People who stutter teach the world the world to listen- that’s true, but it’s also a tall order. People already know how to listen, they just don’t do it very well. Honestly, I have mixed feelings about the phrase; saying that we teach people to listen or have patience is vague and demanding. We do what we can, with who we are. Maybe it’s just existing and communicating with people and stuttering openly. Maybe it’s being willing to discuss stuttering with strangers and being okay with answering the same questions over and over again, being asked if you’ve forgotten your own name, and listening to people suggest that you should sing everything. But not everybody is ready to be that person. We have the ability to teach people to listen and be patient, but it takes time to get to the point in our stuttering journey to be able to actively do that.
I’ve always said that I was lucky, but I wasn’t, I was privileged. I was privileged enough to grow up going to speech therapy (no matter how ineffective), be able to meet other kids who stutter early in my stuttering journey, and be involved in more than one stuttering community growing up. I grew up knowing and spending time with other kids and teenagers who stutter, and I can’t imagine how different I would be if it hadn’t been the case. However, stuttering communities and organizations have separated into age ranges. Some organizations and communities are mainly for kids and teens, others are mainly for kids/teens and their families, and others cater to all, but have separate groups within their own organizations.
When I turned 18, I aged out of the stuttering organization that I had been active in for close to 8 years, basically all my adolescence. Aging out of the community that I had grown to love, it felt like I had in a way lost my family. During my four years in undergrad, my still developing relationship with my stuttering was neglected, and lightly mended during the summer by spending a few weeks back in the arms of my beloved organization before being released back into the fluent world. At that time, unless I was able to find an NSA chapter nearby (that I would have to find transportation to, and I never did make it too a chapter meeting), I didn’t have anyone to talk to about stuttering except for any other student I could find on the tiny campus who stuttered too, and friends in the stuttering community I communicated with sporadically online. The transition to college and then the real world is hard, but it’s even harder without a support system for stuttering.
A person who’s more concerned about fluency is probably far more focused on not stuttering, than they are talking about stuttering as a whole. A child or teenager growing up working with an SLP who doesn’t know much about stuttering may not know how to have an in-depth conversation about the way stuttering makes them feel. Just because we have the unique opportunity, it doesn’t mean we are equipped or willing to teach. It’s a heavy burden to put on people before they are ready, willing, or able to talk about a very complex part of their lives. Look, I’ve always been impatient- with life, and with my own stuttering, and it’s taken a lot of speech therapy to feel differently and be okay with taking up other people’s time- to not be anxious about taking the time I need to say what I want/need to say.
We need to listen to and learn from each other. No parent wants to hear what their child thinks they did wrong when they were growing up, and I’m sure speech therapists don’t like to either. But it’s how we learn and improve, as people, and as a community to help support and create change for the next generations of people who stutter. Support groups as they are right now can only help so much, and the workshops at conferences are the same topics over and over again. Survey the stuttering community to see what people want to learn about and see who is equipped and willing to create and lead workshops about these topics.
There’s so much I can say about listening and how important it is; how important it is that we advocate for ourselves and demand people listen to us without interruption, how important it is to engage in the stuttering community to amplify our voices, but there’s also so much more to listening. It isn’t just making the world listen to us, we have to listen to each other as well. There is little consensus in the stuttering community; all of our journeys are different, we experience stuttering differently, have different concerns, thoughts, and ideas. So perhaps in order to create the most change, we need to survey the community and find out what the broad concerns are.
I propose that we de-center the idea that we- as people who stutter teach people to listen better, and instead centralize the power of speaking. The power of speaking is for us- our confidence, less anxiety, less struggle, saying what we want/have to say, and teaching people to listen better is a byproduct. I’m speaking for me- I’ll teach people to listen better and be patient if I want to, and through teaching, but I’m speaking for me. The point is, speak for yourself- not to teach (unless you want to). If you’re willing to teach through teaching, teach in a way that suits you. Teach people about stuttering and listening in a format that works for you. There’s so much power in being at a point in your stuttering journey where you aren’t afraid to talk and stutter out loud, where you aren’t focused on rearranging words, where you aren’t diminishing the meaning of your words because you’re afraid to say them. Teach through existing and being yourself; be someone worth listening to, and people will listen.
Hi Michelle!
What a powerful article! I am currently in my second year of graduate school for speech-language pathology and this article is very eye-opening. As I was reading the section on different age classes within the NSA chapters, I couldn’t help but wonder how does this separation by age impact people as they continue to develop and grow older, at least in your own experience? How did this situation impact your relationship with your stuttering as you were going through these stressful years of new transitions, school, jobs, etc.? I have enjoyed your perspective on the power of speaking instead of being a means to teach something to everyone. I think this is a very empowering perspective and I will work to apply this knowledge to any of my clients I work with in the future! Thank you for sharing!
