Benita S'SouzaAbout the Author:
Benita D’Souza, 24, a full time stammerer, having stammered the majority of my life. I work as a social worker with children and families in the UK.

Hello Everyone! My name is Benita D’Souza. I’m 24 and originally from India, and I have been living in the United Kingdom for the last 3 years. I have struggled with a stutter for the majority of my life. I’ve definitely inherited this beautiful gene from my family because both of my parents stutter, and I have close relatives who stutter too. Throughout my childhood, teenage years, and early adulthood, I felt that my stutter prevented me from fitting in and allowing me to be my authentic self.

Unhealthy early childhood experiences at school, at home, and in society, all related to stuttering, undoubtedly laid the foundation for these core beliefs. I remember how teachers in my school would deliberately choose me to read out a chapter of a book in front of everyone, even though they knew how hard that was for me. Naturally, I would encounter difficulties in such situations, leading to laughter from other students. Instead of making reasonable adjustments for me, my teachers ridiculed me in front of the class, and I felt embarrassed. It was challenging for me to make friends, and even though I often knew the answers in class, I held back and did not raise my hand to avoid further shame and misunderstandings.

Even nowadays and in the UK, stuttering is still often seen as a barrier to communication because the speech is dysfluent and consists of never-ending involuntary blocks, repetitions, prolongations, body movements, etc.

Four years ago, I began my journey to becoming a qualified social worker, and one of my social work professors in India was one of the first people to empathize with me and help me reshape how I view my stammer. After all those years during which I was made to feel like there was something wrong with me, I felt relieved and encouraged, and I began questioning my core beliefs and tried to view my stutter with a smile rather than a frown.

Below are my thoughts that helped me in the last few years to view my stammer as an enrichment to my life rather than a flaw, challenging the beliefs I had grown up with.

What if I saw stuttering as normal rather than abnormal? Could I perhaps view my stuttering as a kind opportunity to transform the way society listens and connects with me? Expecting the listener to stay mindful, calm, and compassionate is crucial in our struggle to express ourselves at our own pace and complete our statements. It is a two-way process.

As a PWS, to be truly heard and listened to is definitely an empowering experience. It acknowledges the value and worth of the blocks, repetitions, prolongations, and words that come out of one’s mouth. We live in a society that’s fast-paced and believes that being fluent is the only way to speak or sound. Maybe we can make an effort to broaden our wisdom and knowledge, and understand that someone who stutters can teach us patience and empathy. It challenges us to slow down and tune into the message rather than getting stuck into how it’s delivered. 

Listening also has the power to change the narrative around stuttering. Instead of seeing it as a flaw or abnormality, we can start to see it as a unique way of speaking that carries its own rhythm, grace, and courage. When we offer a kind space and time to someone who stutters, we are not just hearing their words; we are honouring their courage, effort, and humanity. Saying my first name frequently presents a struggle, a common experience among people with stutter, and leaves us vulnerable in social situations. I recall instances where the individual I came across showed patience and kindness, fostering a sense of respect and understanding in me.

For people with a stutter, knowing that they are being heard and listened to without judgement is incredibly reassuring that it’s okay to stutter. It offers a space for us to be our authentic selves, express ourselves efficiently, and be free from the pressure to conform to the world of fluency. This helps build confidence, reduce anxiety, and foster genuine connections.

Therefore, the next time you engage in a conversation with an individual with a stutter, endeavour to recall the significance of active listening. Allow them to speak at their own pace; listen with your eyes and heart rather than just your ears. As a result, you will realize the profound impact that genuine listening has on both the speaker and yourself.

My journey with my stutter turned out to be a life-changing discovery and an unforeseen realization after viewing my stutter from a lens of active listening.

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Comments

Just Listen! – Benita D’Souza — 40 Comments

  1. Benita, Thank you for sharing your experience with stuttering! Your story is very moving and I think a lot of people with stuttering can relate to your experience. People often feel the need to finish sentences or fill in the words for people who stutter instead of giving them time to say what they wish to express. Also, remarks like “relax” and “slow down” are not constructive and can discourage the individual from participating in conversation. I think most people do not mean to come off as negative as they might not be aware of the effect their words and actions have when they interact with people who stutter. So, it is important to be patient, like you mentioned, and give them the power to use express their thoughts.
    Thank again you for sharing!

