Faith Leung Hiu LamAbout the Author:

My name is Faith Leung. I am a registered SLP, a specialist in stuttering treatment in the Chinese language. Currently, I serve as the Vice President of Professional Clinical Education at the Taiwan Stuttering Association. With over a decade of experience, I find myself especially passionate in stuttering treatment. Over 90% of my caseload are people who stutter, including adults and children. What I find most rewarding in my work is the unique alliance I form with my clients, journeying together to explore their stuttering. It brings immense satisfaction to witness people realizing that they have magnificent wings and they can fly up high. This makes me feel I have the power to set people free. I am wholeheartedly committed to continuing my service for this remarkable community.

What is stuttering? In 2022, the World Health Organization (WHO) presented the eleventh edition of the International Statistical Classification of Diseases (ICD-11), in which stuttering is classified as a developmental speech fluency disorder. Stuttering is characterized by interruptions in speech flow due to involuntary repetitions, blockages, and prolongations of sounds, syllables, words or phrases. People who stutter often describe their experience as “knowing exactly what I want to say, but couldn’t say it.” Some individuals may also exhibit secondary behaviors such as facial grimacing, eye blinking, involuntary head or other movements. 

Many studies have pointed out that the neural network of people who stutter is more sensitive and vulnerable than those who do not stutter. It was found that developmental factors, environmental factors and learning factors determine the onset and development of stuttering. (Packman, 2012). Research indicates that stuttering typically emerges between the ages of 2 to 5 years old (Yairi & Ambrose, 2013). Approximately 5% of children in the population experience stuttering. Spontaneous recovery occurs in 70-80% in these cases. The prevalence of stuttering in the adult population is about 1%. 

People who stutter may accumulate frustrating experiences in their life. These experiences bring them negative feelings and emotions. As a result, the social bonding, communications, participation in work and life can be hindered. Dr. Sheehan (1970) introduced the iceberg theory of stuttering – The overt aspect of stuttering is just the tip of the iceberg. Beneath the water, negative feelings, such as anxiety, fear, shame, frustration, constitute a bigger part of the problem. Consequently, an integrated approach combining fluency and psychosocial interventions yields more favorable treatment outcomes.  

For speech therapy, people who stutter can practice fluency shaping techniques to enhance speech fluency. Also, stuttering modification reduces the severity of stuttering and negative emotions resulting from stuttering. It helps us stutter in an easier way. In psychological intervention, systematic desensitization is helpful for reducing social anxiety. Moreover, cognitive behavior therapy is widely used for cognitive restructuring by modifying unhelpful thoughts. Both approaches target stress reduction during social interactions, enabling more relaxed communication. Meanwhile, mindfulness training is effective attentional training. It helps people who stutter be fully present, thereby minimizing anxiety stemming from past experiences or future concerns. They would be more focused on what they are doing at the present moment. 

In conjunction with speech strategies and psychological methods, self-exposure and participation in stuttering support groups contribute to overall treatment efficacy. There are numerous ways to tell people about our stuttering. One of my favorite self-announcements comes from my client, Jen H, a doctoral graduate working in a U.S. company, positioning herself in a public event:

“Hi, thanks for having me today. It’s my pleasure to be here. Before we start, I’d like to tell you something about myself. This is not about my title, education, or career, and it’s personal. In the event today, you might notice that, while speaking, I may sometimes repeat words, pause at an odd timing, or overly use filler words. This is how I speak. Some call it stuttering. About 1 in 100 are stutters, and I am one of them. 

I have stuttered since I was a kid. Since then, I have grown with it and it is still a part of me thirty years later. Think of it like sports – some people run fast and lift heavy weights. Some people don’t. In terms of speaking, even with training and practice, I speak slowly and strenuously. People ask me if it’s because English is my second language. Yes and no. There are certain sounds that are difficult for me to make. I have fewer words to switch while speaking English, but I also stutter in Chinese. 

I can’t change the way I speak, but we could change how we listen and participate. In today’s event, I hope for a fruitful discussion where the focus is on what is said, not how it is said. If I stumble a word at any time, please feel free to jump in and finish it for me. I won’t be offended at all and would greatly appreciate your help. Thank you.”

Jen embraces the difference in her way of speaking. She is brave and openly talks about something that was once “unspeakable”. She is now working on an introduction about her stuttering for her parents. This would be a more intimate and emotional piece. Jen understands the importance of tailoring self-exposure to different audiences.  Can’t agree more! There are so many different treatment approaches and ways of self-advertisement. One size does NOT fit all! Flexibility and individualization are of utmost importance in successful stuttering treatment. 

