Words and actions hold heavy meaning. A simple “Hello.” might be a seed of hope planted in one who may be otherwise trapped in sadness. A smile portrays, “I see you.”. Gentle eye-contact and a head nod lets me know, “I hear you.”.
Our subtle communicative expressions make up the graceful dance that is human connection. Mirror neurons promote reciprocity of emotional valence. We both contribute to how at ease the other party feels during an exchange of ideas. Conversation can then steer deep and meaningful or fleeting and shallow.
Introductions are fundamental and essential. They establish relationships which are the fabric that weaves society together.
In attempts to foster human dignity, kindness, self-worth, and respect, it seems beneficial to review the things we say or do in interpersonal exchanges, considering language that might be particularly hurtful. The current reflection seeks to examine just one specific utterance, and its ramifications in the broader scope of the social experience. The ideas presented are experiential, and a form of emotional expression. Maybe they’ll encourage personal reflection, and promote positive behavioral change for the betterment of human interactions.
“Did you forget your name?”
I’ve been thinking for some time now how the above phrase fits into human vernacular. It is puzzling to me how this specific set of words represents something that semantically denotes anything helpful. Followed by a question mark, conveyed with paralinguistic features of rising intonation, its interrogative connotation would make the ears of most listeners perk up in surprise. Why is that?
After much contemplation, it seems unbeknownst to me a scenario where such a verbalization could possibly have positive or uplifting intentions.
Where exists a place where these words do not stoke degradation of one’s self-esteem? When would this phrase be considered a nice thing to say?
If answered “yes”, will soul-crushing laughter ensue?
If answered “no”, will the already impatient inquirer grace the speaker with more conversational floor time?
Let’s consider all emotional and environmental context stripped away. At its core it’s a binary question which seeks to gain information. Upon a “yes” or “no”, what exactly does one do with these answers and how would they apply this information in a way that is useful in moving the conversation forward?
The question is as imperative as it is interrogative. That is, it could mean something along the lines of, “Spit it out already!” or, “What, are you lying to me?”. It appears to be a reaction inspired by some level of disgust. We can agree it’s used overwhelmingly in the context of humor.
So, did she who asked it mean to be playfully or actually insulting? The more serious problem lies in the wide discrepancy between the potentially deep-seating impact such a remark can leave on someone versus the true intention of he who uttered it. Did you realize your words can have life altering consequences? If you didn’t, here is your memo.
To those who’ve asked the question before, why did you do so? Was it from a place of curiosity, astoundment or spite? Did you think the other person actually forgot their name? Hopefully, you knew little about how scaringly painful the phrase can be.
For the reader seeking more context: what exactly am I talking about? You might be wondering, “Why would anyone ask that?”.
For others, you recall vividly the situations which have occasioned the phrase. It has left scars in your being. Perhaps, you shrug it off easily now. Maybe, you have coped by remaining numb over time.
Of course, the current reflections refer to encounters of people who stutter. We, who, from time to time, get asked this puzzling question as if we are supposed to smile and answer, brushing it off like it’s no big deal.
We live with speech v-v-vvv-ariab-b-il..ity. Our fluency subject to contextual alterations in our everyday existence. Various triggers activate the locking devices which grip our voice and articulators. Each moment of disfluency spent hoping the other party holds on just a second longer.
Is our listeners’ attention a measure of sympathy? I am sure that is not what we desire. We assign higher value to basic human decency. Our listeners’ attention, then, serves as a thermometer for emotional maturity. A litmus test for if we should further engage.
A lack of an emotional reaction to stuttered speech tells me a lot about you. You are not easily shaken. You appear to have some level of self-control. Perhaps, you are wise. And kind. And worthy of pursuing.
But why do good people ask it? For not all have evil objectives. Ignorance could be applicable here. But is ignorance not a choice or is it?
Many times when asked the harrowed question I stood calm and resilient in taking a thorn to my side. I understood the other party didn’t recognize the weight of their words and looked past it, hoping it wasn’t a reflection of who they truly were. I smiled and pushed through with the intention of letting it go. Maybe I am amenable. I would like to be more disagreeable.
I’ve gotten to know plenty who’ve had instinctual startlement to my speech. Lots have been good and wholesome people. So, what is my forgiveness rooted in? Surely an innate desire for social acceptance. I reflect on my own emotional immaturities. No one is perfect. I laugh often when I shouldn’t. Smile when I ought to frown. It’ll take more years to master regulating my own emotions in the way that I desire.
