The thing about stuttering, is that although it’s complicated and inadvertently changes your life, it’s also not the end of the world. Of course, my opinions are my own and it’s impossible to speak for all of us; we all stutter differently and have different experiences growing up stuttering. Our unique experiences growing up as a person who stutters help shape our worldviews and our relationships with stuttering as we grow up.
I consider myself lucky; I’m lucky that my family has always supported me, that my mom did research and found the resources that were available at the time, that she and my dad took the time to bring me to speech therapy for years, and while I don’t agree with the effectiveness of the techniques I learned, using and understanding them was an important part of understanding what stuttering is, and contributed to my understanding of it now. I’m lucky that I was never discouraged from talking, and I’m so lucky that I met other kids who stutter early on and stuttering was easily integrated into my life. That, when I was a preteen and teenager, a normal Saturday included spending time with my friends who stutter and was full of writing and creating, and music.
My understanding of stuttering was shaped by years of trying to adapt to the fluent world as a person who stutters. I spent years in speech therapy because when a child talks differently, the adults around them want to help them talk normally, or as close to fluent as possible. As a child in speech therapy I learned how to slow down, how to breathe in a way that promotes fluency, how to bounce and stretch out of words, and how to voluntary stutter (which actually did help). When you use techniques, all you’re doing is avoiding an obstacle that’s literally part of your brain. Techniques are band-aids that create a temporary break from a complex disorder that takes years to learn how to manage and live with. Realistically, all the blowing bubbles through a straw and tallying blocks means nothing when it’s only encouraging you to try your best to be fluent, avoid stuttering, which creates more stuttering, and be afraid to say what you want to say.
When I restarted speech therapy after college, I was in a stuttering rut. I hadn’t really been engaged in the stuttering community for years and the amount of tension in my speech frustrated me to no end. I knew I needed help, but couldn’t express it, and I didn’t want to start from scratch and go back to practicing modification techniques when what was going on in my head was so much more complicated. Since I was a child I’ve worked with multiple speech pathologists. A general speech therapist, two stuttering specialists who used different methods, and graduate students studying speech pathology. When I started my search for a speech pathologist, I didn’t have to search for long, and I found a community that I love. Now I work with a stuttering specialist whom I consider a friend and who has truly helped me grow to be the person I am today. It can take years to find a speech pathologist who has a philosophy you agree with, who you work well with and can trust, because sometimes speech therapy is less about speech and more about therapy. The path that I’ve been on isn’t for everyone, but it allowed me to learn that not every speech pathologist’s methods and philosophies work for everyone. We shouldn’t all have to learn about our own stuttering through trial and error, but when we decide on our own that we need help, we find the community and help we deserve.
It took years for me to decide that I don’t care about fluency, and constantly trying to adhere to the fluent world’s standards of fluency just isn’t worth it. It’s okay that my brain isn’t wired for fluency, because it’s my brain and not anyone else’s. We shouldn’t have to adapt to the fluent world, the fluent world should adapt to our stuttering. We shouldn’t have to jump through so many hoops just because we speak differently. Nothing bad is going to happen if I have a hard block and it takes me longer to say a thought, or a sentence, or even a single word. And nothing is going to explode if I don’t switch to a different word, even though there’s a part of my brain that’s still screaming at me to not stutter, to be fluent, even after all these years. And nothing is going to happen if I block on my name, something that happens every day, because it’s my name and I’m going to stutter on it.
Hi Michelle,
I love this! You are showing badass ownership of stuttering here. I especially love this line:
“it’s my name and I’m going to stutter on it.”
Of course we don’t have to fit into the fluent world, but it can be so discouraging when the fluent world doesn’t have the patience to just listen for one extra second. You express yourself so well, and like I said, you exemplify in this piece the importance of ownership.
You also say it took you years to realize that you don’t care about fluency. Me too. I’m a bit older than you, so it took me longer, and I consider those years as years of wasted opportunities.
I am so glad you shared this with us. It is OK.
Pam
Hi Pam,
I’m so glad you like my paper.
I think owning your stuttering is one of the most meaningful and important things a person who stutters can do. Even if it takes years to wade through the anxiety and shame in order to become an expert in your own stuttering and understand yourself on another level, it’s part of the journey.
We shouldn’t have to fit in with the fluent world, they don’t know what to do with us. So we have to show them what we can and will do. We have to make them listen.
Michelle
Hello Michelle
A lot of what you say resonates with me! You are obviously well on your way to stuttering with pride.