Reference:

Packman, A. (2012). Theory and therapy in stuttering: A complex relationship. Journal of fluency disorders37(4), 225-233.

Sheehan, J. G. (1970). Stuttering: Research and therapy.

Yairi, E., & Ambrose, N. (2013). Epidemiology of stuttering: 21st century advances. Journal of fluency disorders38(2), 66-87.

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Comments

We Are Our Best Advocates For Stuttering – Faith Leung — 18 Comments

  1. Faith- I enjoyed reading your article as I was intrigued by the title of advocating for yourselves as stutterers. I am currently an SLP graduate student always looking for self-advocacy ideas. Your inclusion of Jen’s self-announcement in your article was beneficial to read as it provided a great example for potential future clients who stutter. Your article is certainly something I would share with these individuals as it was great to read about other’s successes with self-exposure.

    • Thank you so much for your kind words and feedback on my article. It’s great to hear that someone found my article valuable, especially someone like you who is studying to become a SLP.

      It’s encouraging to know that you found the inclusion of Jen’s self-announcement beneficial. Self-advocacy is such an important aspect of supporting individuals who stutter, and I’m glad that Jen’s example resonated with you. I hope the article can continue to serve as a helpful resource for you and your future clients who stutter.

      If you have any more questions or if there’s anything specific you’d like to discuss further, please feel free to let me know. Good luck with your studies in SLP!

  2. Hi Faith, what a great, informative article! One piece of information you shared that really struck me was about the psychosocial intervention piece of therapy for people that stutter. I feel as though the counseling/psychosocial piece of speech therapy is not well known although it is arguably one of the most important factors. Training strategies for advocacy, support groups, and mindfulness are great ideas. I’ll be sure to share this article and its tips with my future clients and families!

  3. Thank you so much for your kind words and for taking the time to read my article. It’s wonderful to hear that you found the information about the psychosocial intervention aspect of stuttering therapy to be striking. I completely agree with you; this facet of therapy often doesn’t receive the attention it truly deserves, even though it can be a crucial component in the journey towards improved communication.

    I’m glad you found the advocacy strategies, support groups, and mindfulness ideas valuable. These elements can truly make a positive impact on the lives of clients and their families.

    Feel free to share the article with your future clients and their families, as it’s my hope that the information can be a helpful resource for them. If you ever have any more questions or if there’s anything else related to stuttering therapy that you’d like to discuss, please don’t hesitate to reach out.

    Best wishes in your work with future clients and families!

  4. Faith, I loved your quote of “I can’t change the way I speak, but we could change how we listen and participate”. I think that is so powerful! Unfortunately, people who stutter do tend to have negative psycho-social experiences. However, this article is great reminder that advocacy, education, and counseling is so important to provide for PWS and families!

    • I’m thrilled to hear that you found the quote, “I can’t change the way I speak, but we could change how we listen and participate,” powerful and meaningful. It encapsulates a central idea in stuttering advocacy and therapy – focusing on creating a more inclusive and supportive environment.

      You’re absolutely right that people who stutter often face negative psycho-social experiences, and it’s essential to address these aspects along with the speech fluency itself. Advocacy, education, and counseling play crucial roles in empowering individuals who stutter and their families. These support systems not only provide information and guidance but also help build confidence and resilience.

      The more awareness and understanding we can spread about stuttering, the more we can reduce the stigma and misconceptions surrounding it. This, in turn, creates a more compassionate and inclusive society where individuals who stutter can thrive. I appreciate your positive feedback and your recognition of the importance of these efforts. Thank you for engaging with the article!

  5. Hi Faith, This is a very informative article and does a great job of touching on the many points that arise when stuttering is brought up. The psycho-social and technique based approaches combined together I believe are crucial in helping PWS identify what is impacting them the most and targeting acceptance/confidence. As a PWS myself, I found myself finding that both these components, including mindfulness, can help negate those negative past experiences and thoughts while also teaching the individual to live in the moment and enjoy the now. I am a little curious, what are your preferred methods of CBT? What have you seen work and what does not? As someone who is receiving similar counseling, I am curious if my methods are similar or not.

    • Hello, and thank you for your thoughtful comment! I’m delighted to hear that you found the article informative and that it resonated with your experiences as a person who stutters (PWS).

