replies here: https://isad.live/isad-2024/talk-to-a-pws/
Hello! I am currently completing my master’s in speech-language pathology and was wondering your thoughts on whether you believe speech therapy had a positive effect on you. If so, what aspects of therapy seemed to have a strong effect on your outlook of your stuttering?
As stuttering was “wrong” and “shameful” when I was young, I wasn’t even told there was therapy or other people who stutter. When I found out in my late teens, I had some bad experiences. Today there are fantastic SLPs and even psychotherapists who are fantastic! To me, the best therapists are those who start by asking and listening. What does the client bring to the table (all from age, gender, culture, etc, to emotional luggage). What is the client’s wish (as it’s not automatically total fluency). And think out of the book/box. There’s so much more than speech techniques. Personality training, mindfulness, NLP, speaking circles, presentation techniques, dancing, singing, creativity, meeting others, etc. I believe that a multi-disciplinary approach can have an effext on both speech and personality.
Keep them talking
Anita
Hi James,
I am currently a graduate student study speech and language! I wondered what inspired you to write your book? I also wanted to know what more I could do to advocate more for persons with stutter?
Hi Camille,
The short answer is I was at a job that was a step below my “dream job”; however, I was unhappy and unfilled. I thought writing the book could open doors that could lead me to a different job.
There are so many ways to advocate for PWS. A few are: know the facts about stuttering, share stuttering related posts on your social media, and give PWS the space to stutter openly.
Hi Paul,
How has being active in national and international stuttering organizations as well as attending stuttering conferences impacted your own journey with stuttering?
Hi Izzy
Although you directed your question to Paul, I’d like to reply as well. I was 27 when I first met others like me and it changed my life! To meet others who GET it, have succesful lives, who stutter in all languages, they became my friends, my phychologists, my coaches, my family. I learned so much from them, who lead the way, challenged me and pulled me up when I was down, and now I’m paying it forward to the next generation and see they now pay it forward themselves. So please help us lead the way to stuttering organisations, meetings and stutter camps. You’re not alone.
Hi, Izzy.
It’s been great in meeting many others who stutter, and I now personally know hundreds of people who stutter. To be at a large conference or large gathering of people who stutter warms my heart – to meet so many people with experiences so similar to mine. It also turns the whole world upside down. In society as a whole, we are a really tiny minority, under 1% of the population. But at large stuttering conferences, people who stutter are in the very large majority. (Typically there are some fluent people around – speech pathologists, and family members of people who stutter – but they’re usually a small minority.) At these conferences, stuttering becomes the “norm”, becomes what is expected; and fluency becomes the exception. People EXPECT to hear stuttering at these gatherings; it is the “normal” way of speaking. People who are fluent sometimes explain why they’re fluent. (For example: “I’m _____’s wife”, or “I’m a speech pathologist”.) It’s really a great feeling to have the world turned upside down like that!
And having been a member of quite a few national and international stuttering organizations, as well as having attended many conferences, I have learned much about the different experiences people who stutter have had. This has been very valuable to me in learning on a deep level about the thoughts, attitudes, and perspectives of many who stutter; about the therapeutic experiences, methods, and strategies they have tried; about how they deal with stuttering in everyday life.
My knowledge of stuttering comes from many sources – my own experiences of severe stuttering going back to very early childhood; my graduate studies in speech-language pathology; extensive readings in the field about stuttering; keeping up with the latest research into stuttering; and last but not least – personally knowing hundreds of people who stutter. I have met hundreds in person through stuttering organizations and conferences, as well as self-help meetings and therapy reunions; and I have met hundreds of others who stutter online in stuttering forums. To know the experiences of many others who stutter adds immensely to knowledge about the disorder.
To know others who stutter is crucial to deep understanding of the disorder. To rely solely on my own experiences, and what I read in books and articles, is just not sufficient. The vast differences in personal experiences are really what stuttering is all about.
Hi Anita,
As a leader for national and international children and youth camps over the past 20 years, what are ways that you empower young people who stutter? What can we do as listeners to uplift people who stutter?
Hi Izzy. Thanks for your important question.
It took me many years to gain acceptance, confidence and self-value. As I was told for many years I wasn’t good enough. If I only would stop stuttering. To be told I’m not worthy to speak, to be bullied almost to death, to be told there was no use studying, as I wouldn’t get a job anyway. Even from SLPs. After years of hearing this, from all corners, you start believing it. And years to again start believing people who say nice things about you. It takes a village to raise a child. It takes a stuttering community (incl allies) to help rise a PWS.
I clearly remember every tough, demeaning moment, every word, every situation. But I also remember the first time my boss said I was doing a great job. My first boyfriend saying he liked me for who I am. My first local meeting with other PWS. My first national stuttering event, meeting people my age, telling jokes. My first international stuttering event, with people stuttering in all languages, having all kinds of careers. The first SLP crying for joy when her client spoke at the open mic. The first time raising stuttering awareness in school and giving my first autograph afterwards. My first speech to the European Committee. My many stutter camps where I could give back. My Mindfulness courses, NLP, Speaking Circles… The list of things that made me grow is long.
So my first advice is to get in contact with other people who stutter. Whether that’s a camp or a meeting, a social dinner or listening to an inspiring speaker. Being with other PWS is your safety zone, where you can learn you ARE good enough. You will be cheered on, you will be encouraged to expend your comfort zone, you will be accepted just the way you are, and you will be accompanied on your journey, whether that is with or without therapy.
Also accompany yourself with the right allies. There are people who have high expectations and who will judge you, and there will be people who will tempt you to try things, lift you up when you’re down, and share worries and joys. These can be friends, family, your teacher or your SLP.