I see it as my duty to show them their bias is unsound. I want to prove, “It’s not a big deal… I stutter, okay?”. It’s like, “I know you’ve heard stuttering before.” … “Certainly you’ll hear it again.”.
It’d be safe to bet that most who stutter have been asked the harrowed question. For some it’s a first memory. For many, a weekly happening. Old, young, overt, covert… It doesn’t seem to discriminate. It so clearly illustrates the repeated, stigmatic, generational trauma imposed on people who stutter across the globe.
You see, when I open my mouth to speak I am being vulnerable. That is because I’m showing you a part of myself that I could otherwise attempt to hide. Yes I have insecurities about this identity but I’ve made large strides in feelings of authenticity. Will you extend me your ears and eyes as I push through these blocks just a little longer? Hold my voice as I walk you down this bumpy road. In no time you’ll get used to it and you may even learn to like it.
Of course I didn’t forget my name. My name is central to who I am. A visceral reaction to who I am stings my psyche and peppers me with shame. Your question might just have the ability to rattle my identity to its core.
I know who I am, right?
I know who I am… right?
There is something deeper here. The juncture between how I see myself in the world and the breaks in my speech paint a mosaic persona.
Am I Randy? Or ….R-r-r…Andy? Perhaps, I’m Andy.
All those tireless attempts to correct those who’ve thought my name was Andy…
…“No, my name is R-r—-Andy!!”.
I haven’t always been successful.
But you see, I’m not Andy. I’m Randy. So my name is Randy. But in fact, its Ruh-ruh-ruh-ruh…rrrr-andy. (*smile).
Different days bring different variations of the sound salad that is my identity.
We can be the catalyst which changes the narrative, so that the next individual is spared, respected, and listened to. Critical conversations related to topics like these are occurring more frequently than ever. Stuttered voices are rumbling, louder and louder.
At the 40th National Stuttering Association Conference in Ft. Lauderdale, Florida, Jonathan Woolard gave a workshop related to the harrowed question. Discussion flourished regarding peoples encounters, and practical ways to combat ableist comments. Responses to how they’ve dealt with such remarks ranged from shrugging it off, to educating the other person, to lashing out, and everything in between.
Embodied within each story was one’s own unique communication style. There was no lack of creativity, elegance, and flair. It was clearly gleaned that people who stutter have a giant amount of class. I left energized knowing the state of resilience and resistance of stigma by the stuttering community is strong.
“Did you forget your name?”… “Did you forget your empathy?” – John Moore
I hope you know I’m not the first to record my thoughts on the current topic. A simple google search quickly returns numerous writings and other art forms which cite the harrowed question, and those courageous expeditions of people who stutter. Take Rahima Dosani’s earth shattering poem “Did You Forget Your Name?” performed at the 2017 American Institute for Stuttering Gala. Or Chloe E. Gambol’s raw accounts of being a college student who stutters in her article “I Didn’t Forget My Name” for the Harvard Crimson.
It is therapeutic to deliberate the why and how of things we deal with. There is meaning in everything. How we derive meaning, and interpret it, ultimately, we have to choose.
Know your experiences are unique and nuanced. They only happen to you. No one can take that from you. And it is this notion which embodies the essence of authenticity. This genuineness of who you are, what you’ve dealt with, and how you choose to move forward deserves celebration if desired.
My hope is that these reflections have an ameliorating effect on the attitudes of those who’ve received such befuddling remarks. At the end of the day, who thought such a silly set of words would lead to this much thought provocation? Not in a million years did you once expect as an innocent child that people would be imposing on you the pressures to speak with perfection. But perhaps it was pre-written in your DNA to challenge the norm and embrace the extraordinary.
To those spewing venom, unknowingly or not, please do us a favor, and think before you speak. But remember, refrain from giving this suggestion to people who stutter (unless they say something really mean) because people who stutter know exactly what they want to say.
And know that belittlement of any form might be met with an equal and opposite reaction. If we suspect spite, why keep a tempered tongue? Of course, there is always the high road too. But the truth is, there is no one way of handling it. Indeed, one size does NOT fit all. But it is important to know what you value, and know you’re not wrong in sharing how you feel.
