I have lived a relatively easy life so far. I am healthy. I live in a nice neighborhood and go to a good school. My family is well off, and I am surrounded by kind people. The only hardship I have ever had is having a stutter, which has hung like a rainy cloud over my otherwise sunny life. Though I have mostly overcome it, the normalization of stuttering is important to me because of the impact it had and continues to have on me and over 80 million people i.e. 1% of the world’s population.
Stuttering is something every single person I’ve talked to claims to do when they are nervous. However, what they are experiencing during these stressful circumstances are momentary disfluencies. Real stuttering, on the other hand, is when someone frequently experiences severe disfluencies, often anticipating them. Stuttering also often involves physical tension in some part of their body as they try to force out the word they wish to say. It is a funny disability, appearing and disappearing at its will. Thus, stuttering does not invite the compassion of a persistent disability, such as speech or hearing impairment, motor functions, or the more severe developmental challenges. Society often unknowingly mocks stutterers, denying them a chance to fully participate in any activity that involves talking. To give a real-life example, many stutterers find it difficult to say their name when asked for it. People almost always ask, “Did you forget your name?”. Sure, it is a joke, but that joke just rubbed salt on a raw wound.
There are a few tricks stutterers, including myself, use. We try to change the word we want to say to something else of similar meaning or pronounce the word a little differently to make it easier to get the word out. But either way, our brains are constantly working overtime trying to quickly find synonyms on the spot along with already being overwhelmed with the usual anxiety of just trying to talk. Even for those who claim to have overcome stuttering, the fear of stuttering and being judged is always at the back of their minds. It causes unnecessary anxiety, stress, and fear about something that is a vital skill every single person needs to have.
I think the main cause for all this is that stuttering is not something that is seen as normal by people. Everyone, including stutterers, think stuttering is abnormal and weird. We have to change this mindset. People need to understand that every single person has disfluencies and while stutterers may experience more severe and frequent moments of disfluencies, we all need to understand that this is normal. Just like how some people might be taller or shorter than others, some people are more or less fluent than others. If we consider a wide range of heights as normal, why can’t we consider a wide range of amounts of disfluencies as normal? Differences between people are so incredibly important to society so it is crucial to embrace and enhance these differences. However, none of this normalization and acceptance is possible if stutterers continue to hide their stutter or shy away from activities that might expose it in front of other people. I’m guilty of doing this as well but I’m working on doing everything I want and saying everything I want to say. I believe every other person can do exactly what I’m trying to do as well. To all the stutterers and people who feel like they can’t be themselves, you can do this! After all, “If you desire to make a difference in the world, you must be different from the world.” – Elaine S. Dalton.
Hello Dhriti Rao, I want to start out by saying this article is very powerful and insightful! As a future SLP, I really appreciate your insight into how PWS feel during moments of stuttering because it allows for a better understanding when working with clients. I think it is amazing that the future generations include young adults such as yourself with such a positive and encouraging mindset for change and equality. I agree that the general population needs to be further educated on disfluencies and that everyone has them. I also liked how you discussed the idea that society needs to adjust their viewpoint and embrace difference, so that PWS are not the only populations expected to make changes. Overall, I really enjoyed reading this article and I think it includes important ideas that will be the steppingstones for embracing change and implementing it for future generations to come! Thank you for sharing!
Hello! Thank you so much for your comment! I feel even more encouraged now to continue to encourage the inclusion of stutterers.
Hi Dhriti!
Thank you for sharing your story. This was beautifully written and very compelling. Dhriti, you make such a great point that stuttering should be normalized and better accepted by society in order to create a safer and more comfortable world for all people, including PWS. We need to continue encouraging change and advocating for PWS. Everyone deserves to have a voice and deserves to be heard, no matter how you may say it. Thank you for sharing your story!
Hello! Thank you so much for the compliment! I’m ecstatic that you, and many others, agree with my message about how the world needs to change to be more inclusive.
