There are two questions people usually ask me: ‘For how long have you stuttered?’ and ‘What can you do to overcome it?’ I feel the second question is indicative of the discourse around stuttering, namely that it is mostly seen in a negative way. To put it simply, to stutter is bad and it needs to be cured. At least, this is how it has been in my experience. If you do not agree, based on your experiences or evidence you have, please feel free to share in the comments. To state my position however, I would like to share a few experiences supporting my view that stuttering is mostly seen as something bad. After that, I will propose a different view, in line with this year’s theme, the power of listening.
A few years ago I was asked to talk about my experiences as a person who stutters on a talk show on national television. Across the table from me sat a former member of the Dutch parliament, who had stuttered in her youth. She claimed she could never have become a representative if she had still stuttered, suggesting to the audience that speaking with a stutter is a negative thing. It has to be overcome in order to achieve your dreams, she claimed. This of course is one person’s opinion. But as recently as 2016, the Dutch Stuttering Awareness Day was focused on detecting and curing stuttering in young children. The sooner parents send their children to a speech therapist, the easier long-term stuttering can be prevented. That was the message both the Dutch stutter association and the association of speech therapists wanted to share that year. Stuttering is bad, it needs to be prevented.
These are just two examples. There are many more. I remember a poll held in a Facebook group, a couple of years ago, where someone asked if people would give up their left leg if it would make them speak fluently. Surprisingly, quite a few people responded with ‘yes’. But I also think of the many people who stutter I have met over the years, who have been bullied, have social anxiety or have a negative self-image because of the way they speak. Continuous criticism from family, ‘friends’, teachers or co-workers on your speaking can leave deep tracks in your psyche. I am afraid many of you readers will recognise this. I know I do.
That is why I fully support this year’s ISAD theme, the power of listening. When speaking does not come easy, listening becomes all the more important. Moreover, I have personally found that listening to a person who stutters can actually be quite relaxing, as long as you really take the time. So often we ask someone a question, but we don’t really want to wait for the answer.
‘How are you doing?’
‘Yeah, alright.’
‘Good. Bye now.’
And that’s the end of that conversation. With someone who stutters, this might not work. You can’t expect a quick answer, so you simply have to wait and take your time. Relax, and just listen.
(Fun fact, my wife has ADHD, but even she has learned to take her time listening to me and she finds it relaxing as well.)
The world around us is full of fast paced, quick conversations and we are overloaded by a constant flow of information. On top of that, listening to someone else often means thinking about what to respond instead of trying to understand the meaning of what they are saying. For a person who stutters, a quick response is often not really possible, so we can focus more on the listening. What is the other really trying to say? Perhaps their body language is not saying the same thing as their words? Listen first, answer next. I often use this as an example of how stuttering is not something negative, but a positive thing in my life.
There will of course be many essays, stories and videos on how PWS have the power to listen and how this can help in a polarized, fast paced world. It really is something we can teach the world. I look forward to reading many examples of how the power of listening has impacted your lives and those of others. But what I hope is that the stuttering community can take it a step further and use this as a way to change the discourse about stuttering. Instead of following the old narrative that to stutter is bad and that it needs to be cured, turn it into something positive. To stutter is not all bad. Don’t fight it, embrace it. Don’t ignore it, make it a part of who you are.
Tell others: ‘yeah, I stutter, but look at what it has given me. It has given me the power to listen, among other things.’ See if they listen!
Hi Rik,
When I read your title, my first response was: “You just can’t always look on the bright side!” But, then your paper went into the negative experiences your faced–the member of Dutch parliament should not be allowed to talk to anyone, by the way–and how you navigated the stigma, which I found hopeful. I would argue with you that you can’t always look at the bright side, some days will just be more difficult that others, some listeners will be more difficult than others and part of navigating that is surrounding yourself with people who listen to your message and not your stuttering. It sounds like you have done that. I often teach the kids I work with a chant that I learned from the work in REBT–“I don’t like it, it’s OK, I can stand it anyway.” There will always be positive and negative experiences with stuttering. I believe that recognizing that it is sometimes hard AND looking for the bright side creates a balance to understand this complexity.
Nice article, Rik, and yes, the discourse around stuttering being 100% negative has to change. I’m surprised and bit shocked that a member of the Dutch parliament would say such a thing, and I hope someone reached out and told her how damaging her words were. I like your attitude and your approach. Someone once told me “maybe people who stutter were put on earth to make people slow down!” and in this fast-pace world, as you say, that’s a good thing!
Best,
Gina
Hi Rik, I really like how you shifted the focus from stuttering being a negative thing to highlighting its positive aspects, like the ability to be a great listener. The part about your wife learning to appreciate listening to you was touching and added a lot of warmth to your story. I’m curious, was there a specific moment or person that helped you realize that stuttering didn’t need to be fixed, but could actually be embraced?
Hi! Thanks voor your reply and your question. If I would have to pinpoint one moment that really changed my outlook on stuttering, I think it was when I participated in a sort of ‘speech contest’. Me and ten others had to give a speech and the jury and the audience would choose the best one. I decided to fully embrace my stuttering, basically in order to win sympathy points 😉 It did help me to win the audience prize, haha!