    • Thank you Niki Patel for taking the time to go through my expression and I’m also glad that you found it motivating. I think it is very important for the society to start thinking about active listening from the lens of viewing stuttering positively.

      Thanks again 🙂

  2. Thank you for sharing your story, Benita! Really appreciated your insight…“When we offer a kind space and time to someone who stutters, we are not just hearing their words; we are honouring their courage, effort, and humanity…”

    • Thank you Ana Paula Mumy for taking time to go through my expression. I agree with you and also beleive that it is the need of the hour for society to start being aware, that offering space and time for PWS can make a revolutionary impact on listeners and receivers end.

      Thanks again 🙂

  3. Hi Benita, Thank you so much for sharing your experiences that shaped you. I wish the educational systems would be more aware and inclusive of people that stutter. I’m so sorry for what your teachers put you through. Teachers have an obligation to provide a positive learning environment where all learners can thrive and should be taken seriously.

    I love how you describe the communication exchange as a two-way process, where the listener is patient and calm and speaker can communicate at their own pace, well said! I think this truly symbolizes the power of listening at its best when listeners provide speakers with the opportunity to speak at their pace. To add to what you beautifully described, it does takes courage to speak in a world that has not yet adapted to all speakers. Thank you for sharing your perspective.

    • Thank you Yohana Angulo for reading my expression. I am glad my article helped you with new insights regarding active listening.

      Thank you again 🙂

  4. Hi Benita,

    Wow, congratulations on your journey! I would love to read only positive things about teachers, but probably, like everybody else, they are an expression of the world in which we live.

    However, I am glad that a professor helped you on your path, it restores my faith in my profession! It would be nice to find ways to teach students and teachers (especially, lol) to listen actively.

    Andrea

    • Thank you Andrea for reading my expression. I think it is very important for teachers ( one of the important professions) to be educated with importance of active listening and empathy so that children with a stammer can feel empowered the way I came across it.

      Thanks again 😊

  5. Hey Benita!

    I really enjoyed reading your personal statement. The part that really struck a cord with me was the part about teachers making you read allowed and knowing how you would be treated by your peers. I think it is important to shade light on these experiences for those to learn from and do better.

    • Thank you Morgan for taking out time to read my expression. I agree that teachers need to be more enlightened with how to offer safe and non judgemental space to children with additional needs/ uniqueness and to be aware of the possible consequences of how the child with additional needs could be treated by peers.
      Thanks again 🙂

  6. Hey Benita!

    I really enjoyed reading your personal statement. The section of your post that really stuck with me was the part about you not wanting to conform to the world of fluency. Before reading that sentence, I never viewed the fluency and disfluency worlds as separate, but I agree and can now see why you may feel that way. I think that your post is so powerful, and I respect the courage you have to share our story. It is so important for everyone in the world to give everyone the chance to share their thoughts/ideas and allow them to be their authentic selves. The world should do better at being inclusive to everybody!

    • Hello littlejotl, thank you for reading my expression. I am glad that it resonated with you and I hope for a more inclusive and understanding society.

      Thanks again 😊

  7. Benita,
    Your story was incredibly powerful and inspiring! Your courage and resilience in your personal experiences with stuttering are truly admirable. Your journey is a testament for the ability to overcome adversity and find strength in unique challenges.
    I was moved by your emphasis on the importance of active listening and empathy. Your experiences highlight the societal need for greater understanding and acceptance of individuals who stutter. By sharing your story, you’re not only raising awareness but also empowering others who may be facing similar challenges. Your perspective on stuttering as an enrichment rather than a flaw is a valuable one. It challenges the societal norms that often stigmatize individuals with speech impairments. Your journey is a reminder that everyone’s communication style is unique, and we should celebrate diversity in all its forms. Thank you for sharing your story with us!

    Emma

  8. Benita, your journey of reframing your stutter from a source of shame to a point of empowerment is truly inspiring! How do you think society can better support individuals with speech differences to create more inclusive environments? Additionally, what specific changes have you noticed in your interactions since adopting this new perspective?