And try to find the things you’re good at. Make a list and write them down. When you can’t come up with more, ask others. And keep it active. Put it in your phone, the mirror or on the bathroom door, so you can see it and add to it, every day. You can also do like me, who, after many years still needs to see this every day: get a tattoo on your arm saying “Good enough”. As people who (think they) are perfect are a pain in the behind and nothing to strive for. And why do we accept others who are not perfect, but when it comes to ourselves, we are all but our own best friend?
All this is what others taught me and I’m so happy I today can pay it forward. And hopefully you will too now. 🙂 If there are no camps in your neighborhood, why not organise one? I’d gladly share my expertise.
Keep them talking
Anita
Hello Anita,
I am a current SLP graduate student and am wondering about the following question so that I may further my understanding and knowledge and in what ways I can change to help make a difference. How do you think that societal perceptions affect individuals who stutter, and what changes would you like to see in public awareness and understanding?
What a great question! After years and years listening to people telling me I wasn’t good enough, “if I’d only stop stuttering than…”, and that I had no future, not to mention the bullying that alsmost ended my life, I started to believe them. If they all say I’m worthless, they most be right. Until I met the right people who told me the contrary. And yet, it took me as many years to believe them. So yes, society makes or brakes people. And even unspoken words (looking away, laughing), body language (looking at the clock), “helping” (finishing words and sentences) and giving unsolicited advice (take it easy, take a deep breath, I know this therapy that…), is not really helping. So we need to start communicating. We who stutter, and our allies, need to tell what stuttering is about, and what it’s like to live with a stutter. As we’re the experts on our own stutter, all sharing that same thing, and yet all different. And society needs to stop assuming, and instead dare to ask. What is stuttering. How does it feel. How can I make it easier for you to speak. What are you looking for in therapy. I hear you stutter in this job interview, but as you’re applying you must be sure you are capable, so tell me what you can bring to this company.
We need more movies, TV series, game shows, where people who stutter just ARE. Not about stuttering, but just being a part of society’s variety of people. Black and white, young and old, walking and wheelchair, fluent and stuttering. We need the right to stutter, the right to have affordable therapy for those who want, by licenced therapists who are specialized in stuttering, and simply the right to be accepted just as we are. No getting smacked as in some countries. Not drinking snail water as in certain countries. We also need to stop the charlatans who claim to have a quick fix, but when you get out of the therapy room, with empty pockets, it’s “your fault” when you stutter again. We need stuttering to be normal, and up to oneself to decide if we want to work on our speech or simply speak the way that’s OK for ourselves to speak. As maybe it’s not us who need to learn to speak fluently, but the listener to learn how to listen patiently. 😉
I write a paper for every year’s ISAD online conference. Here’s this year’s. Have a read. 🙂
https://isad.live/isad-2024/papers-presented-by/stories-and-experiences-with-stuttering-by-pws/a-voice-worth-listening-to-anita-blom/
Keep them talking
Anita
Please post your questions as a post, following the instructions on https://isad.live/isad-2024/talk-to-a-pws/.
Hello Andrea,
I am currently completing my master’s in speech-language pathology. I was wondering what strategies did you use to hid your stutter from the age 7-30? Were there any other factors that have encouraged you to become an active member of the international stuttering community?
Hello!
So, when I was a child I had speech therapy with a somewhat old-school SLP, who taught me tricks like looking up synonyms, paraphrasing, elongating vowels, and controlling the rhythm of speech.
This approach had some pretty heavy consequences on my mental health, at the level of anxiety (which of course I couldn’t always hide the stuttering) and impact on my life.
Once I graduated, I did everything I could not to teach, because I considered it an impossible job for a pws. But I wasn’t happy, I couldn’t stay in a job for more than a year…. So one day, pushed also by my then girlfriend, I decided to look for associations of pws and found Stamily. And from there my life has changed… it is thanks to the support for the community’s help that today I am teaching.
Thank you for your question and interest 🙂
Andrea
Hello Emmanuel,
I am a graduate student in a SLP masters program. I was wondering what advice would you give to a new professional when trying to promote acceptance and support to PWS?
With being a support group leader, have you noticed positive changes in group members feelings/thoughts/confidence?
Hi Bmottley,
Promoting acceptance is a good thing but you have to be careful the approach you use.PWS are at different stages of their readiness for acceptance. While there maybe PWS who are contemplating acceptance or ripe for the message, there are others out there who are just not ready. I suggest you start with educating the PWS about stuttering and the benefits in acceptance. Try answering their questions as open as possible and let them know it is a decision they have to make themselves. In other words, give them the option and allow them to act when they feel ready for it. There is a lot of misconception out there that acceptance means resigning oneself to fate. This is a wrong message and I find out it is one reason some PWS don’t want to hear the word acceptance. It makes sense, doesn’t it? Why should I accept it if my desire is to stop stuttering?
To your second question. Yes! I have seen several members of mine become confident in their communication skills and their overall outlook of life just by attending meetings. Support groups are powerful agents of change for most PWS experiencing mental and social well-being challenges as a result of stuttering. I have personally benefitted immensely from support groups and I always share this in podcasts and interviews.
Thank you.
Hi Paul!
I am currently completing my master’s degree in a SLP program. Reading that you have studied Speech-Language Pathology, I was wondering if there was any techniques or strategies that you used as a clinician that helped manage your own stutter? Your journey is inspiring! Thank you for sharing!
Hi, Emma. Thank you for your interesting question, and for your nice compliments!
Speech-language pathology is one of a number of different fields I have studied. I completed master’s-level studies in speech-language pathology. But I also studied in a doctoral program in music composition, and have a degree in mathematics.