So yeah, I think that was the moment that made me realize stuttering is actually not all bad 😉
Thank you for sharing your thoughts on this topic! I was somewhat surprised to read that you felt stuttering improved your ability to listen – I am a graduate student, and one of our recent guest speakers (a person who stutters) shared that stuttering can keep a PWS from truly listening because they are so focused on planning what to say next and how to avoid stuttering. However, this speaker was primarily discussing covert stuttering, which it sounds like is not your approach. I am curious whether you have related to that view (that stuttering distracts from listening) at any point in your stuttering journey? If covert stuttering has been a part of your experience, have you seen a difference in your ability to listen then and now?
Hi! Thank you for your question, it’s a good one!
First of all, I have personally never had any experience with covert stuttering, but I know people who do. I think the inabillity to listen is not that different from ‘fluent speaking people’. We all have a tendency to focus more on what WE want to say, than to first really listen to the other and then think about our response. So maybe the problem is not stuttering per se, but our own self-importance?
Hi Rik,
nice to see you again, even if only online!
In general, I agree with you: a conversation with a person who stutters is unpredictable, and this gets us out of the boredom of the useless daily chit chat.
I’d like to know if this helps you at work, at school (we’ve all had that boring professor who spoke in a monotone voice), and if you see this as a plus on a professional level as well.
Andrea
Hi Andrea, so good to hear from you again!
It’s a funny thing, but I have found that speaking with a stutter can help to keep the attention of people. For example, when I tell a joke and I have a block right at the clue, people really want to know what comes next. So they hang at my lips, so to speak, waiting for what comes next. Basically the same thing goes for my classes. At least, that is the feedback I get from a lot of my students.
Hi Rik,
We had the great honor of reading your text, which focuses on stuttering. The stories you shared allowed us to reflect deeply on the subject. Your text opened our eyes to how stuttering is perceived by society and, most importantly, to the challenges faced by those who stutter.
Like you, we believe that the negative discourse surrounding stuttering needs to change. We were somewhat surprised by the stories you presented, and we are saddened that stuttering is still regarded as a problem by contemporary society. We truly appreciate your approach and how you emphasize the importance of listening to a person who stutters, especially in such a fast-paced world.
First, listen, then respond—this message from your text is one we will gladly spread to the world!
We send you our greetings and thank you for such an important lesson.
Speech therapy students from the University of Silesia in Katowice
Dear Julia,
Thank you so much for your response! If we all work together and spread the word, we can hopefully break the negative discourse. The only way to do that is to be open and vocal about it.
All the best!
Hoi Rik 🙂
As always, you’re spot on. When I watch TV or watch a movie, even a children’s movie, I must have subtitles. As it seems we speak faster and faster, and it all seems to be in rapid speed. When I get a text, I get a sound every time a person clicks Enter. And before I can reply, there’s a new text. Yes, I’m getting older 😉 but it worries me that everything seems to be moving fast forward, not giving people (and expecially kids) time to really listen, take in what’s been said or written, and have time to come up with a respons. And in this FF world, here are we, people who stutter, trying to enter a conversation, not even getting time to take a deep breath. People tell us to speak slowly. Well, let me throw back that ball. As maybe it’s not us who need to learn to speak more fluent, but society to learn to listen.
Keep talking
Anita
Hi Anita,
I couldn’t agree more with you. We had a discussion at the Dutch Stutter Festival where someone mentioned that for most people with a disabillty society has to make changes. But when it comes to stuttering, we always have to adapt to society (speak faster!). Maybe we have to be more vocal about our needs? Let society adapt to us for a change.
All the best,
Rik
Hi Rik! Wow, you wrote such a well written essay and I really appreciated your viewpoint on a lot of ideas! I think a key distinction you made is that society itself is falling behind in their understanding of stuttering. It’s easy for people to say that the stutter itself is a huge problem that needs to be fixed or cured, rather than taking the steps to embrace the stutter and the person who has it. I had no idea that the Dutch government took that stance on stuttering, and I’m excited to research that further. Overall, great job on your extremely informative essay!
Hi! Thank you so much for your comment and compliment 🙂
Little disclaimer though: what I wrote was not the official stance of the Dutch government. It was one (former) member of our house of representatives who spoke on a personal note. What I found striking was that apparantly you can’t be a representative if you stutter… So yeah, there is still some work to be done!
All the best!
Hello Rik! As an SLP graduate student, your insights challenge the typical therapeutic discourse and remind us of the importance of shifting away from a “fix-it” mentality. Your suggestion to “embrace” stuttering as part of one’s identity rather than resist it is an empowering message; it encourages speech therapists to help clients find value in their speech patterns and to help educate society to see the beauty in diverse ways of communicating. I really enjoyed reading your perspective!
Hi, thank you so much for your comment! Yes, it is refreshing to look at stuttering from a different perspective. For me it as always been about embracing it, but I fully support everyone who does want to ‘fix it’. There is nothing inherently wrong with that, just as long as you do it because you personally want it. Not because family, friends, colleagues or society in general push you to it.
Thanks again and all the best!
Rik, I really enjoyed reading your work. I find it so interesting and sad that the former member of Dutch parliament talked about stuttering on national television with such a negative stance. As an SLP graduate student, it is so important to remember the positive outlook you wrote about when working with someone who stutters in therapy. Very inspiring!
Thank you so much for you comment. I hope you’ll be able to inspire others to keep a positive outlook on stuttering 🙂
All the best!