Kory TranAbout the Author:

My name is Kory Tran and I’m a person who stutters in the Bay Area. Well, I suppose I’m a person who stutters outside the Bay Area as well. I grew up in a small town called San Jose, California. I am a UX designer/writer with a background in journalism and creative writing. This is my second year participating in the ISAD conference. I am also active in the National Stuttering Association as the co-chapter leader of the South Bay/Silicon Valley chapter.

I’ve always been the only person in my family tree that’s been known to stutter. I was the stuttering sheep of the family, you could say. So growing up, my parents didn’t know how to help me, and they desperately wanted to help me, which to them meant eliminating my stutter so I could be a “normal,” productive member of society. You see, I grew up in California in the ’90s where sticking out was terrifying, especially if you have an immigrant background. Quelle horreur!

Stuttering, at least in my corner of the world, was an obscure thing at the time, and also the Internet was not widely available, so my parents clung onto the bits and pieces of advice about stuttering they heard from friends or co-workers. “Just slow down.” “Think more deeply about what you want to say.” I remember the day I got home from school and my dad sat me down and told me he had some really important news to share. 

In a grave voice, he said, “I heard that reading horror stories causes one to stutter.” I rolled my eyes. My penchant for reading “Goosebumps” at the time was well-known. (As I said, this was the ’90s). And my well-meaning dad’s theory, which I guess he had heard from somebody who knew somebody, was that horror stories induced such a state of fright in people that it made them unable to speak fluently. Even as a kid, I thought this idea was laughable. 

At the same time, it also made me frustrated at the lack of well-known information on stuttering. I thought, we can put a man on the moon, but we can’t find a fix for this thing that causes other kids to make fun of me. And I like to think that me being self-conscious about my stutter was a little more important than landing on the moon.

At school, I was also the only kid I knew who stuttered. Because of my dad’s job, I switched schools often, so I could never get used to a school speech therapist for long. The speech therapists ranged from wonderful to not very knowledgeable. At one of the last elementary schools I attended, I was assigned a speech therapist who didn’t seem to know much about stuttering. She pulled me from class just to participate in mundane activities with kids who were challenged in very different ways. I think maybe the school didn’t really know what to do with me, so they probably thought, He’s different, let’s pull him out and put him with the different kids. (Did I mention this was the ’90s? It was practically the wild west back then.) After that experience, I declined to attend speech therapy in school again.

It wasn’t until my mid-20s that I decided to revisit acknowledging the stuttering elephant in the room. So I dropped into a meeting of the local National Stuttering Association chapter. I’m not sure what I expected…maybe a room full of folks who spoke like me? What I found was a group of people whose voices had a familiar stutter and yet were still pretty different from my own. Some people sounded covert or nearly fluent. Some spoke with a lot of repetition, and some had blocks like I did. I was beginning to see why there couldn’t be such a simple “cure.” There were so many different ways to stutter!

Also, people had different ways in which they viewed their stutter and dealt with it. Some people felt that their stutter was severe and significantly hindered them, while others didn’t feel really affected by their stutter. Some people used word replacement to mask their stutter while others insisted on stuttering openly. Later I started attending the NSA conference where hundreds of people who stutter gather annually, and I noticed countless more variations on how people stutter, feel about it and deal with it in their lives. And therein lies why it’s not so easy to find a common “fix” for stuttering.

I think this may be one of the most misunderstood and challenging things about explaining to others what it is to be a person who stutters. As an NSA chapter leader now, I have met many people who come to a meeting for the first time, seeking a road map. Some people want to hear, You should do this, then do this, then this, then you’ve got your stutter under control and you could be the lawyer your parents always wanted you to be. But a more helpful message I think would be, You got this. We are all different. And we are here to support and cheer you on to be you.

This year, I spoke with a parent of a child who stutters. She said that although she fully embraces her child as a person who stutters, part of her will always wish that life could be easier for her child. And it made me think of my own parents. Sure, over the years, my parents gave me advice on stuttering that was not always helpful or relevant. At times, I got frustrated at how little they understood me and my stutter. But I believe now that my parents did the best they could with the limited knowledge they had. My mom has come a long way from trying to eliminate my stutter (my dad unfortunately passed away more than a decade ago). Occasionally, she might say something like, “Wow, in this speech you can hardly tell Joe Biden stutters at all. Maybe you can look up his techniques.” And I would gently remind her that people stutter differently, and people handle it in different ways. One size does not fit all…and that’s OK.