My clinical work was mostly under supervision as part of my graduate program, but I did do some clinical work afterwards. I’m not a professional speech-language pathologist, so my clinical work has been rather limited, and I’ve only had a small number of clients who stutter.
However, in my clinical work with people who stutter, I did teach some techniques that I used myself at that time. For example, I taught some clients methods of relaxed diaphragmatic breathing that I was often using during that period. And by this teaching, I was able to reinforce the strength and effectiveness of my own diaphragmatic breathing. I also found that doing therapy with others who stutter enabled me to feel more confident about my own stuttering, to feel better about my own stuttering. What I told to clients I was also telling myself at the same time. This helped me to strengthen my own positive attitudes and perspectives about stuttering.
Hello James!!
I am currently obtaining my master’s degree in an SLP program. What is one thing you would like to inform more individuals about stuttering? What are some challenges that you have faced in the past? P.S. I love Survivor too!
Hi Emma,
There are so many things I want others to know about stuttering. I think the main thing is that people who stutter know what they are talking about, it just might take us a few extra seconds to say it. The biggest challenge I’ve faced is ignoring the inner voice that tells me, “Being a person who is silent is better than being a person who stutters.”
Glad I found another Survivor fan through this!
Hello James,
My name is Sarah. I am a graduate student studying to become a speech language pathologist. What was your favorite and least favorite aspect of speech therapy if you received it. I want to provide a very safe and comfortable environment to my clients who stutter. I want to also provide a positive outlook onto therapy for them.
Thank you so much for your time,
Sarah
Hi Sarah,
As a kid, my favorite aspect was incorporating my interests into my speech therapy sessions. It made speech therapy fun!
As a college student, my favorite aspect was setting my own goals. It made me vested in the process and wanting to go to speech therapy.
My least favorite for both was being required to do techniques that I wasn’t a fan of.
Hello Emmanuel!!
I am currently obtaining my master’s in speech language pathology. What would be your number one advice for a new speech therapist working with someone who has a stutter? Also have you noticed any positive changes in the members who are in your groups?
Hi Kayte,
My number one advice will be to always listen to what they need out of therapy. One size does not fit all. Always endeavor to help them with their specific challenges and this is always easier by listening.
Yes! Most of my members share their positive experiences after few weeks of attendance. There is something powerful about meeting other people who are experiencing similar challenges like yourself. PWS learn from the experiences of others and they have shifts in unhelpful beliefs and thoughts about stuttering. For some, this is all they need and there are lots of evidences out there in research to support what I have witnessed in the Ghana Stammering Association and African Connections.
Thank you.
Hello James,
I am currently in graduate school for my master’s in speech-language pathology. I am curious as to what what led to your return in your early twenties and did you find it more difficult when you were older?
Hi Kayte,
The short version is a conversation I had with my uncle ultimately led me back to speech therapy in my 20s. Yes and no. It was easier because I had more say in what we did and what my goals were. Thus, I was more interested in going. It was difficult because I only told a couple of close friends I was back in speech therapy. This made me lie to others as to where I was during my speech therapy times and why I was in that building.
Hi!
Was your speech therapist receptive to you being so involved in what you wanted your goals to look like during your sessions? Thanks!
Yes! On day 1 of every semester, they asked me what my goals were and happy to help me achieve them. For context, I had a new slp every semester while in college.
Hi there! I am currently obtaining my Master’s in Speech-Language Pathology and was wondering in what ways you feel that PWS are affected by things that are thought to be “easier” in today’s world, such as automated customer service lines. I was curious on how this made PWS feel when they called a phone line and if it affected your decision to possibly hang up and call somewhere else? I want to look into doing research over this and your feedback is tremendously appreciated. Thank you in advance for your time and you are truly inspirational!
Right up my alley, Payton. 😉 I’m the “mother” of a huge Swedish project https://www.funka.com/en/research-and-innovation/archive—research-projects/speech-as-a-digital-tool/ as I was tired of automatic, voice steered answering machines and devices, telling me they didn’t understand me. To only have a few seconds to get the words out or to hear “I’m sorry, I didn’t hear you”, by machines and… people! To not even get through to the police was the last drop! I told my husband that, if there was a person on the phone with no sound, or deeply breathing, to simply wait for the Hi or the name to come. But also people can make it hard for me to talk on the phone. I’ve been hung up upon, laughed at, told they couldn’t hear me, or didn’t have time to listen… So, when an elderly person slowly crosses the street, do you run them over, get out of your car and push them over, or do you simply wait? As waiting is key. Maybe PWS wouldn’t have to learn to speak fluently, but fluent people learn to wait and listen. 😉 Phone calls are one of the biggest hurdles and fears for PWS (and others with speech varieties). Also because you can’t see the reaction of the other person, and the other person doesn’t know if your done talking, or are having a block. But if we’d dare to say “I stutter”, if we’d know people will give us time to speak, and not making fun of us, if we could come to the right person directly instead of having to pass many different persons and explain the whole issue again, maybe the phone wouldn’t be less of a hurdle.
I’m highly interested in your research and if there’s anything I can do to join or help, let me know. In the meantime, I write a paper to every year’s ISAD. Have a read at this year’s. 🙂
https://isad.live/isad-2024/papers-presented-by/stories-and-experiences-with-stuttering-by-pws/a-voice-worth-listening-to-anita-blom/
Keep them talking, even on the phone 😉
Anita
Hi Ciel,
My name is Madi and I am a graduate student in a speech-language pathology program. I was wondering if you could tell me a little bit about your experience with cluttering and provide some suggestions for a speech pathologist who is working with a person who clutters.