    • The medical professionals, educational and research institutes should focus a bit more on social model of disability rather than medical model of disability. Instead of trying to fix or cure stuttering, the society can widen their knowledge on how people with stutter can be supported by listening and acknowledging the lived experiences and their needs.

      And since adopting this civilized perspective I have been able to emphatize with people with additional needs, educate people at work about stuttering and challenge the stigma about stuttering in the society.

      Thank you. 😊

  9. Hi Benita. What a thoughtful read. I love how you challenge the perception of stuttering as a flaw and instead see it as a unique and enriching way of communicating. Your emphasis on active, patient listening is a good reminder that true connection goes beyond fluency. Thank you for sharing.

    • Hello Gina, thank you for reading my expression. Active listening is indeed a two way process and there is definitely a world beyond fluency that has to be looked at and understood well.

      Thank you again😊

  10. Hi Benita!
    I enjoyed reading this so much! You are so strong and this is truly a beautiful post. I really enjoyed how you used the term ‘beautiful gene’ in the beginning. It is a testament to the progress you have made on your journey. It is such a shame to hear that you were even ridiculed by your teachers growing up, as it is their job to support you. I loved how you spoke about your social work professor. It showed me that one person really can have a large impact on your experience. I am a speech-language pathology graduate student currently, and this post is a great learning lesson/reminder for me to be that person in others’ lives too!

    • Thank you Alexis Moore for reading my expression and for the warm compliments. Happy to know that my post offered some interesting insights on how to support PWS. Best wishes on your journey as a SLP graduate.

      Thanks again. 😊

  11. Hi Benita! I love how you talk about stuttering as a beautiful gene. I think this statement was really powerful. I also love these challenging thoughts that you presented! Is there anything that anyone did for you or said to you while you were growing up that has stuck with you as an adult to help create these more positive outlooks on stutter? Thank you for sharing!!

    • Hi Chloe Carlson. Thank you for reading my expression. To be honest, I don’t think I was told anything positive or supporting regarding my stammer throughout my childhood. One of the major thing that keeps me going through the good and difficult days with my speech is “it is completely fine to stammer”.

      Thanks again. 😊

  12. Benita,

    Thanks for sharing your experience and journey of stuttering. I really enjoy how you acknowledge that stuttering doesn’t have to be viewed as an abnormality. I agree and believe that it can be empowering to change our mindset on how we view stuttering. Who decided it’s an abnormal way of speaking. I appreciate how you suggest shifting our mindset to view stuttering as a unique way of speaking and embracing the varying fluencies instead of seeing them as flaws.

    • Thank you Maci Abila for reading my expression and happy to know that you resonate with my perspective regarding stuttering and how PWS need to be supported.

      Thanks again. 😊

  13. Hi Benita!

    I am an SLP graduate student and I thought your post was very insightful as someone who will work with people who stutter in my future practice. I really enjoyed reading about how you were able to reframe your thinking about your own stutter, as it highlights the importance of fostering a positive mindset and self-acceptance, which I aim to instill in my clients as well. I could tell that you had a positive mindset with you began your post by referring to stuttering as a “beautiful gene”. I think this is the perfect example of how language can shape our perceptions and foster self-acceptance. Embracing such a perspective can empower others to view their unique communication styles in a more positive light.

    • Hi Torisengelmann. Thank you for reading my expression and for all the encouragement. I am so glad to know that, you as a SLP resonated with my post on how changing the narrative regarding stuttering can be beneficial. Instead of trying to “fix or cure stammering” it is important to acknowledge that PWS is not broken and need not be fixed.

      Thanks again. 😊

  14. Hi Benita! I am a SLP grad student and I loved reading about your story! I really liked how you included the part about listening being part of reframing society’s narrative. It was really interesting that you challenged the norms and introduced the idea of celebrating stuttering! Looking at dysfluencies as unique and just another characteristic of someone’s personality is something we should strive for. With this, what are your thoughts on how stuttering is portrayed in pop culture? I know in the past it used to be used as a comedic bit, but do you think it has improved to be more like how you are hoping it will be?

    • Hi Amused. Thank you for reading my expression and I am glad that changing the narrative around stammering resonated with you.