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Comments

A Roadmap to Stuttering… or Lack Thereof – Kory Tran — 42 Comments

  1. “Some people want to hear, You should do this, then do this, then this, then you’ve got your stutter under control and you could be the lawyer your parents always wanted you to be. But a more helpful message I think would be, You got this. We are all different. And we are here to support and cheer you on to be you.” Spot on!! This is what parents need to wrap their head around. So much damage is done when parents don’t understand the risks of focusing on a fix. More needs to be done to get to them early on, prior to engaging in therapy meant to fix. I really enjoyed your essay – I was raising my boys in the 90’s without Internet. Such a different world!! Thanks for submitting.

    • Thank you for the comment, dorilenzholte! Yes, so much damage can happen as the result of good (but ill-informed) intentions. As much as I love and miss the ’90s, I’m glad there is so much more public information on stuttering today.

  2. Kory,
    It is so important for everyone to understand that not all stutters are the same and there’s no “one size fits all” technique to “fix” them. Likewise, a stutter isn’t something that needs to be fixed. Thank you for highlighting these two things.
    As a graduate student studying to become a speech-language pathologist, I believe your unique perspective and experience with your stutter offers insight into how focusing on “fixing” can ultimately be more harmful than good. I am glad that you were able to eventually address the stuttering elephant in the room, and are helping others by talking about your experiences. I really enjoyed reading your article! 🙂

    • Thank you, kjk00 for your comment and also striving to be informed as an SLP grad student. The world needs more people like you.

  3. Kory,

    Such a refreshing sense of humor. I wish I would have as good of a sense of humor as you do. Let me see if I can work on it.

    At the same time, it also made me and still makes me frustrated at the lack of information on stuttering. Any scientifically based information.

    There is such a paucity of real information about stuttering. Not that if we would find real information it would destroy the fact each of us being unique. And one size still would not fit all.

    By the way where do you, YES YOU PERSONALLY, find good information about stuttering?

    But in one area I beg to differ. Having worked on the Apollo program that put the man on the moon, the stoics and I say, if you can’t do anything about something, do not concern yourself about it. But if you can do something about something and deem it important, see what you can do.

  4. Love all of this. This part gave me goosebumps:

    As an NSA chapter leader now, I have met many people who come to a meeting for the first time, seeking a road map. Some people want to hear, You should do this, then do this, then this, then you’ve got your stutter under control and you could be the lawyer your parents always wanted you to be. But a more helpful message I think would be, You got this. We are all different. And we are here to support and cheer you on to be you

    • Thank you, Ezra! And thank YOU for inspiring me all the time with your wonderful messages about stuttering and acceptance.
      – Kory

  5. Hi Kory,

    I love this reflection and your good humor. I also love that you are now in a position to offer unconditional support to people who stutter coming to stuttering support meetings. The “road map” analogy is a good way to describe why people might look for support.

    Did it surprise you that there seems to be many different ways people think of their stuttering? Have you encountered speech therapists since your early interactions that seem more knowledgable about stuttering now?

    Pam

    • Thank you Pam,
      Although I haven’t been to speech therapy since I was a kid, I have since then met many SLPs and spoken to a couple of classrooms and I am pleased that today’s SLPs seem more engaged and knowledgeable about stuttering. They certainly ask more questions and are more curious about stuttering than the ones I remember from my childhood.
      – Kory

  6. Hi Kory!
    I loved your story! I enjoyed your analogy and hearing about your journey or lack of journey! It is very frustrating that there is a lot unknown about stuttering and how the perspective used to be that a stutter needs to be “fixed”.

  7. Hi Kory! Thank you for sharing your experience with stuttering! The “reading horror stories causes stuttering” was one false theory I had not heard before, and it is frustrating to know that so much false information about stuttering exists. Your perspective that everyone is different and everyone stutters differently is so important. Groups like the National Stuttering Association can be so helpful in sharing beneficial information about stuttering and creating a world where stuttering is not something that needs a “cure”. As a future SLP, I hope that the field continues to grow with this mindset that stuttering is not something we need to “fix” and not everyone wants to hear advice about their stuttering. Often, individuals just want to be supported, and I think your article expresses this perfectly.