      I completely agree that combining psycho-social and technique-based approaches is crucial in stuttering therapy. This holistic approach can help individuals identify what aspects of their stuttering are impacting them the most and target acceptance and confidence, as you mentioned. Mindfulness, as part of this approach, can be a powerful tool in promoting self-acceptance and living in the moment.

      Regarding your question about preferred methods of Cognitive-Behavioral Therapy (CBT), it’s essential to recognize that the effectiveness of CBT can vary from person to person, depending on their unique needs and preferences. Some methods that I have seen work well in CBT for stuttering include:

      Cognitive Restructuring: This involves identifying and challenging unhelpful thoughts and beliefs about stuttering. By changing negative thought patterns, individuals can develop a more positive and accepting mindset.

      Exposure Therapy: Gradual exposure to challenging speaking situations can desensitize individuals to the fear and anxiety associated with stuttering, allowing them to confront their fears and build confidence.

      Relaxation Techniques: Techniques such as deep breathing, progressive muscle relaxation, and visualization can help manage anxiety and improve overall emotional well-being.

      Communication Skills Training: Learning effective communication skills can enhance one’s ability to navigate speaking situations with confidence.

      Self-Monitoring: Keeping a journal or log of stuttering experiences and related emotions can help individuals gain insights into their speech patterns and emotional responses.

      The key to successful CBT is often the individualization of the therapy. What works best for one person may not work as effectively for another. Therefore, it’s essential to collaborate with a qualified therapist who can tailor CBT techniques to your specific needs and goals.

      It’s great that you are receiving counseling and exploring various methods. This openness to different approaches can help you find what works best for you and your journey towards increased acceptance and confidence. Keep up the positive work, and feel free to share your experiences and insights with your therapist to further enhance your progress. Thank you for sharing your perspective and questions!

  6. Hello Faith,
    As a current speech language pathologist graduate student I found your article interesting and informative. I enjoyed how you tied research and found evidence with real experiences to make your very strong and well written post. That being said, as a stuttering expert, how would you recommend a young therapist navigate helping an individual gain confidence versus teaching techniques that are seen to “fix” the problem like stuttering modification? I know in an ideal world we would work on acceptance and then use our expertise to increase fluency across all situations. However that does not always happen or is possible.

  7. Hello, and thank you for your kind words and insightful question! I appreciate your interest in the article and your dedication as a speech-language pathology graduate student.

    The balance between helping individuals gain confidence and teaching techniques to enhance fluency is a fundamental consideration in stuttering therapy. It’s important to recognize that every individual who stutters is unique, and their needs and goals may differ. Here are some recommendations for navigating this balance:

    Individualized Approach: Tailor your therapy approach to each client’s specific needs and preferences. Start by conducting a thorough assessment to understand their experiences, goals, and any psychological or emotional challenges they may be facing.

    Collaborative Goal Setting: Collaborate with the client to set realistic and client-driven goals. Some individuals may prioritize improving fluency in specific situations, while others may focus more on self-acceptance and confidence. The key is to respect and support their goals.

    Holistic Approach: Consider integrating both fluency-enhancing techniques and confidence-building strategies. This way, clients can develop a well-rounded set of skills that address both their speech and psychological aspects. It doesn’t have to be an either/or approach.

    Empowerment through Education: Educate your clients about stuttering, its neurological basis, and the range of treatment options available. This knowledge can empower them to make informed decisions about their therapy journey.

    Stuttering Modification: Stuttering modification techniques can be valuable in helping clients manage their stuttering more effectively and reduce the emotional impact. However, emphasize that these techniques are not about “fixing” stuttering but about improving communication.

    Gradual Exposure: Gradual exposure to challenging speaking situations, along with systematic desensitization, can help individuals build confidence in real-life scenarios.

    Mindfulness and Acceptance: Incorporate mindfulness and acceptance-based practices to help clients develop a more positive relationship with their speech and enhance self-acceptance.

    Support Groups: Encourage clients to participate in stuttering support groups, where they can connect with others who stutter and share experiences, which can be empowering and confidence-boosting.

    Remember that the ideal therapy approach varies from one client to another, and there’s no one-size-fits-all solution. Flexibility, empathy, and active collaboration with your clients will be key to helping them achieve their therapy goals. Your dedication to understanding this balance is a great step toward becoming an effective speech-language pathologist. Best of luck in your studies!