My particular journey has been more about psychotherapy than speech therapy. To me the person who stutters is more important than the stutter. I have not had much success with therapy for fluency or with stammering with pride. (If you want to know more look for me on the Stamma website in the UK and look for me under Your Voice)
I have had lots of psychotherapy and have identified large areas of insecurity and anxiety which have impeded my success in speech therapy. I have come terms with these aspects of myself (not got rid of them). They have explained my lack of success with speech therapy.
Joseph Sheehan was very aware of the importance of psychotherapy for some PWS. I love his work
and always felt he explained my stuttering the best.
Good luck with your future in arts/performing.
Tim
Hi Tim,
I’m so glad it resonates with you! We’re all different and experience stuttering differently, but some things about stuttering are universal. Speech therapy should be more about therapy than speech or fluency. There’s so much more to stuttering than the physical way words come out of your mouth, and we need more psychotherapists who know about stuttering and can provide support in that way rather than fluency and modification techniques.
Thanks for reading!
Michelle
Hello Michelle,
This was a very interesting and honest take on speech therapy and stuttering. I appreciate the honesty! I am a graduate student for speech & I am working with a few students in the school setting. I am beginning to tap more into the therapy side of it. And this helps me see another perspective. To be frank, sometimes I have felt “unproductive” when our sessions don’t directly address speech & fluency. But this definitely gave me a different perspective, because PWS may actually want the therapy side of it instead of solely speech strategies. A takeaway for me is that I will begin to collaborate more with my students & ask them what they want out of it, rather than pushing fluency strategies or modifications. I do agree with you, that the world wants PWS to adapt to everyone else. I believe this is also true for others as well. I can’t wait for this mindset to change!
I appreciate you sharing your ideas & I hope you continue to pursue your dreams!
Hi Jessica,
Thank you for your thoughts, I’m so glad you took what you did from my paper. Yes! Please collaborate more with your students! Sometimes just having someone who will listen to you without interrupting or saying “try this technique” helps more than using actual techniques. If I may, one thing that did help a lot was desensitizing; going outside to a store or getting a snack with someone who you feel safe stuttering around and practicing advertising is a good exercise.
Michelle
Michelle, I loved reading your views on stuttering and speech therapy. As a future SLP, when treating patients, it is super important to prioritize what they want to gain from therapy. Not all SLPs are going to have the same approach to every client, and that is okay; you find what works and what is best for you! Reading your post gave me a new perspective on focusing on the person’s wants and needs instead of jumping into approaches that may not suit that particular person.
Hi, thank you for reading my paper. I’m so glad that it’s giving future SLPs new ideas.
Michelle, your story is very inspiring. I feel that your mindset above everything is what makes this post truly special. Not only is your story inspiring, but it is realistic. I really appreciate how you shared your experience with speech therapy, and explained that the techniques often taught by SLPS are not always helpful for everyone. Though some may benefit from using stuttering modifications in their speech, these techniques often only provide temporary changes. I think that your point about coming to the realization that fluency is not always the main goal (but rather understanding and accepting the feelings associated with stuttering) was a very useful message, because it shows that stuttering goes beyond a desire to be fluent. Thank you for sharing your insight!
Hi Jessica,
Thank you for readying my paper and sharing your thoughts. More people need to understand that stuttering is incredibly complicated, and the feelings that surround it need just as much care, if not more care, than the physical act of stuttering.
Michelle
Oh what a journey – thank you for sharing!! As a parent advocate, I agree that, especially for children, suggesting the use of speech tools and techniques in order to stutter less runs a very real risk of doing more harm than good – especially for those who continue into adult years. Our son has returned to therapy to recover from that trauma and become more comfortable with himself as someone who stutters. I’m so glad you’ve found professional intervention that is helping you to live your life to the fullest!!
Hi Dori, Thank you for reading my paper. I agree, sometimes the treatment for stuttering can cause more harm than good and can add to the trauma that comes from growing up as a person who stutters. It’s unfortunate that we need speech therapy or therapy in general to recover from speech therapy. Having parents who took the time to learn about stuttering still support me in my journey made a huge difference in my experience.
Hello, I enjoyed reading your article and your story is very inspiring. I love how in the beginning you mentioned how your experience with stuttering is not the same as everyone else’s and how you had parents who educated themselves and supported you as well as you being a part of the stuttering community growing up which I have not heard about in many PWS’s stories that I have heard. I love that you bring light to the fact that not every speech therapist’s technique will be ideal and that everyone has a preference for the services that they would like to receive.
Hi! Thank you for reading it. Not all of us have access to resources or speech therapy that helps us, and there are so many complex variables to stuttering. Being able to meet and spend time with other children who stutter really helped to normalize stuttering in my life. It meant that I wasn’t alone, and even though we all sounded different, they were probably dealing with similar problems.