My question is addressed to anyone who is willing to answer:
How has meeting other people who stutter influenced your perspective of stuttering and what advice do you have for someone who has not yet met others who stutter and may feel alone?
Hi Madison,
Meeting other PWS was a game changer for me. I met another pws for the first time almost a decade ago and it showed me I’m not alone and opened the door to a new community of people. Some of the people in that community have become some of my closest friends.
I’m mild-moderate on the stuttering scale. Meeting PWS who have a more severe stutter helped me get a better understanding of what a non PWS experience in a conversation. Big stuttering moments can be awkward and uncomfortable for both the listener and speaker. Experiencing those moments as a listener gave me a better insight into what my audience might experience during one of my stuttering moments.
My advice is simple: go and be around other pws. Even if you just sit there and don’t say a word. Just being around other people who “get it” is a massive game changer.
Hi Madison
Meeting others who stutter changed my life! From feeling alone, hearing from so many people I wasn’t good enough and wouldn’t have a future, to suddenly meet other PWS who had great lives, despite some even stuttering way more than me, not only gave me hope, it gave me back my voice. I promised myself, the stuttering community and especially kids who stutter, to be the face and the voice, and to make sure it wouldn’t take others 27 years (!) to found out they are not alone. I’ve spoken in all corners of the world, to PWS, to kids, teachers, politicians, radio, tv, newspapers and magazines. And still do in all conversations with new people and have hosted many stuttercamps. I wear shirts and buttons. As ever so often there is a person saying “I stutter too and didn’t know there was a community”. So my wish for all PWS, AND parents (!) is to connect with others who are in the same situation. You’re not alone and good enough.
Keep them talking
Anita
Hi Ciel,
How has your experience as a board member of the Norwegian Association for Stuttering and Cluttering influenced your perspective on cluttering, and what changes do you hope to see in the way cluttering is understood and addressed in the speech-language pathology community?
Hi James,
In your journey as an advocate for people who stutter, how have your experiences shaped your writing in Dear World, I Stutter, and what message do you hope resonates most with your readers?
Hi,
I actually wrote my book before I was super involved in the advocacy world. My book opened up many doors for me in the advocacy space.
The message i would want readers to take away is to see an honest look into the heart and mind of a pws.
Hi Paul,
your journey is incredible and so diverse! It’s inspiring to see how you’ve woven together so many different fields, from music to speech-language pathology, and how you’ve embraced your identity as a PWS. After going through different fluency shaping programs and embracing self-acceptance, what advice would you give to others who are just beginning their own journey with stuttering?
Hi, Airin. Thank you so much for this interesting question, and for the nice compliments!
People who stutter are all different, so the best advice for one person who stutters may not also be the best advice for someone else.
In my own case, I found that my many successful experiences with extended fluent speaking (as a result of intensively practiced fluency shaping techniques) gave me the important realization that long-term fluent speaking was within my grasp. But I also found that I could not maintain this fluency without daily intensive practice (of an hour or more) and careful monitoring of every conversation. Eventually I decided that the efforts required for me to maintain fluency were just too overwhelming. This realization paved the way for me to change course entirely. I had been obsessed with the idea of transforming myself into a fluent person by attending fluency program after fluency program, and fluency refresher after fluency refresher – and then practicing techniques daily and intensively.
But I gave up all that, and found inner peace and satisfaction by simply and calmly accepting myself as a person who happens to stutter, a person with a speech difference. Once I eliminated the pressure on myself to speak fluently, life became so much easier and less stressful. I know that I COULD once again go back to intensive work with fluency shaping techniques, and speak fluently once again – IF I decided that such efforts were important to me, desired, and needed. But I just don’t see the reason for doing so. My life is happy and satisfying as it is. I severely stutter, and I just accept that.
Now going back to your question – what type of therapy would I recommend for someone who stutters? Without knowing more detail about the particular person, it would be difficult to answer, as we who stutter are all so different.
If the person felt relatively comfortable with himself or herself as a person who stutters, and seemed to manage well in life, I would suggest trying out the practice of some fluency techniques, particularly relaxed diaphragmatic breathing. Knowing such techniques could give some tools for reducing stuttering and/or enhancing fluency.
But if the person did not feel comfortable with themselves, or with their current situations and experiences with life, it would be far more important to work on building self-acceptance, self-confidence, reducing avoidances, and maximizing one’s comfort level in enjoying life to the fullest, as a person who happens to have a speech difference. Fluency techniques could be taught later. If the person’s general stress levels were high, I might recommend the practice of relaxing diaphragmatic breathing when alone – as this could really provide some relaxation to the speech mechanism.
It would be important to gauge the mindset of a person who stutters. The question would need to be asked: What does this person need the most? And if self-acceptance was lacking, working on that and building that would be the first priority.
Hi James,
It’s great to see how active you’ve been in raising awareness through your presentations at universities and conferences. I admire how you’ve balanced your advocacy work with enjoying life’s simple pleasures. What inspired you to write Dear World, I Stutter, and how has sharing your story impacted your own journey with stuttering?
Hi Airin,
Thank you for your kind words! The short answer is i was at a job I didn’t like and was trying to figure out what was next. I thought the book could answer that question.
Sharing my story has impacted my own journey in quite a few ways. One is that it opened up doors for me I don’t think would’ve opened otherwise. At the same time, a lot of people know who I am and that’s positively and negatively impacted both my journey with stuttering and my own personal journey.
Hi all!
I am a graduate student working on my masters in Speech Pathology. What was the most impactful thing that someone has done for you or said to you as a person who stutters?
Hi Chloe
The most negative thing that people told me, apart from the bullying, was saying I wasn’t good enough. Telling me not to study as I wouldn’t get a job anyway. And to rather be silent instead of bring shame to me and the people around me. Words matter.
