About the Author:

My name is Victoria Wiggins. I live in the UK with my 2 children, Sam and Abigail. You may have seen Sam on social media over the past few years. I do not stammer but Sam does, I have learnt so much about stammering over the past 12 years.

Raising a child with a stammer from a parent’s perspective 

I’m Victoria Wiggins, many of you will know me as Sam’s mum! Sam is the courageous, playful and loving little boy you may have seen on social media who just can’t stop talking!!

Sam has had a stammer since he could speak, when he was much smaller it didn’t really bother him very much and I don’t think he really noticed. When he reached the age of about five I noticed that he started to swap words and use words he found easier. Sometimes these sentences didn’t make sense. 

Instead of asking ‘what is that?’ he would ask ‘how is that?’ or instead of saying something is ‘warm’ he would say it was ‘hot’. There were certain letters that Sam really struggled with, ‘w’ being one of these letters. 

At times I could see the frustration as he tried so hard to get his words out, it broke my heart as a mum, and I wanted to make it better. We made an appointment with speech and language therapy, and I was hopeful they would ‘cure’ his stammer. All kinds of thoughts were running through my head…. How would he get a job?, kids in school would be mean!, how would he manage in the world!

At his first speech therapy appointment I cried. It was more like therapy for me, I asked so many questions. Sam was amazing, he played games, read books and wasn’t bothered about his stammer at all. At this appointment and the next few I learned that stammering couldn’t be ‘fixed’ it was the way he spoke and that it was OK. We learnt techniques to help Sam when he was finding it tricky such as slowing down my speech and getting down to his level when he was speaking. These techniques really helped Sam in the early days.

Over the next few years we worked on acceptance. I can honestly say that I believe this has been the key to Sam being comfortable with who he is today. Once I had accepted that Sam had a stammer, it didn’t need to be cured and that he was going to be OK, I was able to support Sam and help him to become a confident young man.

Sam has dipped in and out of speech therapy over the years and has learnt many techniques to use during his tricky times, such as sliding into words instead of bumping. Speech therapy has been very much led by Sam, when he feels he needs a little help he will ask to see his therapist.

One of the most valuable things Sam has done with his speech therapist was a presentation for his class. Each year at the start of a new school year he would present this to his new teacher and peers. In the early days the speech therapist would help but as Sam has become more confident he has presented this himself. It explains what stammering is, celebrities that stammer, how to help someone with a stammer and what not to do. Both Sam and I believe that education is key, by teaching children all about his stammer and how to help Sam, they have been very understanding and thankfully he hasn’t had to deal with much bullying or children being mean.

During lockdown Sam found his stammer very trick, probably the hardest it had ever been. (We use the words tricky and easy rather than good and bad. We don’t believe that stammering is bad, it is just the way some people speak.) Sam was very sad and asked a lot of questions about his stammer, he didn’t want to stammer anymore. We sat together and wrote down his feelings. Before long we had his first poem! We turned a negative situation into a positive and Sam began opening up about his stammer and wanted to help other children like him.

Over the last few years Sam’s confidence has grown, he has written many poems to help educate people and help other children like him. He has appeared in newspapers, the news, TV programmes etc. He now loves talking about stammering and feels more confident. Sam knows he will have a stammer most probably for the rest of his life. Yes, sometimes this does make him sad, sometimes he has down days but that’s OK. We all have down days, it’s what we do about it that counts.

Sam gets right back up, stands tall and talks, something he’s very good at. This boy loves to talk. I can’t stop him from talking; he even talks in his sleep! 

What I want to say from one parent to another is that it’s going to be OK. Sure there are going to be hard days but you will get through. Once I had accepted that this is the way Sam speaks as do many other people and I stopped trying to ‘make it better’, I was able to support Sam and teach him acceptance too. I believe that the reason Sam is so positive is because he isn’t trying to be ‘perfect’ , he isn’t trying to be ‘fluent’, he’s just being the best version of himself that he can be.