    • Urbanbg, thank you! I’m surprised that these days I still receive unsolicited advice from people who are fluent. They might hear me give a well-rehearsed speech and tell me “See you didn’t stutter, just keep doing that.” So I’m hoping by sharing my stories, I’ll head off this unsolicited advice.

  8. Hi Kory,
    Thanks for sharing. I always say that reading/hearing experiences of people who stutter makes me grow and evolve as a therapist and a human being. I have learned so much through this journey and will continue learning from each story. 
I want to ask if your immigrant background influenced your stuttering journey, and if so, how?
    -Cynthia

    • Hi Cynthia,
      Yes, my immigrant background definitely affected my stuttering journey. As others like Kunal have said in their own essays, Asian cultures tend to be very hush-hush in regards to disability, and my parents started out being adamant that my stutter needed to be cured for me to survive in society.
      Thank you for your question.
      Kory

  9. Hi Kory,
    Thank you so much for sharing your story. As a fellow person who stutters I can relate to many of the experiences you have had on your roadmap. One being your interactions with your parents and family. Similarly, my parents did not know much about stuttering, and attempted to help me “speak better” through ways they thought was best. While I know the intention is there, I was also frustrated feeling like nobody knew what was going on with me. Throughout life, as my viewpoint changed from avoidance to acceptance I noticed that as I was becoming more aware of my speech, just how much people weren’t. Some people were shocked when I told them, or didn’t even believe me. I am guilty of hyperfocusing on my speech, not forgiving myself for having moments of dysfluency. But other people forget, and move on a lot easier than I do. Now being in graduate school for speech language pathology, I am learning more and more about different aspects of stuttering, approaches, and just how complex it is. You are right, one size does not fit all, stutter is rather a big umbrella term for many other aspects and reactions to dysfluent speech.

    • Thank you for sharing, Curranj. Many of us hyperfocus on our stuttering, when to others it may just be a blip in time. I recently was told by a distant relative that I’m not a “real stutterer,” whatever that means, because my disfluency is not the same all the time. We just have to make our own way and create our own acceptance, and I am glad to hear of your own journey.

  10. Hi Kory,

    Thank you for sharing your story. As an SLP graduate student, I am working hard to become knowledgeable about stuttering so I can offer my clients support and provide a safe place to explore their stuttering. As a child, do you think you would have had a different experience if you could have been connected to other students who stuttered? What is something your speech pathologist could have done to help you feel less alone in your journey?

    • Kstiffler, thank you for your question.
      I’m not sure how the experience would feel for me if I had another friend who stuttered. But I do know one of my first school speech therapists was great because she normalized stuttering, treating it as something to just shrug at and talking to me like a normal kid. My later therapists treated my stutter as an oddity, and that’s when I felt more self-conscious about it.
      – Kory

  11. Hi Kory. Thank you for sharing your experiences. As a future SLP, you really made me think a lot about my field. Like you described, I think so many SLPs too have a tendency to want a roadmap to stuttering, among roadmaps to other things. We tend to want a clear plan of what we should do in xyz situation. But I think that ends up dehumanizing people in a way. Instead, we need to see people as complex individuals every single time, and to walk with them best, we cannot put them or therapy in a box. We need to be willing to be creative, take risks and make mistakes, and collaborate within both. And most importantly, listen. I really enjoyed your article!

    • Thank you, Sherilyn! As another person wrote, it’s good for the goals to be determined by the person who stutters, and not the SLP. I don’t think most people expect SLPs to be perfect and perform miracles, but just provide help and support along the way.
      – Kory

  12. The 90s were wild! 😂

    I also used to wonder how it was possible that nobody found a cure for stuttering until I met more people in the community and realized stuttering is so different for every one of us, that we would all need our own unique plan or solution. The only way we could have a “cure for all” would be to find exactly how the brain works when we stutter, and address precisely those processes… but we are far from that being possible.

    In the meantime we should celebrate our differences and continue using our voice to share our stories. Thanks for writing this, Kory.

    • Thanks for reading, David! Yes, celebrating our differences is very important. Though I loved the ’90s, I couldn’t stand the constant pressure back then to conform.

