Over the years, quite a few of my friends have told me that our friendship has made them better listeners. They say, “we focus on what you say rather than how you say it.” Likewise, stuttering has made me a better listener for the same reasons. One of the many things that being a person who stutters (PWS) has taught me is that listening is key to effective communication. That what is said is more important than how or the way it is said.
Stuttering has not only taught me how to be a better listener with others, but with myself. I know that sounds odd, so allow me to explain.
From 2017 until 2022, I was very active in the stuttering advocacy world. I appeared on numerous podcasts, blogged for a few prominent organizations, led a support group, and presented to many universities across the United States. At first it was great, and I thought it was the coolest thing ever. However, things got too big too quickly and I didn’t know how to properly handle it. So, I dove more into the world. As involved as I was and as recognizable as my name was, something felt off. In August of 2021, a little voice in my head quietly started to ask, “Is this worth it?” I originally attributed that voice to stuff that was going on at work and once those issues were resolved the voice would silence. The work issue was resolved, but the voice only got louder as the months progressed. Instead of dealing with the voice, I just ignored it and tried to stifle it. That worked until it didn’t.
In late March 2022, I realized I needed to listen to that voice. I needed to figure out who I was outside of advocacy. So, I did. Since that a-ha moment, two and a half years ago, I’ve focused on: traveling, my mental health, friendships, relationships, hobbies, making stuttering not my entire personality, and re-defining my definitions of advocate and advocacy. I haven’t been that involved in the advocacy world and that’s intentional. I’m focusing on James the person instead of James the advocate. I’m no longer a support group leader. I don’t reach out to do guest lectures. I allow advocacy to be a small part of who I am and not fully who I am. I’m more selective of what groups I speak to and what I write. My 20s were for advocacy. At 31, my 30s are for me.
One of the best things that has come from focusing on myself is the relationship with my girlfriend, Kyndall. We met in January of this year. She’s not involved in the stuttering world and had no idea who I was before we met (which is one of the many things that I love about her). With her, I can be my full self. When I disclosed that I’m a PWS, 10 minutes into our first date, she said, “Cool,” and we continued our date. As she likes to say, “One percent of the population stutters and one percent of our relationship is stuttering.” We talk about stuttering, but it doesn’t define our relationship. Once I told her about my involvement in the advocacy world she said, “I’m glad you did that but I want to know more about you.”
Kyndall and I say we’re glad that we met when we did. From my perspective, had we met a year or two ago we might not be together. And if we were together, our relationship probably wouldn’t be as strong as it is. Had we met at the height of my advocacy involvement, I’d be afraid to let her in on the bad parts of stuttering. The moments when I want nothing to do with stuttering. Now, I’m not afraid to share those thoughts with her. More importantly, I would feel the need to “be on” at all times. By working on self and realizing who I am and what I want, I don’t feel that pressure anymore. Working on my relationship with self and learning how to love myself allows me to better love her and others.
Part of the work I’ve done is improving my self-confidence and confidence in my voice. My relationship with Kyndall shows me the progress I made in those departments, while also making my self-confidence stronger. I know that I don’t need to prove anything to her. Rather, who I am is enough and will always be enough. Likewise, I feel more confident in my voice. One of the sweetest things she’s ever told me is, “I love your voice. It’s my favorite thing.” As someone who, at their core, never thought those words would be said, it means so much to me. I know that stuttered speech is good speech. I’ve heard it so many times from SLPs; however, it hits differently coming from someone who isn’t in that world and has only been in my world for a little less than a year.
Stuttering has taught me how to be a better listener. I just needed to let go of the advocacy expectations for me to hear it.
“I’m focusing on James the person instead of James the advocate…” – I appreciate your vulnerability, James, and I’m glad you’ve found that balance between the two. All the best to you and Kyndall!
Ana Paula
Thank you, Ana Paula!
Thanks for sharing how you’ve changed as you enter your 30s. May each era of your life bring new discoveries and reinventions. In my 50s, I recognize this is still ongoing. It feels good to look back on previous eras with love and appreciation for past versions of myself, even when the present one is different, as you do in this piece. I hope to run into you again in the future and to meet Kyndall!
Thank you, Debbie! It was great getting to meet you at ASHA and the World Conference!
Hello James,
Thank you for sharing your journey with such honesty and authenticity. Your ability to critically reflect on your experiences is truly inspiring.
I am going through a similar phase, since I am reconsidering my motivations for being active in the community and I have to be honest… I am not proud of some of them (they mostly have to do with my ego and my need for recognition).
It is comforting to know how others share this journey and how listening to yourself is helping you to free yourself from expectations.
Andrea
Hi Andrea,
Thank you so much for your kind words about my article!
Best of luck in your journey of figuring out how involved you want to be in this community.
Hi James,
I loved your perspective on the importance of listening to that inner voice and your road to self-discovery. I agree that the way someone speaks is just one component of a person’s identity and does not define the person completely (unless they want to).
I also loved the quote you included from Kyndall in regard to stuttering, “One percent of the population stutters and one percent of our relationship is stuttering.” I think this quote quantifies and reaffirms just how stuttering is defined in your relationship. Putting yourself first just shows how much love you are giving yourself and your relationship each day.
Enjoy exploring this new chapter of self-discovery.
Yohana
Thank you, Yohana.
Hi James. I love how you highlight the importance of listening to ourselves, not just others. Your journey of stepping back from advocacy to focus on your personal growth is such a great reminder that we’re more than any one aspect of our identity. Your story with Kyndall is heartwarming too. Thank you for sharing! Gina
Thank you for kind words, Gina.
Hi James,
This is very insightful. I often feel this way myself. Am I doing too much? Am I leaving enough time to pursue other interests? Do I even have other interests?