There have been times that Sam has come home from school in tears as someone has made fun of him, or times adults have asked him if he has forgotten his name as he couldn’t say it, but we have tried to prepare him for the big world. We have been open and honest and explained that you can’t control how other people behave. Unfortunately there are mean people out there who will make fun of you for all kinds of reasons. What he can do is control how he reacts, what he says and how he deals with situations. We have tried to make sure that he is prepared for these situations as best we can, but most importantly that he can talk to us about anything and there’s nothing we can’t sort out together.

Sam continues to educate the world about stammering by being seen and being heard, he’s helped so many children along the way and I am so proud to be his mum.

My final bit of advice. It’s going to be OK, reach out to other parents of children who stammer. My inbox is always open and I’m always happy to chat.

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Comments

Raising A Child With A Stammer From A Parent’s Perspective – Victoria Wiggins — 50 Comments

  1. Hi Victoria,
    What a lovely story and what an incredible relationship you have with your son. Thank you for being there for other parents to share your journey and provide support to them as well. As parents, we all struggle with developing resilience in our children and that is one of the most important traits that a child who stutters can acquire. Congratulations to all of your and Sam’s accomplishments! I look forward to hearing more from both of you in the upcoming years!

    • Thank you Ritathurman for your comment. Sam is amazing and makes me proud every day. It has been a journey but I feel we’re stronger than ever.

  2. Hi Victoria,

    Thank you for your lovely piece about how you and Sam negotiate your way through stammering. I have a daughter who stammers, though she is an adult now. I also stammer so it was quite emotional for me when she started stammering when she was 3.

    • Thank you for your comment.
      I wanted to write an honest post about the emotions and feelings from a parent of a child who stammers so that people didn’t feel alone. I know I’d have loved to chat to another parent in the early years of Sam’s life.

  3. sorry, hit post too early!

    I think it is important as a parent of a child who stammers to acknowledge that it can be difficult to deal with the emotional aspects themselves, wanting to help and not knowing how, feeling vulnerable because you see your child being vulnerable, dealing with the variability of stammering and giving emotional support to your child. It can be hard but you are right, educating yourself about stammering can make things easier.

    One of the things I did with my daughter was to make sure that she knew she didn’t have to deal with her stammer on her own, we could problem solve together. It made me feel a little less helpless about her stammer.
    And you are right, meeting other parents of children who stammer was incredibly helpful to me in my feeling not alone.

    Veronica

  4. Hi Victoria! Thanks for sharing your story. I think it’s wonderful that you asked so many questions when you met the therapist for the first time and educated yourself about stammering. And I love that Sam does presentations about stuttering in school. It sounds like a great way to disclose his stammer, educate his peers, and show them that it’s okay to stammer.

    • Thank you for your comment. It was really useful in the early days to have the speech therapists to ask questions and reassure me.
      His presentation has been one of the most useful tools to date.

  5. Hello Victoria,
    Your knowledge and sharing is beautiful. Sam is beyond blessed to have you, and you him. What a great team. I think your actions, understanding, and communication are brilliant. Wishing Sam continued success as he shares stuttering with the world in his wonderful caring way.

    Warmly, Nikki

  6. Victoria,
    Sam’s story is beautiful, and I know he is so lucky to have you as a mom. I am currently in Graduate School to become a Speech Language Pathologist, and I was looking to read something that gave insight into the world of stuttering, but different than what I learn about every single day. I am not a parent, yet, and as soon as I saw the title of your paper, I was very intrigued. I think that reading a first-person viewpoint is so insightful. Although, hearing from a parent is a super interesting viewpoint, as well, and one that is so extremely important. I think that PWS often feel misunderstood and unheard, but your approach allows Sam to feel heard and understood each and every day. I loved reading your words, and I thank you for sharing them with the world. Also, I LOVE the idea of him giving a presentation at the start of each school year, and moving into my career, I would love to implement that idea with my own clients. Thank you, again!

    • Thank you for your message.
      Sam’s stammering presentation has been one of the most useful tools, I believe it has been the reason children were so accepting in school and he wasn’t bullied about his stammer. Such a good resource

  7. Hi Victoria,

    Thank you for sharing your story! You are such a great resource for other parents of kids who stutter. I am sure that so many parents out there will read your story and feel comforted knowing that they are not alone in their thoughts and feelings. As a future speech therapist, reading about your experience and your emotions throughout you and your son’s journey has given me a lot of insight into how the parents of my future clients might feel. Keep up the good work!!