  8. As a speech-language pathology graduate student, this article was very informative. It ties in well with what I’ve been learning in my fluency class. I feel like I’m learning more and more about how counseling is such a huge part of what we do and how important it is. It is so powerful to hear about clients or patients advocating for themselves like in Jen’s case. Thank you for sharing that story. Sometimes graduate school can feel very draining and discouraging at times, but this article was such a good reminder of how we can make a difference in people’s lives.

    • I’m delighted to hear that you found the article informative and relevant to your studies as a speech-language pathology graduate student. It’s great that you’re making the connection between your fluency class and the importance of counseling in your field.

      Jen’s story indeed serves as a powerful reminder of the impact speech-language pathologists can have in people’s lives. Advocacy and self-empowerment by clients or patients can be truly inspiring.

      I completely understand that graduate school can be challenging and draining at times, but your dedication and passion for making a positive difference in people’s lives are commendable. Always remember that your work holds the potential to transform lives, and you are on a rewarding journey to make that difference.

      Keep up the fantastic work, and thank you for your commitment to your field.

  9. Hi Faith

    Thank you for giving your clients a voice. Sure, others can speak for us, but for us to use our voices, explain stuttering, talk about our needs, without apologizing, is a great opportunity for both the PWS to get the elephant out of the room, while also opening doors for the listener to understand and give opportunities to ask questions.

    Happy ISAD and keep them talking

    Anita

    • Hello Anita,

      Thank you for your kind message. You’ve highlighted the importance of giving people who stutter a chance to speak up and share their experiences. It’s a way for them to talk about stuttering, express their needs, and not feel like they have to say sorry for being themselves. This helps those who stutter to address any concerns people may have and also encourages others to ask questions and learn more.

      Thank you for your support. I look forward to meeting you at upcoming events for people who stutter very soon! Happy International Stuttering Awareness Day to you as well!

  10. Faith, this piece provided information about stuttering in a concise and meaningful way, I enjoyed reading it immensely! I am currently in a graduate program for speech language pathology, and am in a stuttering based course this semester. I thought the inclusion of your clients self- announcement strategy was great, and very interesting. In my stuttering class we discussed how self-announcing is preferred by many people who stutter. We also heard accounts from people who stutter that shared their negative experiences with self-announcing. What is your opinion on avoiding self – announcing, or how to help someone through the negative reactions they received when they did this?

    • I’m glad to hear that you found the piece informative and engaging. It’s wonderful to know that you’re pursuing a graduate program in speech-language pathology with a focus on stuttering. It’s a field where your insights and knowledge will make a meaningful impact.

      The topic of self-announcing is indeed interesting and can vary greatly from person to person. While many individuals who stutter find self-announcing to be an effective and empowering strategy, it’s essential to recognize that it may not be the right approach for everyone.

      When it comes to self-announcing, it’s crucial to approach it with flexibility. It should be a choice made by the person who stutters based on their comfort level and the specific situation. Some may embrace self-announcing as a means of self-expression and reducing anxiety, while others may prefer different techniques.

      Negative reactions to self-announcing can be disheartening. To help someone through such experiences, it’s important to:

      Offer Support: Be a source of understanding and encouragement. Let them know that it’s okay to face challenges, and that negative reactions from others do not define their worth.

      Discuss Alternatives: Explore different speech techniques and strategies, helping the individual identify those that work best for them.

      Empower and Educate: Educate them on the importance of educating others about stuttering. Encourage them to share information about stuttering with their friends, family, and acquaintances, which can promote better understanding and acceptance.

      Therapeutic Intervention: If the negative reactions are causing significant distress, consider working with a speech-language pathologist to develop a customized therapy plan that includes desensitization techniques and strategies for coping with difficult social situations.

      Remember, every person who stutters is unique, and the approach to managing stuttering should be tailored to their specific needs and preferences.

      Wishing you success in your graduate program, and thank you for your dedication to helping those who stutter.

  11. Hi Faith! What an excellent synopsis of the definition of stuttering. I enjoyed how you presented scientific evidence in conjunction with personal anecdotes from PWS. This was insightful yet palatable for those unfamiliar with the realm of stuttering to digest. Great job!

    • Thank you for the positive feedback! I’m thrilled to hear that you found the article’s presentation of the definition of stuttering, combining scientific evidence with personal anecdotes from people who stutter, to be insightful and easily understandable for those new to the topic.

      It’s my goal to make stuttering information accessible and engaging, and your positive feedback is truly appreciated. If you have any more questions or want to learn more about stuttering, please feel free to ask.

      Thanks for your support!