You deserve nothing but the golden rule.
Each time we who stutter speak, we challenge stigma. Or should I say, each time we who stutter stutter, we challenge stigma. The more our voices are heard, the less our voices are silenced.
I’ll speak on behalf of those who stutter to say we stand in solidarity with anyone whose way of communicating occasions insulting remarks. We find solace in the collective feeling of what it’s like to have to work overtime in order to win over the positive assessments of others. Together, we do the world a favor by reminding everyone that each human should be treated equally.
Your willingness to be yourself is the greatest invitation.
It’s simply on others to accept it.
Great article, Randy.
Thank you James, hope all is well.
-Randy
This is very beautifully written, Randy. A lot of great quotes here. Would you mind if I pulled one or two for stutterolgoy? Will credit you and ISAD, obviously.
I did laugh about Randy or Andy. I used to feel with this when I still went by Jaymie. Jaymie or Amy? Someone once advised me to skip to the next sound, after all, a full minute of “JJJJJJJJ” got the point across. But people would reply “Amy?”
Here we go again.
I was like !!! Did you??? Miss?? The first minute ??
But TBF some people stutter on a sound that isn’t the sound they’re going to make. More rare, but possible.
Do you study language impact and sentence structure?
Hi Ezra,
Thank you so much for the kind words. It is great we can look back and laugh lightheartedly about similar experiences regarding our names. Us stutterers are fighters… we will say our name no matter how long it takes or what confusion it brings 🙂
I would be extremely honored to have you share some of this with Stutterology. You are leading the charge in de-stigmatizing stuttering via social media, thank you so much for all you do.
I know a good amount about language and sentence structure given my profession. What are you referring to? I am certainly interested how the way we structure our language can leave a lasting impact on those who read or hear it. I love to write and am a sort of a perfectionist. This piece went through many re-writes.
-Randy
Hello Randy,
Thank you for posting this article! I really appreciate you sharing your experiences and perspectives. I am currently a graduate student studying to become a speech-language pathologist and I am in a stuttering class this semester. It is eye opening to read about other people’s experiences. I was wondering if you had any advice for a future speech language pathologist. How can I best support my clients when they stutter? How can I make their self-esteem and attitude more positive?
Hi Jalafeir,
Thank you for your kind comments and question – it is a good one that doesn’t have a simple answer. The fact that you are here, participating in the ISAD conference, and learning about the lived experiences of people who stutter is a great start. It is exactly where you should be. I’ll refrain from giving you a cookie cutter answer as to how you can influence positive attitude shifts in your future clients who stutter. Instead – I encourage you to keep reading, and seek out the strong foundational knowledge that is necessary to be a good stuttering clinician. It’s important to have a scientific mind, and scrutinize the current evidence we have regarding effective therapy. I think it’s critical, too, to understand concepts of stigma and self-stigma, as applied to stuttering (see the work of Micheal Boyle for review). By being compassionate and creating a safe space for your future clients who stutter, they will experience healing as you walk with them toward their life goals.
Randy
Randy! AWESOME submission man! THANK YOU! People thought I was “Andy” too, when introducing myself as Mandy! That’s why I started going by “Amanda” and started down my Covert path.
I remember when you and I sat by the pool at the NSA conference and discussed this topic! I am so grateful for your beautiful words and for capturing my sentiments and also, experiences with the harrowed question!
With gratitude,
Mandy
Mandy, thank you for the kind words and again for your courageous and inspiring ISAD post. Our discussion at the NSA conference was a good one and that conversation as well as many others directly informed this paper. I am so glad our collective sentiments are captured and shared so that we can further shed light on this complex experience that is stuttering. Just yesterday I had to tell someone multiple times that my name is Randy not Andy. Here’s to fighting the good fight and being true to ourselves. Can’t wait to reconnect soon.
Randy
Hello Randy,
This is such a great reflection, and one I wish fluent people would read. I always feel so discouraged that this wonderful ISAD online conference is largely confined to the stuttering community. It would be so wonderful if those who utter these words could read about how it feels.
I have often thought, and said, that stuttering makes us vulnerable and authentic by default. It invites reciprocity – if I feel safe enough to stutter with you, maybe you’ll feel safe enough to share your “thing” with me. I have also said that I think people secretly wish they could be as authentic as we are simply by stuttering.