  8. Victoria,

    Thank you for sharing such a beautiful story. It sounds like both you and Sam have had quite an impact on the world and how you view stuttering. I love that through your own experiences, you have been able to use your knowledge and power to help other people understand stuttering. I am currently studying to be an SLP, and while I have knowledge on stuttering, I do not yet have knowledge on being a parent. Your experiences have been very insightful, and I will keep them in mind in my future practice.

    • Thank you for your comment. Our aim is to educate as many people as possible about stammering

  9. Hello Victoria, thank you so much for being the parent that you are right from the start as you know I have said what an amazing family you are. You are such a blessing to so many other parents out there . Sam is also such a gift . Love from Phyllis xxx

    • Hi Phyllis. Thank you for your comment.
      He is such a blessing, such an amazing little boy. Thank you

  10. Hi Victoria!
    I want to start by thanking you for such a beautiful story involving your son; you are a true adovcate for your son, and it seems like you are a wonderful parent. As I, too, am a parent, I found your information, knowledge, and personal experiences to be very helpful. While my children do not have a stutter, my youngest daughter struggles heavily with her reading, so I related to some of your thoughts and feelings very well. I feel like it’s so important to understand you are not alone, and this article conveyed just that. I feel like many people, including myself, will find this to be a very beneficial read. I so enjoyed how you turned a negative experience into a positive one by having your son write down his feelings; writing is such a therapeutic act, and it has really been proven to help. I also liked how you talked about having a stutter isn’t “bad,” but it’s “tricky.” I am an SLP A at an elementary school, and I feel like I can use the word, “tricky,” to describe stuttering. Thank you for sharing a little bit of your life and feelings with us all! I am thankful I got the opportunity to read it.

    • Thank you for your comment.
      I’m glad it was useful to you and you were able to take something from it.
      Yes we learnt at speech therapy quite early on not to call it ‘good or bad’ so we use tricky or easy.

  11. Hey Victoria!

    Thank you so much for sharing your story!! I love how open you are about your journey with Sam and how much you advocate for complete openness in your relationship with him. I think it is impressive how much growth he has shown even in his confidence to present his presentation on stammering to his classmates by himself. I was wondering how the disclosure process happens in new public places, like ordering at a restaurant. I feel like I would struggle as a parent to see my child stammer in public out of fear of someone hurting their feelings, but I also would not want to step on their toes if that is not something they want to disclose in public. What would you say has been the best method for these situations- does he typically disclose it himself if he is having a more tricky day, or do you sometimes disclose it for him?

    Thanks again for sharing!
    Tatum Carver-Dews

  12. Thank you for your comment.
    Sam has been very confident and is happy to talk in any situation, he generally orders his own food and will often start the conversation with ‘I have a stammer, please be patient’ this week’s to have worked well for him.
    Yes there have been times when he has really struggled or someone has made fun of him and I have stepped in. Sam will often give me a cue as to when to step in by tapping my arm etc..

    At the minute he’s really struggling with blocks and facial ticks that have knocked his confidence a little so he’s taking a step back. He often asks me to speak for him when ordering food or out and about. I’m sure this will settle when his stammer settles a bit.

    We have learnt to ride the wave and I very much let Sam lead. If he needs help he kist ask but usually he’s confident enough to tell people he has a stammer and to be patient.

    I hope this answers your queation

  13. Victoria, thank you very much for sharing about you and Sam’s journey with stuttering. Sam’s story brought to mind a lecture I sat in on where the importance of listening for speech language pathologists was highly stressed. In a classroom, the concept makes sense but is highly theoretical. Reading Sam’s story, and your story within it, makes the concept much more tangible. You’re last statement is profound: “It’s going to be OK…”

    May I ask: You mentioned going to Sam’s first therapy appointment where you learned that stuttering couldn’t be cured yet felt that it was going to be okay. Would you elaborate on what about that first therapy left you feeling hopeful? What made it feel like therapy for you? As a future speech pathologist, I’m interested in how this was conveyed.

    Grateful for you posting you and your son’s story!