The most positive impact was people telling me I am good enough, just the way I am. My first boyfriend telling me he like the whole me. My first boss saying I was just as good as him. My first meeting with other PWS when I was… 27! Being asked to give an autograph at a school where I just talked about stuttering. 😉
Have a read at my paper for this year’s ISAD online conference.
https://isad.live/isad-2024/papers-presented-by/stories-and-experiences-with-stuttering-by-pws/a-voice-worth-listening-to-anita-blom
Keep them talking
Anita
Hello!
As an SLP Grad Student. I’ve been reading through the articles and posts here, and they’ve really opened my eyes to the challenges people who stutter face in society. I’m curious, how do you think society could better support individuals who stutter? For instance, I read discussions about certain careers having policies that can feel biased or even discriminatory, such as strict quotas that might disadvantage those who stutter. Have any of you encountered similar situations? What strategies do you think could help improve support and understanding in these contexts, both in the workfield and out?
Hi Maci
I’m happy you find the conference an eye-opener. We’re happy to add to your knowledge on stuttering directly from the experiences of PWS. 🙂
I was told I shouldn’t study as I wouldn’t get a job anyway because of my stutter. I was told I couldn’t be a vet, a cruise host or any of the occupations I was looking into when I was young. When I applied to get accepted to the police academy I got through all the tests, where others failed. Until I met a psychologist, and the first thing he said was “You realize that offenders won’t take you seriously, so we can’t accept you”. However, I got jobs because of my skills and my personality, and was even hand-picked to several of them. I also applied for jobs where they denied me, but let me come to the interview, as my cv, where I also told about my stuttering, made them curious.
Some PWS hate the phone, others love it, and are even fluent on the phone. I will never be a salesperson, simply because I’m not that type of person. So what I would wish for society to understand is to not judge me simply because I stutter. When I apply for a job, I believe I can do the job. So check me out first. As a PWS who’s had to struggle, I’m used to work hard, fight to be better than others to balance my stutter in the competition. Many of us have great skills and personalities BECAUSE they stutter, and have a lot to add to the workplace. So hear us out. We’re all different. Don’t judge us on forhand. If we write in our CV that we stutter, that’s a positive sign. A sign of self-consciousness, openness, stubbornness.
Please have a search for 50 Million Voices, who give opportunities for PWS to practice a job interview with real employers. Both PWS and employers learn much from this.
As I use to say “Sure I stutter, what are you good at?”. Try us. We might be the baddass you’ve been looking for. 😉
Keep them talking
Anita
Hi James,
I am a speech language pathology graduate student! What advice would you give to someone who is struggling to accept their own stutter?
Hi,
My main piece of advice would be to validate their journey. They’ll accept their stutter in their own time and in their own way. In the mean time, it’s important to remind them that stuttering is just one small part of their story and not their entire story.
Hi Ciel!
I am currently a grad student studying to become a speech-language pathologist, and I noticed that you mentioned not pursuing therapy due to a lack of rapport with the SLPs. As a future clinician, I am really interested in what we can do to build better rapport with clients. From your experience, what are some ways SLPs can foster stronger connections and create a more comfortable environment for individuals with cluttering or stuttering?
Thanks for the question! I have to ponder this a bit. Coming back later today with a proper answer!😊
Hi Paul!
I am a grad student studying to become an SLP, and I am really inspired by your journey with stuttering and your shift toward self-acceptance after decades of fluency shaping programs. As someone who has been deeply involved in the stuttering community for so long, what advice would you give to both SLPs and individuals who stutter about balancing fluency goals with self-acceptance, and how can we support that balance in therapy?
Hi, Elisa, and thank you for these interesting questions!
Each person who stutters is different, and I believe that tbe chosen therapeutic approach (or approaches) should vary from individual to individual.
I would recommend a preliminary diagnostic session, and discuss with the client the different therapeutic options that could be pursued.
If the person felt relatively comfortable with himself or herself as a person who stutters, and seemed to manage well in life, I would suggest trying out the practice of some fluency techniques, particularly relaxed diaphragmatic breathing. Knowing such techniques could give some tools for reducing stuttering and/or enhancing fluency.
But if the person did not feel comfortable with themselves, or with their current situations and experiences with life, it would be far more important to work on building self-acceptance, self-confidence, reducing avoidances, and maximizing one’s comfort level in enjoying life to the fullest, as a person who happens to have a speech difference. Fluency techniques could be taught later. If the person’s general stress levels were high, I might recommend the practice of relaxing diaphragmatic breathing when alone – as this could really provide some relaxation to the speech mechanism.
It would be important to gauge the mindset of a person who stutters. The question would need to be asked: What does this person need the most? And if self-acceptance was lacking, working on that and building that would be the first priority.
Self-acceptance and fluency techniques could also go hand-in-hand. One can teach techniques, and also simultaneously work on self-confidence, reduction of avoidances, and desensitization. The concepts need not be exclusive. When techniques are learned, practiced, and mastered, self-confidence can go up and situational avoidance can go down. Likewise, when self-confidence is increased, this can make learning and mastering fluency techniques much easier.
But I would give the initial priority to self-acceptance, as I think that is of greater importance.
SLP’s can support the balance between fluency techniques and self-acceptance by becoming closely familiar with various techniques, and also gaining skills with helping clients develop self-acceptance. If SLP’s feel comfortable with both approaches, it will be much easier to combine these approaches, or switch back and forth – whatever seems most appropriate for a particular person who stutters, at a particular time.
I know this is all vague, but there really is no set answer that applies to all.
Best of luck in your career!
Hi James!