      Regarding pop culture, I don’t think that there is much of a difference in how stammering is portrayed there. It is still portrayed as comedic, someone who is nervous and anxious and not widely accepted. I think pop culture has a long way to go on how they portray stammering.

      Thanks again. 😊

  15. Hi Benita, we are students of speech therapy at University of Silesia in Katowice. We are privileged that we had an opportunity to read your touching story. We think that it is valuable, so your article became the topic of our assignment. We described your history and everyone in the group was fascinated about the way you talk about stuttering. We admire your courage and determination to pursue your goals and dreams. We believe that you have the power to change community around the world!
    Thanks to you, we learned how to talk to people who stutter. Your history gave us a motivation to acquire knowledge and start to educate society! Never change and continue spreading your energy!
    Magdalena, Iga, Marta

    • Hello Marta, Thank you to you and your team for taking time to read my expression. I’m very happy to know that my article offered valuable insights and it became a part of your assignment. Thank you for the encouragement and the motivation and I will continue to enlighten the society regarding stuttering/stammering.
      Thank you once again😊

  16. Hi Benita!

    Thank you for your post! Your comment about offering a kind space and time to someone who stutters resonated with me. Stuttering is another way of speaking and deserves the same appreciation as any other person’s voice. I hope you continue to advocate for PWS through a such a positive lens!

    Shaniah

    • Thank you Shaniah for reading my expression. I’m glad to hear that active listening and offering a kind space to a PWS resonated with you. Thank you for your wish.

      Thanks again.😊

  17. My dear Benita. Your contagious smile, your warm and engaging personality, your fantastic guts ready to meet the world, I’m so thankful I got to meet all of this, including your trust and your hugs. You not only had your struggles with your speech, but also with a culture. And here you are. Opening your arms to the world. When you speak, I listen. And when I speak I know you listen, not only with your ears but with all of your senses. And that’s what the world needs. As really being listened to is like a big hug. It means being seen, being heard, being acknowledged. You being a social worker is a blessing to all those who need you. Including me.

    Keep talking

    Anita

    Anita

    • Anita, thank you for your warm words. I am so glad that I met you in this life and thanks for all your valuable support, motivation and wisdom you have shared with me You are an inspiration to many and may you continue to bless many life’s:)

      Loads of affection:) see you soon.

      Thanks again. 😊

  18. Hi Benita,

    Thank you so much for sharing your story, your perceptions, and all you have experienced on your journey. This is very insightful for me as an SLP graduate student. I loved hearing about how empowering your journey has been for you. It is disheartening to know that teachers and students treated you the way that they did, and yet, I am so happy to hear you were able to reframe your thinking. When you said that our society is fast-paced and values fluency, this especially resonated with me. People are often rushed to say what it is they have to say, and therefore, this makes it even more difficult for people who stutter. Instead, people need to broaden their perspectives, be more patient and listen to what people who stutter have to say. All forms of communication are valid, and that includes the way you speak! The way you speak is unique to you, and you are awesome! You are inspirational and compassionate – you will make a positive difference with the individuals you will work with as a social worker. We are listening and value all that you have to say!

    Best,
    Mick

    • Thank you Mick for reading my expression and for all the motivation and encouragement.

      Thanks again😊

  19. “When we offer a kind space and time to someone who stutters, we are not just hearing their words; we are honoring their courage, effort, and humanity.” WOW! You wrote a very inspiring essay about the effect that active listening can have on a person who stutters, one that definitely reminds me that we must all make space for each other during our interactions. Wonderful job!

  20. Hi Benita, thank you so for sharing your personal and insightful journey. As a speech-language pathology graduate student, I found your perspective to be enlightening. You highlighted that empathy and genuine listening are a big part of validating you and what you have to say being a PWS. I enjoyed reading how your views shifted on stuttering by seeing it as an abnormality at first but now recognizing stuttering as something unique to you. In the field of speech therapy, SLPs often focus on building confidence in people who stutter by fostering environments where their voice can be heard and valued. Your experiences remind us that advocating for such is just as important as any intervention we provide.

    • Hello Knfreem, thank you for reading my expression. I’m so glad to hear that my expression offered some insights on how stuttering can be viewed as a strength.
      Thanks again 😊