    • Hi
      Thank you for your message.
      Sam’s first speech therapist was so reassuring, she told me to slow down and take one day at a time… Don’t worry about school, his future, being bullied etc… Concentrate on the now.
      She also said that many children have a stammer, if he still has a stammer after 18 months then the likelihood is that he will have it for life. After 18 months passed I stopped ‘trying to fix’ his stammer and worked on acceptance and confidence.

  14. Victoria, thank you for sharing your story and experience with your son. As speech-language pathology graduate students, we love getting the opportunity to work with clients and their parents toward a common goal. Your journey to learn about stammering and ways that you could support Sam is inspiring to read. Particularly, it is wonderful to read that you taught Sam that he cannot control others in the world and their actions/rude comments, but he can control how he deals with those situations. As you mentioned, a stammer is not “good” or “bad”. It is part of Sam and who he is, but he is so much more than that! Reading about his growing confidence and journey to educate others about stuttering is inspiring.

    A question for you: Can you provide an example of something you said to Sam when he was struggling emotionally with his stutter? Thank you!

    • Hi 😊
      Thank you for your message.

      When Sam is struggling emotionally I just tell him it’s OK… We all have easy and tricky days. Things will get better.
      It’s OK to have a hard day, it’s OK to be sad, it’s OK to be frustrated and I ask how I can help him feel better.
      We’ve learnt to ‘ride the wave’ we really embrace and enjoy the good days which then carry us through the harder days.

      Hope this answers your question

  15. Hi Victoria,

    I really appreciated the openness of your work, and just being honest about how in the beginning speech therapy for Sam was also therapy for you, and learning that no one could “fix” him, but that that would be his voice. It’s amazing to read of the progress he’s made, not just in speech therapy, but also in the world as far as being in local papers and news programs.

    If you don’t mind me asking, how did it feel as a parent to see your child go from frustrated and upset over his stammer, to being up and talking, especially when it came for him to be interviewed or talk with peers?

    Thank you!

    • Hi
      Thank you for your message.

      Of course its very hard to see your child struggling and you want to try and help. As a parent you can sometimes feel helpless. I try and remind him that there are easy and hard times. We ‘ride the wave’.. The happy times carry us through the more difficult.

      Whenever he’s feeling a little sad or frustrated I remind him of how far he’s come.

  16. Hi Victoria!

    I watched Sam’s video earlier. So, it was such an aha moment to make the connection between you two. First off, I just wanted to say you are an amazing mom! You are doing a great job raising such a confident young man! Thank you for sharing your story. As a student and someone who doesn’t have much experience with PWS, I learned a lot from your article. It was inspiring to read about how your perspective on stuttering shifted over time and your unique relationship with your son. I know other parents with children who stutter will truly appreciate you being so open about experiences.

    You mentioned that it took you a few years of working on accepting Sam’s stutter. Were there any pivotal moments that led you to be more accepting? Or was it a slow, gradual process?

    – Clarissa 🙂

    • Hi

      Thank you ☺

      Yes…. When we first saw a speech therapist, they said a lot of children have a stammer but most will grow out of it after 18 months. If it’s still there after 28 months them he’s most likely got it for life.
      I hung onto this 18 month period to try and cure or fix his stammer.once the 18 months had passed and I accepted it wasn’t going to be cured I worked more on acceptance and confidence

  17. Hi Victoria,

    Your story was very touching to read! You are a great mother so Sam. I would like to ask how you and Sam go about organizing your presentation to the class at school. Do you collaborate with the teacher or school SLP? I would love to hear more. Thank you for replying 🙂

    • Hi

      Sam put his presentation together with his speech therapist as a PowerPoint. In the early days the speech therapist would contact the school and ask to come in to present with Sam. As he got older he was happy to present it on his own.

  18. Hi Victoria.I enjoyed your story and journey. It was beautiful and I know that many other moms of children who stammer can relate to this in so many ways. I wanted to ask you with that being said, I wanted to ask, what about the first speech therapy session with your son left you hopeful?