Michelle,
I really enjoyed your story. I love how supportive and involved your parents were with your stuttering. Sometimes I feel as if that is not always the case, so I am happy to hear that they found you the necessary resources. I am curious, since you met kids who stuttered early on, how different do you think your experience would’ve been without that early exposure to other kids who stuttered?
Hi! Thank you for reading my story. I was lucky that there were already resources available and my parents were able to find them. If I hadn’t met other kids who stutter early on, I don’t think I would be the same person, and I don’t really want to try to imagine how my life would be different. I knew that I wasn’t alone, that I wasn’t completely “other”. Finding the stuttering community early on is worth it in the long run. Meeting adults who stutter helped too, it shows that we have a future and can live good lives.
Michelle, thank you for sharing your perspective on stuttering. Your perspective on stuttering truly shows how much of an impact the environment can have on your view of your own stuttering, whether positive or negative. As a second year SLP graduate student, I look forward to trying to make the most positive impact on the people I treat. A trusting and caring relationship between a clinician and their clients is truly the most important aspect of treatment, and I’m glad you had that with some of the SLPs you encountered.
Hi! Thank you for reading my article. I hope you take everything you can from everyone’s perspectives. We need more SLPs who care about more about clients than their fluency.
Hi Michelle,
I appreciate your post for providing a different perspective of someone who stutters. You made important comments of finding a therapist who follows your same philosophy. Even though the current literature states how important it is to implement mental health components into therapy, some SLPs may not follow this guideline and focus strictly on fluency. I love the part about speech therapy not always being about the speech, but also the therapy. While I was happy to hear about how much support and guidance you were given it makes me think about people who stutter and those who don’t have support.
Thank you for sharing your experience,
Tori
Hi Tori, thank you for reading my article. I think it’s very important for adults going back to speech therapy to take the time to research and find an SLP who vibes with them. There are some fantastic resources available if you look for them, and they come with a built in community.
Hi Michelle –
Thank you for sharing your journey as a person who stutters. I am so happy that you were able to find an SLP who aligned with what you were looking for. As a future SLP myself I hope I can be that person for someone in the future. I like how you said that it can take time to find an SLP who aligns with what you are looking to achieve. Just like looking for a doctor, therapist, dentist, etc the first one you find may not be the perfect fit. I am glad you kept going and didn’t give up. I also liked how in the beginning of your post you stated that everyone’s experience/journey with stuttering is different because that is so true. That is also why treatment should be individualized to each client and their personal experiences. Thank you for sharing your experiences with us!
-Andrea
Hi Andrea, thank you for reading my journey. I hope that you can be that person for someone too, we need more SLPs who are willing to listen to us.
Hi Michelle,
I appreciate you sharing about your personal experiences as a person who stutters and how that has shaped your perspectives. I loved reading about your childhood and I am so glad you had a strong support group through your family and friends. I am currently in my last year of graduate school to become an SLP and I aim to be a positive member of my client’s support groups and meet them where they are. This is encouraging to read about your relationship with your SLP!
Hi! thank you for reading my post. Having a good relationship with your SLP helps so much. I wish you the best of luck in your goals.
Hi Michelle,
Your story was truly inspiring. I am so glad that you were able to find a speech pathologist that you could connect with and understand your needs. Your perspective on stuttering allows society to accept that stuttering is not a problem and that fluency is not the main goal. Thank you for sharing your experiences with us!!
I do have one question: How did voluntary stuttering help you?
Hi! thank you for reading my post. Voluntary stuttering helped me desensitize myself to my own stuttering and showed me that I can stutter on purpose. There’s more to it, but it’s the opposite of avoiding stuttering, and it’s powerful.
I loved reading your story and am so glad to hear that you found a supportive community at a young age. It really struck me when you mentioned that when stuttering techniques are used, you’re avoiding an obstacle that is part of your brain. You’re right and I hadn’t thought about it in that way. As a graduate student in Speech-Language Pathology, I want to make sure that I do everything I can to be part of a supportive community for my clients and support them in knowing that they don’t have to adapt to the fluent world. I appreciate your perspective and will take with me that speech therapy is sometimes more about therapy and less about speech. Thanks for sharing your paper.
H! thank you for reading my post. Stuttering is complicated, and the more people who actively try to understand us and listen, the better, so thank you.
Hello Michelle,
Thank you for sharing your story; it was inspirational. It’s wonderful to hear that you had such a great support system growing up. I also liked how you talked about your “relationship” with your stutter as well. I assume it is something that develops and changes over time as you go through different experiences. I am an SLP graduate student and I loved reading all the individual experiences. As someone who is still learning about stuttering in order to better help my future clients, was there anything in particular that really helped, or maybe something they said that really stuck with you from any of the speech therapists you worked with over the years?