Hi Audrey,
As you age up in the NSA, workshops and activities are more discussion based rather than playing games, which can be difficult when you can’t fully articulate your stuttering experience just yet. It’s really important that we stay in contact with other people who stutter, A lot of young people at the NSA wait all year to spend a few days with their stuttering friends at conferences. I do the same with friends I made at 25. Thanks for commenting!
Wow, Michelle, I really love this perspective. The power of listening is an immensely huge superpower, and you are right, it doesn’t just belong to people who stutter.
We can make an impact, as you note, when we are confident and accepting enough of our own stuttering, to speak up and share our truth while openly stuttering. Our listeners, if they care about us, will learn something, not necessarily because we stuttered through talking but through the words we spoke.
I love the thought that we “decenter the thought that we can teach the world to listen better” and focus instead on “centralizing” the power of speaking.
And I also understand the point you have made about the different stuttering organizations that seem to cater to different subgroups or ages. SAY is for young people, Friends is for young people and their parents, NSA has parent groups, Teen Talks, Young Adults, and now Older Adults, but all are welcome at any NSA chapter meeting. It can seem challenging to find a group that you can “stick with” and not feel alone when you “age out” as you noted.
You are such a powerful writer, and I am sure, a very powerful listener as well.
Pam
Hi Pam,
Teaching the world listen is an obligation that I don’t care for. I’d rather speak for myself, and if people want to listen, they’re more than welcome to. Thanks for commenting!
Hey Michelle! I really appreciate this article and the perspective that it brings to readers. As a second year grad student in speech language pathology I would say that hearing thoughts from a PWS is genuinely such a helpful experience for us to have, especially when we are learning how to provide therapy that clients feel is effective/helpful to them and their personal journey. I was just curious how you think SLPs could better support individuals transitioning through different life stages (for example; from adolescence to adulthood) to help maintain a strong support system and foster ongoing growth in their relationship with stuttering?
Thank you so much for your insight!
Hi,
Ask individuals directly. It’s important to remember that everyone has different priorities and is at a different place in their stuttering journey. Thanks for commenting!
This is such a great article, Michelle, addressing some very important, very nuanced ideas.
People who stutter seem to often shy away from REALLY taking up space and time, instead keeping it “short and sweet” when they communicate. For many, learning that they deserve to be HEARD is key.
And I love your take on it being somewhat of a burden to be constantly expected to carry the “It’s ok to stutter flag.” It is totally dependent on where the PWS is on their journey.
Thank you for this 🙂
It takes a ridiculous amount of time to get to the point where it feels safe to take up space and time, and really want to be heard. Working with a really good SLP works too ❤️
Dear Michelle! We are polish students of speech therapy at the University of Silesia in Katowice. To begin with, thank you so much for sharing your experience! We believe that in your article, you addressed an incredibly important issue, which is the power of listening. As it was pointed out, true listening requires both patience and an understanding of the individual experiences of people who stutter. The way you present the idea that learning to listen should be a choice rather than a burden for people who stutter is truly inspiring.
There was also a very powerful section where you said that people who stutter can teach others about it by being themselves – by focusing on what we want to say, not how we say it. Very eye-opening was also the section about different age groups in stutter’s organizations, because it showed us how you can build your confidence in stuttering over the years to neglect it in adulthood. Probably it must also be associated with the loss of many friendships that can then be made.
We want to express that you have influenced the way we think, which will undoubtedly make us better therapists as future speech-language pathologists, for which we are extremely thankful!
Thanks for commenting, I’m glad you took so much from reading my paper!
Hi Michelle!
This was an empowering article. I enjoyed reading your perspective, thank you for sharing it. I especially enjoyed the part of the article where you spoke about the power of speaking. You opened my eyes to the heavy burden a person who stutters carries to teach others to listen and be patient.
You mentioned how it has taken a lot of speech therapy to feel okay taking time to say what you want/need to say. As a second-year SLP graduate student, I was wondering if you have any advice on how we can best support our clients to feel confident to talk and stutter out loud.
Hi,
Focus on listening and building a comfortable connection. Everybody’s stuttering journey is different, and it takes time to get to a point where you’re willing to stutter overtly. Thanks for commenting!
Hi Michelle!
Thank you for sharing your thoughts on the power of speaking. I have read many contributions – both on this platform and others – that talk about the power of listening. While I agree that there is much power in being a good listener, your perspective shift shines light on the power of speaking. Your comment “Teach through existing and being yourself; be someone worth listening to, and people will listen” is so powerful and I commend you for your authenticity!
Shaniah
Thanks!
So spot on! We don’t listen enough ourselves. Not to others, while thinking of what we want to say and how it might sound, focusing on possible body language, pondering over what the other might think. Not to ourselves and our needs, as we sometimes feel that our needs are inferior, which needs to stop. We don’t speak enough either. We expect others to know our needs, but how can they, if we don’t tell them. So yes, we need not only to listen, but to also speak up, so that others can disregard our speech and really listen to what we’re saying.
Agreed! Thanks for commenting!