I am currently a graduate student studying speech and language. From your experiences and advocacy work, what advice would you give to clinicians on helping clients embrace their stutter while also working on their communication goals.
Hi,
Allow them to set their own goals. It might not be to stutter every 3 out of 10 words as opposed to stuttering on 6 out of every 10 words. It could be to order thru a drive thru, use the phone without a script, participate in class discussions, etc. By focusing on being comfortable doing the everyday things in life, the chances of them embracing their stutter only increases.
Hello Paul!
I’m currently a graduate student studying speech-language pathology. With your experience as both a speech-language pathologist and a person who stutters, what advice would you offer to future clinicians on balancing fluency-focused therapy with encouraging self-acceptance in clients?
Thank you for the question!
I should first clarify that I’m not a professional speech-language pathologist. Yes, I have a graduate education in speech-language pathology, but I also have doctoral education in music and a degree in mathematics. My main current work is in social services for special needs, not quite speech-language pathology, but close.
Each person who stutters is different, and I believe that tbe chosen therapeutic approach (or approaches) should vary from individual to individual.
I would recommend a preliminary diagnostic session, and discuss with the client the different therapeutic options that could be pursued.
If the person felt relatively comfortable with himself or herself as a person who stutters, and seemed to manage well in life, I would suggest trying out the practice of some fluency techniques, particularly relaxed diaphragmatic breathing. Knowing such techniques could give some tools for reducing stuttering and/or enhancing fluency.
But if the person did not feel comfortable with themselves, or with their current situations and experiences with life, it would be far more important to work on building self-acceptance, self-confidence, reducing avoidances, and maximizing one’s comfort level in enjoying life to the fullest, as a person who happens to have a speech difference. Fluency techniques could be taught later. If the person’s general stress levels were high, I might recommend the practice of relaxing diaphragmatic breathing when alone – as this could really provide some relaxation to the speech mechanism.
It would be important to gauge the mindset of a person who stutters. The question would need to be asked: What does this person need the most? And if self-acceptance was lacking, working on that and building that would be the first priority.
Self-acceptance and fluency techniques could also go hand-in-hand. One can teach techniques, and also simultaneously work on self-confidence, reduction of avoidances, and desensitization. The concepts need not be exclusive. When techniques are learned, practiced, and mastered, self-confidence can go up and situational avoidance can go down. Likewise, when self-confidence is increased, this can make learning and mastering fluency techniques much easier.
But I would give the initial priority to self-acceptance, as I think that is of greater importance.
There really is no set answer that applies to all.
Best of luck in your career!
Hello Anita!
My name is Emma and I am graduate student studying to become an SLP. As a person who works passionately towards promoting awareness and advocacy, I was curious about your thoughts about social supports. Did you have positive social support experiences that had significance in your life (such as a speech therapist, family member, group, etc.) What advice would you give to speech therapists for how to best provide support for various goals and experiences that each person has?
Hi Emma and thank you for your question. And for promoting awareness and advocacy, which we so desperately need are allies to help us with.
I had a lot of social support when I was a child. But when it came to stuttering, I had none whatsoever. I was told stuttering was wrong, and life would be meaningless as I was a failure, I was bullied, until I tried to give up. I was bullied by students and teachers. I was told not to persue further studies as I wouldn’t get a job anyway. I got high grades for written exams, but low grades for oral exams, as i couldn’t get the words out and they though I hadn’t studied. When I told my teacher I was bullied she told me to just stop stuttering. In my family stuttering was “wrong”, so I was not sent to speech therapy until in my teens. And to not go into too much details, two had hurt me physically and emotionally, others were so focussed on fluency, they ignored I was a human being. So I’m so happy to see that today’s SLPs are so much better, understanding, stepping outside the box and outside their comfort zones. As it’s a tough search to find something that fits that very client, but very rewarding when you do. 🙂
Things changed when I met the right people. A boss who told me I was doing a good job. A boyfriend who told me I was a great person. At the age of 27… I found a broschure about the stuttering support group. Wait, what?? Are there others?? From that moment on I never stopped talking and found my self worth. And I started camps for children and for young people who stutter, for them to found out they are not alone and give peer support.
The short answer is: ask questions and listen, before you even think of starting therapy. As we all bring different things to the table. Background, culture, religion, family, age, gender, and our many different experiences. This goes for clients of all ages. You may found out that not all clients come for total fluency. Some want answers, some want a family member to know more, some want some tools to speak with less tension, some want to practice job interviews, some are there because the parents want the child to be fluent while the child just wants to speak freely, some want help with self-esteem, etc etc. When you get a picture of the client and what they want, you can start offering a smörgåsbord. This can be all from speech training to refer to relaxation, mindfulness, NLP, speaking circles, theatre, art, presentation techniques, yoga, swimming, singing, and maybe even a combination.
Also show the way to the stuttering community. This group is not instead of, but can be a great addition to therapy. People who walked the walk and literally talked the talk. They can help with exercises, help to speak in school or at the workplace, support outside the therapy room, etc. They often have gatherings, camps and some even have virtual meetups, even international ones, with meeting friends and simply playing games together.
With acceptance being the safety net, you can start the journey of practice, challenging yourself, and go for your dreams. Acceptance doesn’t mean you’re done. It means you catch your breath and get ready for the next step, whatever that step may be.