I believe that engaging in conversation with a stutterer and a listener is so intimate. When we are truly heard and seen (as evidenced by the eye contact you mention) there is no greater communication intimacy.
I heard Jonathan’s workshop was wonderful. I have responded in kind when someone has asked me “the question.” “No, did you?” It puts things in perspective.
Thanks for sharing this.
Pam
Pam,
I agree – the words written in this conference are so powerful and I wonder how we can broadcast these voices of people who stutter to a wider audience. I am going to reflect on this. And perhaps send a few emails.
The experience of authenticity and vulnerability you mention is the key thing that I gain most from stuttering. I first realized this concept (as did many) upon reading one of Chris Constantinos ISAD submissions a few years back
https://isad.live/isad-2016/papers-presented-by-2016/stories-and-experiences-with-stuttering-by-pws/stuttering-gain-christopher-constantino/
Surely one of the most influential ISAD papers of all time.
Thank you for all of your hard work in organizing this years ISAD conference as well as all you do for people who stutter, Pam. I’ll use this space to say your keynote at the NSA conference was one of the most moving speeches I have had the pleasure of listening to. Hope to see you next year,
Randy
Thank you Randy for the very kind feedback about my keynote. I really appreciate that you shared that with me.
I just read your comment on Max’s paper/question about where are all the adults who stutter, where you referred to shame. That resonated so deeply with me. Shame was what kept me covert for so very long and contributed to my missing out on so much living. I think shame as an emotion and envelope is probably the deepest byproduct of stuttering that many of us go on not acknowledging for a very long time.
I think it’s crucial for therapists to really try to get a sense of how difficult living with shame can be. I wish there was a way for students studying to become therapists could learn about shame. It will not be learned in a semester course in fluency disorders nor will it be learned by attending a conference. People who stutter have to find safe ways to talk about shame and those who want to support people who stutter need to find and make as much time as possible to want to better understand how entrenched shame can be, in every aspect of a person’s life.
I hope that shame is discussed in depth in counseling courses that speech therapy students take. I don’t know that it is. It’s a big topic – a big emotion – a big facet that may need to be part of therapy that is hoped to be helpful in the long term.
I am so glad you wrote about it, and that I read it on Max’s paper! 🙂
Pam
Pam,
Thank you for your feedback and mentioning my comment about shame. I felt vulnerable in writing that but I know it is the experience of many who stutter. Thank you for being vulnerable and for sharing your experience. The first step in confronting shame is putting it out in the open, talking about it. For many it is a scary, “bad” word, just like the word “STUTTERING”. Many I know who stutter who have transcended the negative thoughts and feelings of the experience to a considerable degree talk about shame openly and honestly. Shame is the driver of so much hiding amongst a variety of people who have stigmatized identities. It is such an influential emotion. I think we owe Sheehan credit who first applied these concepts to stuttering. He talks about the phenomenon here: https://www.stutteringhelp.org/message-stutterer#:~:text=Your%20fear%20of%20stuttering%20is,your%20stuttering%2C%20above%20the%20surface.
Our discussion has motivated me to dive more into shame, what it is, and how we can work through it. Brene Brown has done a lot of work on this topic.
Randy
I am a huge fan of Brene Brown!
Dear Randy,
Wow! What a thoughtfully crafted and eloquently written testimony! Each word serves as a diamond in what has become a beautiful piece of jewelry. “Chapeau”! (I tip my hat to you).
The content of your paper has so many thought-provoking components.
The take-away message for those among us who do not experience stuttering is:
” To those spewing venom, unknowingly or not, please do us a favor, and think before you speak. But remember, refrain from giving this suggestion to people who stutter (unless they say something really mean) because people who stutter know exactly what they want to say”.
And indeed, to all individuals who live with stuttering: “Your willingness to be yourself is the greatest invitation”.
Thank you, Randy, for this wonderful contribution to the global community. The seed that you planted will continue to grow across borders.
Martine Vanryckeghem
Thank you Dr. V.
You have been one of my greatest allies in this stuttering journey. Thank you for your mentorship, and friendship, always.