I get asked (often) to speak to university classes and I feel guilty if I say no. I feel like students should learn from the experts – us PWS – whenever possible. I suggest that, please invite someone else, give new people a chance, and I often get, “but you have an incredible story, students can learn so much from you.”
It can definitely be a slippery slope. Thanks for sharing.
Pam
Thanks for your kind words, Pam.
Hi James!
Thank you for sharing your story! I was so touched reading through it and enjoyed reading about your perspective on your stutter! I love how you mentioned that if you had started dating your girlfriend earlier in life, you would have been scared to let her in on the bad parts of stuttering. Now in the time of your life that you are accepting of your stutter, you now would not want to not share those feelings with her! I really like how you implemented that in your story because it shows how far you have come as an individual with your stutter! Do you think that you might ever go back to James the advocate in your life? I think either way, you are doing an awesome job!
Hi!
Thanks for your kind words about my article! To answer your question, yes and no. Over the past two+ years, I’ve learned the best way to advocate is to live a life that shows it’s ok to stutter. That’s how I do my advocacy now. In terms of writing, public speaking, podcasting, etc. I’m not opposed to it. It just needs to be the right opportunity.
Hi James!
I enjoyed reading your story and appreciate your vulnerability in sharing these details. The way you described the different eras of your life, with your 20s being for advocacy and your 30s being for you, was very impactful. I am so glad you have entered this next chapter of your life and are finding happiness and fulfillment. Looking back, do you think your “James the advocate” time was crucial in getting you to the point you are now in life as “James the person”? Do those experiences build off of each other / Do you think it’s important to experience both of these eras?
Thanks again for sharing!
Hi Miya,
Thanks for your kind words about my article. The short answer is yes. I think I needed to experience the advocacy era to appreciate and enjoy my current era.
Hi James!
We had the honor of reading your text and we believe that what you wrote is incredibly inspiring. Your story shows the huge value of listening – not just to others but most importantly to yourself. Your journey from being an active advocate to focusing on yourself and your own needs can be a valuable lesson not only for people who stutter but for anyone facing life’s challenges. By your example, you demonstrate that people who stutter don’t have to be active advocates. They can simply be themselves—they can develop their passions and take care of themselves.
We were particularly moved by your story with Kyndall and how your relationship developed from the very beginning. Your approach to the relationship with Kyndall is a beautiful example of how self-acceptance and acceptance of others lead to deeper and more authentic connections.
Thank you for sharing your experience. We believe your story can inspire many people to change how they approach themselves and others. Stay true to what matters to you, and never stop being yourself!
Speech therapy students – Natalia, Paulina and Tamara
Hi All,
Thank you for such sweet and kind words about my article.
So true James. We need to not only listen to the needs of others, however rewarding it is to pay forward the things we’ve learned on our journeys. But to also listen to our own needs. Let me just say I love October, but am always happy when it’s November, with a puzzle on the table, instead of my laptop, and no stuttering events in sight. 😉
Hi Anita,
I agree! Enjoy November!
Hello James,
James, thank you for sharing your powerful and inspirational communication path. I found your presentation extremely heartfelt and genuine. I’m currently a graduate speech language pathology student enrolled in Fluency Disorder. Hearing personal impact stories encourages me to continue my studies to support multiple levels of fluency intervention. I appreciate your discussion about the stuttering advocacy and how it positively impacted your life. I think it’s amazing that you have found the strength to take hold of your voice and future. Best of luck on your continued journey self-discovery!
Hi Rachel,
Thanks for your kind words!
Hi James!
This is such an important message not only for people who stutter, but for everyone. I’ve never really thought about how immersed we tend to get in our own difficulties and the effect it has on our day-to-day life. The focus we put on one thing in our life can completely take away the joys in our lives if we let it consume us, even if it is done with good intentions. It just goes to show how self-awareness is so important to our well-being as individuals.
When I think of the word advocacy I am guilty of thinking that it only covers the areas where people are outspoken in protecting rights and awareness in a certain area, but you have shown me that it doesn’t always mean that. Self-advocacy can branch into setting an example for others to do the same and live comfortable in their own bodies. I am glad you shared your thoughts on this and shared your story.
Thanks for your kind words!
Hi James. Your vulnerability is everything. I think vulnerability is one of the scariest yet most sacred things one can do. The way someone speaks does not define their whole self. Speaking is only one small part of an individual’s identity. Listening to yourself, not just others, is important. I appreciate your boldness in stepping back from advocacy and focusing on your personal growth. I feel as though personal care is most important for everyone. Thank you for sharing.
Thanks for your kind words about my article!
Hi James,
I enjoyed reading your post and appreciate you sharing your truth about the advocacy world. While reading, I was reminded of a quote by Michael Hyatt that is often related to healthcare workers or caretakers. “You can’t take care of anyone else unless you first take care of yourself.” Feeling burnt out from advocacy is not a topic that is often discussed for various reasons. However, it needs to be, and I admire that you shared this experience as someone who has been both the advocate and involved in advocacy. Advocacy is not a role to be pursued by one person but a responsibility taken by all. The weight of that role would be too much for one person to bear. I am glad you are dedicating this next decade to you and your loved ones.
Thank you for sharing,
Tyler Louise
Hi Tyler Louise,
Thank you for reading my article and for your kind words about it. I agree that advocacy burn out needs to be talked about more. Hopefully my article can be one of things that gets the conversation started.
Hi James!
I enjoyed reading about your perspective on your stutter in your life! I love how you mentioned the part if you had started dating your girlfriend earlier, you would’ve been kinda of scared to let her in on the bad parts of stuttering. I also liked how you mentioned that you are accepting of your stutter because it shows how far you have come. I admire you and your story!
Hi Leah,
Thanks for reading my article and for your kind words!