AnnikaAbout the Author:

Annika is 18 years old, stutters and clutters. She is a high school graduate.

Since she was three, it has influenced her life and it makes her part of the person she is today. It has both shaped her personality, changed her view on life and influenced the way she deals with other people.

I am Annika, 18 years old and I stutter and I clutter. Since I was three, it has influenced my whole life and it makes me part of the person I am today. Both have shaped my personality, changed my view of life and influenced the way I deal with other people.

Over the years it was always different. Sometimes I stuttered more, sometimes I cluttered more. Depending on age and situation, it changed. I started going to speech therapy when I was 4 years old. Back then I came to Manon Spruit, SLP, whom I still go to today. During In my life I was with her in therapy again and again, with breaks in between. With her I learned to accept my speaking and she helped me the most to deal with it and to give me confidence.

In my elementary school time I was twice by myself alone in therapy for several weeks. It was about getting rid of my stuttering and making my speaking “normal”. I was not allowed to speak the way I speak anymore, but with extreme techniques to suppress the stuttering. After 4 weeks in this therapy I had to keep using these techniques and give a presentation about it and about stuttering in general at school. Then I had some negative experiences and got used to not talking about my speaking anymore, except with my parents. So when I switched from elementary school to high school, my classmates didn’t know about it anymore, only my class teacher. The oral grades became stricter and were graded more and I noticed how much harder my speaking could make everything. In 5th/6th grade everything still worked well and it was okay. Then in puberty my speaking changed again. It became faster, more chaotic and for me harder and harder to control. I wanted and still want to always speak slowly and clearly, but sometimes it doesn’t work and it still frustrates me today. In 7th grade, because of the pandemic with Corona, homeschooling also started. For almost 2 years I was no longer directly confronted with speaking, no school, hardly any contacts. And in the few video conferences we had it was all much easier for me than in face-to-face classes.

When school started again, in personpresence, it was a strong change. I withdrew more and more and often lacked the courage to raise my hand. Presentations and spontaneous contributions caused me extreme pressure and the worst was at the beginning of upper secondary school. The oral grades now count more than half and suddenly it is about my Abitur and about my future. The teachers built up extreme pressure from the start of grade 11 and I could hardly stand it. Every lesson I wanted to participate in and the more often I didn’t manage, the worse I felt. Then I started speech therapy again with Manon and talked with my teachers and then it became bearable again. When I managed to raise my hand, I was proud of myself, but the pressure was still there, all the time, every single lesson. In the next school year in grade 12 it started again, the pressure became bigger, the grades stricter and I broke down because of it.

I realized that I couldn’t go on like this and even thought about dropping out of the Abitur. But I decided that my fear and my speaking should not determine me like that. That’s why I chose the step and applied for a disadvantage compensation. With that I wanted to take the pressure off and prevent my Abitur and my grade average from being too influenced by my speaking. From that point on my teachers knew and it became easier. I can hand in some tasks to improve my oral grade and my written exams count proportionally more than my oral performance.

But despite this improvement I will keep these feelings. The teacher asks a question, I know the answer, but I can’t raise my hand. I don’t have the certainty, not the security, whether I can say it slowly, without stuttering. I know in theory how I can control it, but not whether it works atin this moment. I rehearse the answer so long in my head and think if there is any word I cannot say and then it is too late. I listen to the other student and know I could never have said it like her. My answer would have been short and concise and I would have been afraid that the teacher would ask more. I know my Abitur grade would be better without my oral grades. Never in my life have I been better orally than in writing, because my speaking always accompanied me. Sometimes I practice a presentation longer and plan every pause and emphasis to present it perfectly than others even prepare their presentation at all. I think about a presentation weeks before and the feelings the day before I cannot even describe.

But I have learned that this is okay. I have come so far, dared so much and overcome so many things. I have started talking about my speaking again and about the burden of feelings that I carried with me for so long. The only people I could confide in were my parents and my speech therapist Manon. Many tears were shed and for a long time I could only talk about it like this. DuringIn these holidays I helped at a camp Dream. Speak. Live Germany. Here children learn that it is completely okay and normal to stutter and that nobody has to be ashamed of for it. I had to learn that too, and still have to. In this camp I spoke about my speaking and my experiences in front of several people for the first time and I managed to talk about it.