And help me to find my true self, and my self-worth. Show me what I’m good at, and that stuttering is not bad and fluency good, but that stuttering just IS. And that it’s not up to me to make my listener happy, but maybe instead up to the listener to simply… listen. Help me to see there’s more in life then fluency. And that I’m good enough either way. But to also help me to find tools that fit me and my stutter, ways to explain to others what stuttering is, ways to meet bullies and other people not getting it. Ways to speak to my teachers. And show me the way to stutter camps, where I can be me, speak freely, without any therapy, and where my parents can come and speak with adult PWS. As the more we understand, the more we feel good enough, the more we lose the shame. So be a friend. 🙂
Most of these advices can work with both adults and children. With children however, make sure you listen to the child and not just to the parents, as they can have different goals, and the child might tell you what s/he thinks others want to hear. So have them both together and seperately. Also group meetings are good, to show they are not alone, and do exercises together, the same for parents.
Lastly: stop the counting syllables. Just because someone stutters less, doesn’t mean things are going great. It can also mean the iceberg is getting under the surface, and thus way harder to notice, and to treat. So listen not only with your ears, but also with your gut, to what’s not been said.
Sounds tricky? I promise you that, as soon as you gain your client’s trust, you’ll have an exiting road ahead, walking and working together, sharing ups and downs, and enjoy the progress, whatever this word includes for that very client.
Keep them talking
Anita
Anita,
I love how much thought you put into your reply here, it is truly helpful in learning how I might be able to support someone who stutters as a future SLP as well. I just wanted to ask you about something specific that you mention, and that’s on how we can promote PWS getting connected with one another earlier in life than in adult-life like you did! Especially for SLPs who work in a school, do you think some sort of schoolwide education program would be helpful as well? Let me know what you think!!
Thank you in advance!
You’re so right, Bethrose. I too wish there would be a schoolwide education program. Especially in countries where it’s still OK to hit kids who stutter, simply because they… stutter… Instead of encouraging them. Schools not always find CWS, as we’re good at hiding. I lways ask teachers if they have CWS in their class, and most of the time they say NO. But when I’ve spoken and tell them I didn’t have friends, kids raise their hands saying “I stutter too so I can be your friend”. When I ask the teacher afterwards many say “Yes, I knew that, but that’s not a problem”. “Not a problem to whom? Did you ask the student?” “Well… no… but I assumed… as s/he never says something about it…” And a CWS who doesn’t speak, well, what’s their problem, right? Wrong! The silent kids, the kids who use their frustrations in a physical way, talk to them, as they might stutter, but are hiding it. I also keep meeting teachers, and even other people who work with CWS… who “help” them by singing. So, would you sing when ordering something from the shop?? The cost of speech therapy (or any other therapy that can help the child) can be too expensive for a parent, so there should be programs to help them. It’s cheaper to help a child, than to wait until they are adults, and have lots of layers added to the original issue. Also parents sometimes deny their child stutters, so that teachers cannot get help. And that’s where support groups come in. National and local stuttering organisations and support groups, but also international, such as Stamily, who organise meetups and camps. To feel you’re not alone can be life-saving! Also for parents, who often think it’s their fault. At these camps they can speak with other parents, with adults who stutter, with SLPs, and get the knowledge, the tools and the friendship to understand and support their child and let go of the guilt. For SLPs in school I’d say: invite an adult who stutters (someone who does audibly stutter and who has a positive self-image) to speak with the teachers and the children. Maybe the CWS himself would like to join in. I like to make stuttering cool, by offering buttons, but only to the CWS, talk about these fun camps, about the ISAD being my day to party, etc, and I even got to give autographs. 😉 Helping the child also means helping the people around the child to understand and support. It takes a village… 😉
Keep them talking
Anita
Hi Andrea! My name is Alyssa and I am currently in grad school to become an SLP, and we are currently learning about fluency. I think it is really awesome that you were able to join an international stuttering community. What are some ways that the community has helped you the most? Also, did you have any other support systems such as a speech therapist or anyone else? As a speech therapist to be, I want to be able to give the best support system for my future clients.
Hello Alyssa,
The community changed everything for me. As a child I had a speech therapist (a bit of an old school one) who taught me how to hide my stuttering, and the community gave me new perspectives and ideas about my condition. In addition, I found support, friendship, affection.
It is important for me to separate these two dimensions: I do not ask for affection/friendship from my speech therapist, and I do not ask for therapy from my friends in the community. The two are obviously complementary and I have a wonderful relationship with my speech therapist… But the type of support I (personally) look for in a therapist is more psychological and professional: how to handle certain situations, what goals to set for myself, how to stop avoiding and running away, etc.
I hope I answered your question!
Andrea
Hi!
I am a current graduate SLP student, and I have been curious on how largely culture impacts how people/strangers interact with people who stutter. In my experience, I grew up in a very progressive area, and have only observed positive interactions with my close friend who is a PWS, although I have also heard stories of bullying through class and reading people’s journeys on this site. I would love the perspective of a PWS on this topic, especially from someone who is well travelled!
Thank you!
Hi Bethrose
There can be many reasons why PWS can have negative experiences and had to face bullies. It can be because of the culture (in some cultures stuttering is so “wrong” you can even hit kids who stutter), religion (some parents are told they are punished with a CWS for their mistakes, a PWS is posessed by the devil or be God, etc, as in my case), other people’s experiences (kids who bully will always find someone to bully, and it might just happen to be you), a parent who thinks it helps to push the child to fluency by “tough love” (as in my case), a teacher who’s angry at a parent (also in my case), and many other reasons. I believe the best way is to both address the bullies, and the parents and teachers to notice the bullying, as it sometimes is a silent version (as in my case), but to also strengthen the PWS. To work on his self-esteem and see he’s good enough. To give the tools and the words to meet bullies, through understanding it’s them, not you, but to also face them with pride “You can mimick me as much as you want, but you’ll never be as good as I am at stuttering”. “You can’t speak!” “I sure can, but you can’t listen.” To wear shirts and buttons, preferably funny ones, check out Stuttering is cool, and my own quote Sure I stutter, what are you good at”. And to tell, or ask the teacher/parents to talk about stuttering. As bullying often comes out of lack of knowledge. Or, as in my case, tattoo on your arm “Good enough” to remind yourself, and others, to just acceot me as I am. 😉
Keep them talking
Anita
Hi all!