    • Sam’s speech therapist was so reassuring. She had a really calming manner and told me to take one day at a time instead of worrying about the future. I was worrying about school, being bullied, future employment. She taught me to slow down and deal with each day as it comes. Over the weeks of therapy she helped me to feel more confident about Sam’s stammer

  19. Hi Victoria,
    Thank you for sharing your experience! I loved reading about how you were able to change your perspective from fixing Sam to understanding it was how he speaks!
    As a future speech language pathologist, my question is what would you like speech pathologists to know about stuttering?

    • I think for me it would have been useful for the speech therapist to have worked on acceptance from day one instead of telling me that lost of children have a stammer but most grow out of it after 18 months…. I waited for the 18 months before I accepted it and moved on.
      I think there needs to be more focus on success stories, acceptance and it’s going to be OK.
      Parents go to speech therapy looking for a cutmre or to make it better.

  20. Hello Victoria. Thank you for sharing this experience, I really enjoyed reading a parent’s perspective.

  21. Hello,
    I am very encouraged on your and your childs story.
    I was wondering on how your son makes the transition being discouraged to being happy and fine with his stammer. I have a five year old cousin who gets very frustrated and will refuse to continue speaking when he struggles with a word.
    What advice would you give me on helping my cousin accept his speech, and continuing rather than hushing his voice?

    • Hi

      I just tell Sam it’s OK. He can take as long as he wants.
      WHAT he has to say is far more important than HOW he says it.

      Lots of reassurance and encouragement that everyone is different. It’s OK to be different.

    • Hi
      We have easy and more tricky days and we just accept that every day is different. If Sam doesn’t want to speak then he doesn’t have to, I’m happy to step in and help.
      We try to celebrate differences and it’s OK to be different.
      Hope this helps

  22. Hi Victoria,
    Thank you so much for sharing your story. You are an amazing mom! I have two children and it’s so easy to get caught up on your child’s differences and how other kids/people may see them. I love how you taught your son how to deal with his negative emotions and turn them into something positive. Your son is such an inspiration! I love that he is educating his peers and teachers because this needs to be done. There needs to be more awareness. As a future SLP, what advice would you give me when working with a child who has a stutter?

    • Thank you for your message.
      I think the thing that helped me the most was realising tht a stammer didn’t need fixing and it’s OK. Once I’d accepted this I was able to supoort Sam and build his confidence. I think by telling parents it’s going to be OK and maybe pointing them in the direction of other parents for support. This may really help

  23. Hi Victoria!

    Thank you so much for sharing your and Sam’s story. I love how your family responds to any negativity or bullying with education. I think starting each year with a class presentation is an incredible way to prevent any potential rudeness or bullying; ultimately, I think Sam’s willingness to explain his stutter to his classmates is creating a more inclusive and accepting environment for all children in his classroom (how cool is that!!!).
    I am in school to become an SLP and one of the most impactful things a professor has said is that we should be far less concerned about how children are communicating and instead focus on what they are communicating. I think your words do an amazing job of emphasizing this idea. Thank you again for sharing!

    • Hi
      Thank you for your comment.
      Yes mosr definitely… Education is key for understanding and acceptance.
      What is said is far more important than HOW its said

  24. Hi Victoria

    You already know how much I love you and Sam, för the way you are there for each other. But I’m so happy you both raise awareness and tell your stories. There are so many parents still searching, having negative feelings and are looking for other parents to share with. Thank you for being there, for Sam and for other parents. <3

    Keep them talking

    Anita

  25. Hi Victoria,
    Thank you for sharing Sam’s story and your point of a few as a parent. As an older sister who has a brother who stammers, it was an emotional rollercoaster throughout elementary school. With my younger brother I would make sure he disclosed his stutter to his classmates before questions were asked that made him feel less of himself. It took a lot of courage and confidence with this but it made him into a great adult today. I am so happy you were able to acknowledge and process it efficiently not only for your understanding and knowledge, but for Sam also. Sam has a great support system with him and I love how understanding you are and wanted to educate yourself on the topic by asking as much questions as you can. Keep up the beautiful work and I wish Sam the best!

    • Hi
      Thank you so much for your message. He is such a special little boy. I’m incredibly proud of him

  26. Thank you so much for reading our story and all your wonderful comments. It’s been amazing to be a part of isad 2022 and we look forward to taking part again next year.