Hi! thank you for reading my post. We have a relationship with our speech just like we have a relationship with our body, or certain body parts, and they change as we learn and grow as people. Stuttering is no different. Having an SLP who will just listen to us means so much. When I was in my early teens, my SLP at the time would take me to a pizza place near her office and I would be able to voluntary stutter/ stutter in public. Having the ability to do that with someone supportive close by really helped.
Hello,
From reading your story, it is obvious you have experienced lots of growth in regard to your communication. I think your story was raw, true and so beautiful. I think it takes a lot of courage to be this honest, but it can be so inspiring for others.
H! Thank you for reading my story. I look forward to continuing the growth.
Michelle, thank you for sharing your experiences in speech therapy. I am a second-year graduate student right now and am working with middle schoolers who stutter. Many of my sessions leave me feeling defeated because some will participate in the strategies and some will not… this also applies to discussing how they feel and the more therapy aspect of stuttering speech therapy. I agree that there is more to therapy than teaching strategies. I have a few students who have no complaints about their speech and would like to move on from speech therapy. I think it is great that you have advocated for yourself and found a therapist that matches your needs. I found your perspective informative, thank you!
Hi! thank you for reading my post. Middle school and high school were hard, stuttering just adds another complicated layer.
Hi Michelle!
Thank you for your post. I personally do not stutter. However, I grew up being told “don’t think about what others say and be you”. Thank you for transmitting the idea of “just own it”. It is so true that nothing will hurt or change if you stutter. You did mention that voluntarily stuttering helps, I have a question about this. When you voluntarily stuttered, did you stuttering characteristics that you already use?
Hi! thank you for reading my post. I don’t think that secondary stuttering characteristics transfer over when you voluntary stutter. You’re stuttering on purpose and the usual tension isn’t there.
Hi Michelle,
I think your submission was eloquently written. This quote stood out to me, “It can take years to find a speech pathologist who has a philosophy you agree with, who you work well with and can trust, because sometimes speech therapy is less about speech and more about therapy”. The difficulties of finding the right therapist for your specific needs are rarely discussed when people begin looking for a therapist in any discipline. I am not a person who stutters, but as someone with bipolar disorder, I relate to that sentiment. Thank you for sharing a small excerpt of your journey toward self-acceptance.
– Kierstin
Hi! thank you for reading my post. It takes time to find someone you vibe with, but it’s worth it when you do.
Hi Michelle,
Thank you so much for writing. I’ve been learning a lot about acceptance for stuttering lately and it sounds like you’ve reached that. It is okay that your brain isn’t wired for fluency. Nothing bad is going to happen if you stop jumping through the hoops and let stuttering happen. I’m so glad you were never discouraged from talking, and you have found comfort with others who stutter from a young age. I’m also glad that as an adult, you get to be the change you needed for children who stutter and help make the world a more accepting place.
Hi! thank you for reading my post. Stuttering is seriously complex, and I’m happy to be the change; nobody should have to go through the same trial and error.
Michelle, thank you for your share! How wonderful for you to have had such driven parents to search for the best advice they could find to give you the support you needed. My fear as an SLP is that there are so many that don’t get that early support. I love how you referred to those techniques as band-aids. While they are only a temporary break, sometimes we need that break to recoup and regather before tackling the bigger obstacle. Sometimes having those techniques can add to a person’s arsenal for getting through a moment or a specific obstacle. Someone mentioned that going through speech therapy, although not their preferred route, helped them learn about what stuttering was. I hope that you can find some truth in that, too. It is the education and the knowing what you’re dealing with as well as knowing what you can do and handle that gives you the upper hand. It’s great that you took the time to find the right fit for you in speech therapy. I can only hope that other patients do that for themselves if they feel that they are not gaining what they need from their therapy experience. I can also say that I have great respect for therapists that refer patients on to another therapist that they believe would be a better fit. Thank you for your insight!
Hi Amanda, thank you for reading my post. Not enough people are aware of the resources available right now for families and adults who stutter. Not everyone knows about NSA conferences and national chapters and Friends conferences and programs for kids. Getting involved in the stuttering community earlier helps so much.
Hi Michelle
It makes me smile to read who you have become, happy with who you are. I made that journey too, but it took way too many years. So I hope younger PWS will read this as well and SLPs will share it with kids and teens. As, having been a camp leader for years, and having struggled for so many years myself, that moment of liberation, the feeling of self-worth, is GOLD! And i wish all PWS will find that feeling one day. While others who are only focussed on how the words come out should instead get therapy to learn how to listen respectfully. 😉 Thanks so much for sharing.