Randy
Good job Mr. P 😀
Thank you Julian 🙂
Hi Randy! I am an SLP graduate student and this heartfelt reflection beautifully captures the power of words and their impact on human connection. It’s a reminder that even seemingly innocent questions or comments can carry deep emotional weight for individuals who stutter. The journey to authenticity and acceptance is a unique one for everyone, and it’s essential to treat each person with empathy and respect. Thank you for sharing these profound insights and shedding light on the experiences of those who stutter.
Hi Anna,
Thank you for reading, reflecting, and commenting. Our words and actions indeed can and do hold heavy meaning.
Randy
Randy, thank you for helping us reflect on fostering human dignity, kindness, self-worth, and respect. I really appreciated your conclusion at the end, “Each time we who stutter stutter, we challenge stigma. The more our voices are heard, the less our voices are silenced.”
Ana Paula,
Thank you for reading and reflecting. As us PWS collectively stutter openly and bring awareness to stuttering, the chains of stigma will continue to loosen. I believe this is occurring at the fastest rate in human history, thanks to things like the internet, ISAD, our willingness to be open, and fierce advocates like yourself.
Randy
Hello Randy,
This is a beautifully written piece and as a future speech-language pathologist without disfluency struggle or very much stuttering treatment experience or exposure to stuttering in general it was a much needed reminder to how emotionally entangled and impactful stuttering can be. That being said, I will definitely refer any future clients and families to the post through ISAD. As I aforementioned, I am a future SLP and I would just like to know if you have any insight on how I could ensure I create a welcoming environment during speech therapy for clients of all ages and situations?
Hello,
Thank you so much for reading and your comments. Stuttering can have a profound impact on someone and it certainly has on me. Kudos to you for choosing SLP as a career and wanting to help others. As for creating a safe space for your clients – you are on the right path here as you dive into the lived the experiences of persons with various communicative disorders and differences. By developing a deeper understanding of peoples experiences, you can better develop the empathy required to build rapport and create a welcoming environment which fosters therapeutic change. There is definitely no one ingredient to creating a safe space – but a major one involves deep listening and is rid of any judgement. I learned most about creating safe spaces by being in them. Top amongst these is Camp SAY.
I can already tell you will be an amazing SLP – best of luck in your endeavors.
Randy
Hi Randy – what a great reflection. There are a lot of things in life that we do or say as humans that either we don’t fully think about how the other party (the listener) may interpret. I think this is a great reminder about the power of our words. I am sorry that you encountered this in life. Your quote: “Each time we who stutter stutter, we challenge stigma. The more our voices are heard, the less our voices are silenced” is very powerful. As a student training to become an SLP I will keep this in my mind moving forward and communicate to any future clients I have who may stutter. Thank you for your post!
-Andrea
Hi Andrea,
Thank you for your comments and reflections. What you’ve said is another great reminder to be mindful of the words we use everyday. Our words are very powerful. The older I get the more I really do think before I speak because I care how I will make others feel.
Best to you in your journey as an SLP!
Randy
Hi Randy,
Thank you for sharing this piece. It really did make me think about how a phrase like “did you forget your name” can hold so much weight and be such a triggering question. One that people use with different meaning, and that it must be really difficult to sort through individual intentions behind the question as an imperative and/ or an interrogative. I appreciate your candidness in reflecting on why you may have accepted or forgiven unacceptable treatment from people in the past and deconstructing that conditioning. I think it is very relatable. And I also like that you illustrated the idea that there is no “one” way of handling mistreatment. I personally believe that it is not a person’s duty to always take the high road.
Hi Justine,
Thank you for reading and for your comment. I have definitely over-thought interpersonal conflicts in the past and this is something I have had to continually work on as a person who stutters. (E.g. “letting it go”.) I agree with your sentiments – there are times to smile and move on and there are other times when bullies need to be put in their place 🙂
Randy
This is a thought-provoking piece that leaves a lasting impression. Your ability to weave complex emotions into simple yet profound narratives is truly remarkable. This piece, in particular, delves into the human condition in a genuinely touching way. Your choice of words and the rhythm of your prose create a captivating atmosphere that draws readers into the story. I highly recommend this read for anyone seeking a deeper understanding of life’s challenging questions.
Sydney, what a very thoughtful and inspiring comment. I worked hard on the piece and I am happy to hear it was impactful and that you picked up on all of its nuances, rhythm and flow. It sounds like you have a deep appreciation for story telling and are obviously skilled writer yourself. Thanks for checking in.