My name is Jordan. I am a current SLP graduate student taking a fluency course. I was wondering what the most impactful statement a speech therapist said to you that changed the way that you thought about your stutter? Positive or negative.
Hi Jordan,
Quick and simple (but true) answer: that stuttering was ok, and that I could achieve my goals even without being fluent.
Andrea
What a great question, Jordan!
Negative: Others are right. It’s your fault you stutter, as you don’t want to be fluent, and just want attention
Positive: You have the right to stutter so don’t let anyone silence you.
Words matter.
Keep them talking
Anita
Hi Paul!
My name is Jordan. I am currently studying to become an SLP. As you have experienced extended periods of fluency and other periods of times where you speech wasn’t as fluent, how did you deal with this emotionally across your journey and come to a state of acceptance of yourself? Was there anyone that helped you the most during your journey or guided you along your journey? Thank you!
Hi, Jordan, and thank you for these interesting questions!
During the periods when I was experiencing much fluency, due to intensively practiced fluency shaping techniques, I had to deal with various unsettling issues. Although I was excited to be able to speak fluently, there was some discomfort.
During my best periods, I often wondered if the fluency would truly be permanent (as was often claimed by the institute that developed the techniques), and if not, would the people I was then speaking fluently to then hear my severe stuttering? Some of the people who I then knew had never heard me stutter.
There were also periodic relapses. Sometimes people would hear me speak perfectly fluent on one day, and very disfluently on another day. How could I explain these occurrences? It was difficult! If I was very fluent one day and very disfluent the next day, or the reverse, people may wonder: What in the world has happened?
Because of this, I started explaining to people who I was meeting for the first time, if I was speaking fluently, that my fluency was due to intensively practiced special techniques, and that I was a person with a severe stuttering disorder.
I came to a state of acceptance after about 25 years of on-again off-again cycles of fluency from well-practiced techniques, and relapses when the fluency periods fell apart. I had found out through experience that unless I practiced very intensively and daily (an hour or more of practice each day), and carefully monitored every conversation for techniques, my fluency just could not maintain itself.
Eventually I just decided I had enough of all this, and simply and calmly accepted myself as a person who happens to stutter, a person with a speech difference.
My journey to self-acceptance began on one particular day back in 2000, on a day I will never forget. I was living in Massachusetts as a 45-year-old bachelor; and about a month earlier, I had met a fluent woman from Norway at an early stuttering-related website. Liv had a mysterious interest in the disorder of stuttering, and in people who stutter. She had also done reading about stuttering, and was knowledgeble about the subject. She came to the site to correspond with people who stutter. I had placed a little ad about myself, and she found me.
We had been in daily E-mail correspondence for about a month when it was time for our first phone call.
Of course, Liv knew from the very beginning that I stuttered. Still, I wanted to make an excellent first impression. So I practiced my fluency shaping techniques very intensively for over an hour. Then for added insurance, I used a Delayed Auditory Feedback (DAF) device attached to my landline phone.
For a few minutes, I spoke very fluently – but I guess somewhat robotically (DAF sometimes has that effect.)
Suddenly, Liv got suspicious.
“Are you using DAF?” she asked me. Her knowledge of stuttering and devices for stuttering was such that she recognized a DAF style to my speech. I answered yes, thinking she would be pleased.
Her next comment surprised me.
“TURN THAT DAMN THING OFF!” she demanded. “I want to hear YOUR OWN voice, NOT your DAF voice!”
And so I turned off the DAF. Within a few minutes, I was having some disfluencies. But that was perfectly fine with Liv. The expression in my speech was now very natural. There were disfluencies, but I had natural expression – and that was exactly what Liv wanted.
That was the beginning of my self-acceptance journey. I now realized that there were more important things than always going after maximum fluency. Fluency did not have to be the primary goal of speaking.
I now began to accept myself as a person who happens to stutter, a person with a speech difference. And life became so much more pleasant, and less pressured.
To follow up, a few months later, Liv flew to the U.S. to meet me. We were engaged a week later. Four months later, I moved to Norway. We were married 10 days after I arrived.
We have now been married 24 years.
Norway is a country with a high sense of equality of people, and full acceptance of people with disabilities, disorders, and differences. For people who stutter, it is a wonderful place to live. Society is very accepting of people who are different.
This accelerated the progress in my new journey as a person who just happens to have a fluency disorder. And for me, that is that.
Hi Andrea, my name is Caleigh! I am currently in grad school studying to become an SLP. After reading your post, I am intrigued as to what inspired you to become so active in the international stuttering community, and how has it impacted your teaching and personal life?
Hi Emmanuel, my name is Caleigh! I am currently in grad school studying to become an SLP. I was wondering what motivated you to become an advocate for Persons Who Stutter? How do you foresee the future of stuttering awareness in Africa?
Hi Andrea,
My name is Caleigh! I am a student at Thiel College located in Pennsylvania and currently studying to become a Speech-Language Pathologist. Are there any philosophical concepts helped you understand or accept your stutter in a new way?
Hi Ciel,
My name is Caleigh! I am a student at Thiel College located in Pennsylvania and currently studying to become a Speech-Language Pathologist. Can you go into more detail about the wrong chemistry with the SLP’s involved in your therapy? What did your sessions look like when you were seeing an SLP. What could they have done different?
Looking forward to hearing back from you!
Caleigh