Now I am writing here because I want to keep talking about it. Hardly anyone can really understand these feelings, m. Meeting new people and having to pay so much attention to speaking. At the family table, at meals or in the most everyday things being told you have to speak differently, calmer, slower, more fluent, otherwise people don’t understand you. Not being able to express yourself without concentrating first or still having to control your speaking when you already sat 10 hours in school before. Often I don’t notice how fast I speak and when I hear myself on videos, negative feelings come up. When I am nervous and my heart beats because I have to say something in front of many people and the uncertainty is inside me if I can get it out in this nervousness right now. And also the uncertainty afterwards, how I spoke. Even if it felt good, it may have been too fast and I will probably never have full control, even if I wish it so much.

70 to 80 million people stutter and here we can connect, understand each other and find our own feelings and thoughts again. It is normal and completely okay to stutter and we all should not let it stop us, but do exactly what our heart beats for and what we always wanted in our whole life.

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Comments

My Life With Stuttering And Cluttering – Annika — 21 Comments

  1. Dear Annika,

    Thank you for being vulnerable, sharing your story and articulating so beautifully the challenges in talking openly about stuttering and cluttering and all the feelings that come up for you. It’s really lovely to see that you’ve discovered that it is no shame in stuttering and cluttering, you’re advocating for yourself and doing the things your hear beats for. I really hope you’re proud of yourself, for all the things you are doing and all the things I know you’ll go on to do, Nic

    • Thank you very much, receiving feedback like this means a lot to me. It makes it easier for me to open up to others and stand by my convictions. 🫶Annika

  2. Hi Annika, it should be uneasy for you to live with stuttering and cluttering. Your sharing brings back my painful high school memory of having oral exams, which was when my parents (advised by teacher) agreed to consult speech therapist. In both Chinese and English exams that contained oral papers, I studied hard to get better grade in other papers. When I heard some classmates said, oral exam was the easiest for them, it made me feel inferior.

    Happy to know that you find your companion and resources in the “Dream. Speak. Live” camp. Even if you face other chanllenges in life, such as job interviews, hope you could be able to bounce back. Looking forward to your updates in future years.

    • It feels really good to be understood by people who feel the same way. Thank you for contributing to my story. I have my first job interviews coming up in the next few weeks. I’m nervous, but I’ll let you know how it goes 🫶

  3. Hi Annika!

    Thank you for sharing your experiences and allowing others the opportunity to see from your perspective. I cannot imagine the pressure you felt daily and how it colored everything that you did. I am a speech pathology graduate student, and I would love to know more about your feelings towards speech therapy. Did you enjoy having the same therapist throughout most of your life?

    I hope you are still doing well!

    • Thank you very much for your comment. For me, it was the right decision to return to Manon again and again. During my therapy sessions, I met several other therapists, but none of them were able to help me with my speech as much as Manon did, even on an emotional level. If you have any further questions, please feel free to contact me. Annika🫶

  4. Annika, your story is incredibly powerful and deeply moving. The honesty and strength in the way you describe your journey show so much courage and self-awareness. You’ve turned challenges into understanding, empathy, and advocacy, not only for yourself but for others who stutter and clutter. The way you continue to face fear, find your voice, and help younger children see that speaking differently is completely okay is truly inspiring. You’re a remarkable example of resilience and leadership.

  5. What a powerful thing it is to share one’s story. Thank you, Annika, keep sharing! – Ana Paula Mumy

  6. Hi Annika! My name is Michalla Silvey I am a second year graduate student at Stephen F. Austin State University pursing my Masters in Speech-Language Pathology. I am currently completing my placement in the school setting and working with students who stutter. I really enjoyed reading your paper. Although, I do not stutter or clutter, I truly appreciate you writing so openly for others that do. I think it’s important to listen to and learn from others who experiences these challenges in their every day life. As I continue to go through my journey in hopes to become a speech therapist I wanted to know what advice would you give someone who stutters and/or clutters? I was a very shy person growing up and as I’ve gotten older I always think back to the advice I would give someone else who is uncomfortable to be themselves like I was. I would love to hear your perspective and with your permission, share your thoughts with a high school student I work with who stutters, to help bring them encouragement in their own journey. Thank you so much for sharing your story helping future speech therapists, like me, gain more insight and to better support and encourage people who stutter and clutter.