Randy
Randy, this piece was so impactful to read. As a future speech language pathologist, I plan to send patients and their families to articles like yours, to help support them in ways I simply can’t. As a graduate student who does not have extensive experience in fluency work within the field, it’s insights like yours and others who stutter that let me see, even slightly so, into the world of a person who stutters. Among education and awareness your article provided a lesson of empathy and human connection- one that could be applied to many with communication differences. The phrase of this piece “Did you forget your name?” and the repercussions of it, are there other common phrases in the community of those who stutter that aid in helping speech pathologists (or anyone) understand the deep meaning and experience of interactions like this?
Hi Emma,
Thank you for your reflections. We who stutter appreciate you taking the time to hear our stories and learn more about the experience of stuttering. There are definitely other phrases that people who stutter encounter frequently – which are ableist and passive aggressive – such as tips to not stutter (e.g. take a breath, slow down,) or one I’ve heard every once in a while lately – non-scientific suggestions on “remedies” for curing stuttering (e.g. “have you heard that podcast with so and so who did XYZ and no longer stutters?). I receive less direct comments/phrases as an adult but definitely more nonverbal microagressions (awkward looks, people ending the conversation more quickly than if I were fluent due to feeling uncomfortable). The Harrowed Question (as I call it) I receive quite frequently I believe due to the nature of my disfluencies (getting stuck on my name which manifest sometimes as silent blocking).
Best of luck in your journey as an SLP and thanks for wanting to help people who stutter 🙂
Randy
Randy, this was such an impactful paper. I can’t even imagine being asked “did you forget your name?” in a conversation. Even just reading it here it made me feel anxious. I am currently a graduate student studying speech language pathology and I always think “how will I counsel a patient who stutters if I have never experienced what they are going through?” and I think this piece did such a beautiful job illustrating exactly how you felt and really helped me to better understand. Thank you so much for sharing your thoughts and experiences!
Hi Claire,
Thank you for commenting, reflecting and for wanting the best for your future clients. Your strong willingness to want to understand and empathize will be enough to help your client foster positive change.
Randy
Hi Randy,
Thank you so much for sharing this piece! When I first read that question, I thought that it seemed like an odd thing to ask, since the answer would obviously be “no”, but I had not previously consider how often a person who stutters hears that question. It seems like there is a massive disconnect between the intent with which one person says “did you forget your name” and the impact felt by the person who stutters, and that a question that may not have been intended maliciously can cause a great deal of harm. Your piece was a wonderful reminder to be conscious of the way our words affect others, and to challenge our internal biases before we speak. Thank you for your beautiful post!
Hi Zoe,
Thank you for sharing your thoughts and for reading. I agree there is a big disconnect between what people say and what they truly mean or intend to mean. Hopefully we can continue to educate people in regards to the weight of their words.
Randy
Hi Randy
Words matter. They can make or brake a person. Thank you for making your readers aware that what is said may not always be what is meant, but it can be perceived as hurtful, instead of helpful or funny. recently I heard a radio reporter announce a song from Duran Duran saying, out of nowhere “This group’s name might be tough to say for PWS”… Uh what? Are you trying to be funny?
I tried to change my name from Anita (such a block I was called fish, as my mouth would open and nothing came out…) to Nita. Until I started stuttering on the N. I was also told once, as a helpful suggestions, to not say every first letter of a word, as PWS get stuck on them, right? -o -ow -ould -is -ake -onversations -sier?? This is why we need to speak up and call people out. We’re completely normal. But sometimes I doubt if those who want to be “helpful” are. 😉 Great post. I hope you’ll share it in many “fluenters” forums.
Happy ISAD and keep talking
Anita
Anita,
Thanks for your kind comment as we wind down the ISAD conference. Kudos to you and the organizers for creating such a safe and welcoming platform where we all can share ideas, agree, disagree, and celebrate this unique part of ourselves. This years theme was an absolute home run. I have great optimism for our stuttering community and our pursuit of improving attitudes toward stuttering, as well as the lives of those who stutter.
It sounds like you and I both have went down the rabbit holes of suggestions that bring a false hope. Thankfully we are both past that and how freeing is it to no longer be served and consume snake oil.
I cant thank you enough for your work with the ISAD conference over the years and your strong advocacy efforts for people who stutter. I hope we’ll get to meet at a conference in person soon.
Cheers,
Randy