Hi Dhriti,
This is a great article! I love how you incorporated a description of your home life because most of the time, people believe PWS always live somewhere trashy when that is not the case. You are totally correct that we need to change the negative mindset that most people have toward PWS. Thank you for sharing!
Hi Sarah! I’m glad that being a little more open and raw allowed for a common misunderstand to be addressed. Thanks for commenting!
Hi Dhriti,
Thank you for sharing. Your post is very insightful and compelling. It is very unfortunate that PWS are not treated with the same compassion as individuals with other challenges. Social participation and the normalization of stuttering are excellent strategies to move away from stigmatization.
Hello! I completely agree, let’s all do our part to minimize stigmatization! Thank you for sharing.
Wow Dhriti. I hope all the teens in the world (even those who don’t stutter) read your paper. And all parents, teachers and speech therapists. As there is so much truth, honesty and wisdom in your presentation. We don’t need to be fixed. We need to simply be allowed to be who we are. Yes, we are all different. So are the colors of the rainbow. And don’t we love watching that. Thank you so much for writing this and I hope to read more from you next year.
Happy ISAD
Anita
Hi Anita! I love your analogy to the colors of the rainbow! I think it’s a beautiful comparison that really helps reinforce my message. Thanks for the comment!
Hi Dhriti!
First off, this was well said and far past due! I’m so grateful and inspired to hear your perspective as a young adult part of a community that is, as you stated, “abnormal and weird.” I do not identify as an individual who stutters, but I agree wholeheartedly that you deserved to be treated just as fairly as people who have typical dysfluencies.
I appreciated your self-reflection that you want to work on being less afraid of discrimination, and I agree that there is a social issue related to the treatment of individuals who stutter, young and old. What are some ways you’d target those social issues to debunk the stigma in your community?
I look forward to hearing from you, thank you so much for your share!
Kori L.
Hi Kori! Thank you so much for the insightful comment! I think the main way I would debunk the stigma in my community is to talk more openly about stuttering. To this day, I still sometimes hide my stutter by choosing different words or pausing instead of stuttering. And, because I don’t really stutter the “classic way,” people don’t know I stutter unless I tell them so when they unknowingly tease me about the way I talk, I just sort of laugh it off. In these instances, I would make sure to not hide my stutter and tell my friends the reason for why I talk that way to increase their understanding about stuttering. I would make sure to educate everyone I can about stuttering and how to be more inclusive of it.
Hello Dhriti!
To begin with I just wanted to thank you for taking the time to share your inspiring and motivational story. I admire that although stuttering has affected your life, you’ve still managed to get through the challenges that come with it. Don’t ever stop striving towards success regardless of how tough the circumstances can be. I’ve seen first hand how society has treated one of my friends who also stutters and was belitted because “he wasn’t capable” of doing the same things as someone as who doesn’t have a fluency disorder. Continuing to spread PWS experience’s will definitely help more people be able to understand that this topic should be normalized. No matter of our challenges we all face, we’re all capable of accomplishing the same exact things.
I look forward to hearing from you, thank you Dhriti.
Hello! Thank you so much for the encouragement! I will definitely continue to share my story and thoughts to promote inclusivity for everyone.
Dhriti,
You are amazing. I’m constantly impressed by you and so glad and thankful to know you. This paper is beautifully written and offers a very important perspective about normalizing stuttering. I do hope to one day live in a world that views stuttering the way that you discuss it here – just as normal and okay. Keep being you and stuttering fearlessly! ❤️
-Tiffani
Hi Tiffani!! Thank you so much for the encouragement you’ve given me these past few years. I wouldn’t have spoken out like this if I didn’t have you to support me!
To everyone who has read my article and/or commented,
Thank you very much for reading and encouraging me to strive to make our world a place that is more inclusive! Let’s all work together to make our communities better for everyone!
Thanks again,
Dhriti Rao