    Thank you,
    Michalla Silvey

    • Thank you very much for your contribution. Sometimes I think that I myself could use some advice in many situations, telling me how to deal with things. But now I have people who help me, and I want to help others in the same way. My advice would be that there is always a solution, no matter how hopeless the situation may seem. You should never let yourself get down, because even if you stutter, you can achieve anything in life. It wasn’t long ago that the path seemed hopeless for me, so I hope that in a few years I will have come further, learned more and be able to give even better and more profound advice. 🫶

  7. Hi Annika,

    My name is Meghan, and I am a speech-language pathology graduate student in Texas. It was eye-opening to read your experience with stuttering and cluttering. As a future SLP, I would never want my clients to feel like they had to speak a certain way and that it was not okay to stutter. I am glad that you found a speech therapist who embraced you as you are and helped you to achieve more comfort and confidence in speaking. I can’t imagine the intense pressure you described every time you speak; that must be so exhausting. I think it is amazing that you have found acceptance within yourself and that you are now sharing your knowledge with children who stutter and the entire world. It is so helpful to learn from people who stutter how to best support them, and I will apply what I have learned from your experience in my future practice as a therapist. Thank you for sharing this with us.

    Wishing you all the best,
    Meghan Quinn

    • Thank you very much. Comments like these will always encourage me to continue telling my story, even to those around me, which is the hardest thing for me to do. 🫶

  8. I hear ya, Annika. I’ve been to school twice and have such different experiences, all because of the teachers and the students.

    When I was young (in the NL) I was bullied, told I was a failure and nothing good would come my way, because of my stutter. High grades for written exams, low grades for oral exams, as they thought I hadn’t done my homework. Some teachers even bullied me, made me a laughing stock, or told me not to speak at all, and I was adviced not to study as I wouldn’t get anywhere anyway.

    Years later I wanted to face my demons and went back to school. Fantastic teachers, supportive students, and all my grades were the highest. But not just that, I got a job. As a teacher. And later even teaching teachers. As they believed in me and helped me to do so as well.

    Your story shows such strength, going through all this and coming out of it, but also paying it forward! You are literally a life saver, now to other kids who might have thought they were not good enough, or not worth listening too. You gave them your voice, your story, your hope for the future.

    So please, keep talking, no matter how you sound, as what you say is worth listening too. And feel free to contact me if you want. Manon has my contact details.

    Happy ISAD
    Anita
    “Sure I stutter. What are you good at?” 😉

    • It feels so good to be understood. Your journey is incredibly impressive. I hope I can continue to come out of my shell and not let myself get down. Thank you for your kind words. When I see Manon next week, I will ask her about you. 🫶💗

  9. Hello, Annika! Thank you so much for sharing your journey so openly with the world. I know you are impacting many lives by sharing- and you should be so proud of yourself with how far you have come. When I was your age, I could have really benefited from knowing someone like you- so keep up the reflection, the sharing, and keep talking. Manon is also an amazing human being and I am so glad you have had her as your therapist along the way.

    • Thank you very much. It was difficult for me to open up like this, and I am now all the more delighted to receive so much encouragement from people who understand and support me. Thank you for your kind words. 💓

  10. Hi Annika,
    Wow! Thank you for sharing your experiences at therapy and school so openly. The way you describe the emotional aspects associated with stuttering and cluttering such as constant self-monitoring and the courage it takes to speak up is touching. You have experienced difficult things that no young girl should have to go through, and it is truly inspiring how you remain positive and choose to help others at the Dream. Speak. Live Germany. Communication is about connecting with others and does not have to be “perfect”. You are so brave, and your words will encourage others. Thank you for sharing your story!

  11. Liebe Annika, Your story is so valuable for so many people. I am so glad you shared your story and wrote about it in an open and honest way! You have set an example for many now! Hope to see you in the next Camp Dream. Speak. Live. where you can support all the kids that will learn so much from you!

    -Manon-

  12. Hi Annika, thank you for sharing your story! I am an SLP grad student from Pennsylvania and it’s so nice to hear varying stories of people’s experiences that I can then share with my clients. I love how you go to the same SLP that you did when you were 4 years old! That’s such a special bond and trusting relationship you have. It’s interesting that when you hit puberty, your stuttering changed with that. I had never thought about the possibility of that factor. I hadn’t thought of how the pandemic could’ve benefited you with less opportunities to speak but it was also detrimental when you had to go back to your “normal” everyday at school. I’m proud of you for your growth and strength and determination to be the best version of yourself and I hope you continue with the confidence to speak loud and proud!