Happy ISAD and keep talking
Anita
Hi Anita, thank you for reading my post. The journey is ongoing, but I’m excited to share what I can right now at this point in my life.
Your post beautifully captures the complexity of the stuttering experience and your personal journey towards self-acceptance. It’s inspiring to read how you’ve embraced your unique path, found gratitude in the support from your family, and discovered a community that understands the challenges of stuttering. Your perspective on the limitations of fluency-focused techniques and the need for the world to adapt to those who stutter is enlightening. Your journey to find a speech pathologist who aligns with your needs is a testament to your determination and self-awareness. Your message about the significance of self-acceptance and not being ashamed of stuttering is truly empowering and a valuable insight for others facing similar challenges.
Hi Josh, thank you for reading my post. I appreciate your comment. Stuttering is complex, and the journey is even more complex, and I can’t wait to see where it leads me next.
Hi Michelle!
I am a student studying to be a speech-language pathologist and the perspective you provided in your presentation was very enlightening. It was a good reminder of how important it is to help the whole client. It is certainly not one size fits all! As we work with clients, we should seek to know and target what it is they want to get out of therapy. In working with people who stutter, I think it will be just like you said, an equal amount if not more therapy than speech therapy. Your presentation gave me some helpful aspects of fluency therapy to think more deeply about. Thank you for sharing your story!
Hi! thank you for reading my post. Seriously, even if we aren’t in speech therapy, we need talk therapy, and that aspect should be understood more.
Hi Michelle! I am a student in a communication disorders class at university and I chose to read your story as a part of an assignment this week. I loved hearing about your childhood experiences and how they affected your views on stuttering as an adult. I was hoping you could give me some insight on anything you might have wished anything had been different about the way your stuttering was handled or treated during the early years of your life. Thank you so much for sharing your experiences! 🙂
Hi! thank you for reading my post. I think my stuttering was handled as well as it could be with the resources that were available. As a teenager, stuttering was so frustrating and I was still in speech therapy for modification techniques. I wish I had started avoidance reduction therapy back then, but I also wouldn’t change anything about my journey because it helped me become who I am now.
Hi Michelle!
Thank you so much for sharing! I am studying to be a speech pathologist and your post has really opened my eyes. I really resonate with what you said about how speech therapy can be less about speech and more about therapy. We as the SLP often forget that therapy does not always have to be so clear cut and constantly driven by “strategies”. Thank you so much for sharing your story and experiences!
-Alana
Hi! thank you for reading my post. Sometimes the feelings behind the speech need more help than the actual speech.
Dear Michelle,
My name is Kiera and my group members are Josie and Haleigh. We read this article you wrote and we wanted to thank you for sharing your story! We are second-year Masters students and learning as much as we can from people who stutter. The biggest takeaway from our class on fluency is that there is no 1 correct treatment or approach. Sometimes the best thing we can do as future SLPs is just be supportive of our clients perspectives and create a safe environment. It may not mean much from a few strangers on the internet, but we are so proud of you! Again, thank you for sharing your amazing story!
Hi Kiera Josie and Haleigh, thank you for reading my article. I’m so glad you took that from your class on fluency. Maybe the best treatment for fluency is not caring about fluency. Just because words come out differently, it doesn’t mean there’s a problem that needs to be fixed, it’s about perspective. Between having someone who wants to change the way you speak and having someone who you know will listen to you, having someone who will listen to you means so much more.
Your statement, “Sometimes speech therapy is less about speech and more about therapy.” really stuck out to me. As a student clinician, it upsets me that so many people report to go through SO MANY speech and language pathologists or specialists, before they find the right one, or in some cases give up. As a graduate clinician and future SLP, my hope is to gain the knowledge in order to be that ”right one” and help clients feel safe, supported, and heard.
Hi! thank you for reading my post. The trial and error of finding a good SLP is frustrating, but worth it when you find one you vibe with. The relationship you have with your SLP goes a long way with stuttering. For children in speech therapy, their SLP works with them, and deals with what their parents are worried about also. As an adult in speech therapy, your SLP can be more of a friend and confidant, which is much different and means so much. So sometimes we don’t find an SLP who who understands what we need until we’re adults and do need more therapy than speech therapy to recover from the speech therapy we had when we were younger.
Thank you to everyone who read my paper, I’m happy that I could share my experiences and a new perspective. Stuttering is complicated and I’m so glad that you’re taking the time to learn more from us.