  13. Hi Kory!
    I really enjoyed hearing your story. I am currently an SLP grad student and have really become interested in stuttering. I love hearing everyone’s different experiences and perspectives on their stuttering as they are very different and unique. I hope the SLP field continues with the idea and mindset that stuttering is something that does not need to be “fixed” or “cured” and I hope we can continue to support our clients who stutter, educate their caregivers and encourage, support, and cheer them on to just be themselves!

    • Thank you for reading this, Casey, and thank you for all that you do! I’m so glad to hear that more SLPs are moving beyond the “fix/cure” goal.

  14. Hi Kory,

    Thank you for sharing your story and your insight! It is so frustrating when we feel like the people who love us do not understand us. However, I think finding a community of people who understand and support you is life changing. You had some great comments to make and I hope you continue to share your story with the world.

  15. Hi Kory,

    Thank you for sharing your experience with stuttering. I am currently an SLP graduate student enrolled in a class learning about stuttering. In your post, it was interesting to hear about your experience with attending speech therapy in school. I hope that the SLP field continues to address stuttering not by trying to “fix” it but rather from a lens of acceptance. I was wondering if you had any advice for SLPs working in schools with children who stutter? Do you believe that children who stutter can benefit from receiving speech therapy in school or do you think that attending support groups and getting connected with others who stutter is more beneficial?

  16. Kory thank you for sharing your experience with stuttering, I found it very informative as I am in school to be a speech pathologist. I noticed that you mentioned that your parents really wanted to help you and they thought that consisted of eliminating your stutter. I feel that this is an important topic to bring up since there are so many misconceptions around the treatment of stuttering. There is no “cure” for stuttering which many people are unaware of. Stuttering looks different for everyone and so does the progress and for each individual. I feel that this is why there are so many SLP’s who are so hesitant and not knowledgeable about stuttering. This perspective definitely opened my eyes as to the impact that an SLP can have on a child who stutters.

    • Thank you, Courtney! I’m glad I can help to be informative by sharing my experience. So many people spend years of their lives searching for a “cure” either for themselves or their loved ones, when they can spend the time just embracing life with a stutter and seeing how full it can be. Thank you for taking the extra step to learn more about stuttering and for all that you do.
      – Kory

  17. Hi Kory! Thank you so much for sharing about your experience with stuttering. As an under grad student studying to become an SLP I found your paper to be extremely informative as well as moving. I wanted to ask if you think that information pertaining to stuttering and people who have stutters has become more well-known/attainable today in comparison to when your parents were trying to help you. If so, how do you think that kind of evolution happened?

    • Hi Risleysmith,
      Thank you for your comment. I definitely think that information about stuttering has become much more widely available and easily accessible. The trouble is that there are still people who try to give advice without doing even the minimum of research.

  18. Thanks for sharing your story Kory! I am a SLP graduate student and was really surprised to learn that there are so many ways to stutter, not to mention the multitude of ways that people deal with it. I agree that this variability makes it difficult to create a road map that works for the majority of individuals that stutter but bringing awareness to stuttering and its variability is powerful so that we can provide support in a way that is uniquely tailored to each individual. As I go forward in my practice, I will echo your message that “you got this. We are all different. And we are here to support and cheer you on to be you. One size does not fit all…and that is OK.”

    • Thank you for your comment, Brooke! I’m happy to hear my message came across as intended and I hope it resonates. Thank you for being a caring SLP.
      – Kory

  19. Kory… Firstly, I would like to thank you for sharing your experiences. I personally cannot relate to what you have had to endure relating to speech. However, I can definitely relate to the feeling of not being understood by parents. Outlooks on life and awareness change by the decade. Unfortunately, our parents’ decade was not as open minded and aware of what is going on in the world as we ours is.
    Also, I’m currently a full time SLPA and full time graduate student working towards my masters degree! As a clinician, I would like to personally apologize for your experiences with SLPs who did not have the background knowledge that was required to target fluency/stutters in speech therapy. BUT, I can honestly say that I do not know much about strategies and techniques for fluency either. I am currently learning though! After reading about your experiences, you have motivated me to want to put forth even more effort towards research and my knowledge for fluency therapy so that my patients are comfortable and feel as though they are benefiting from speech therapy with me. Thank you, again, for being brave enough to come forth and share your story!

    • Thank you, amrichard108! I don’t think I really fault the speech therapists I had growing up. I realize they did the best with what they had, and am glad to hear that the thinking has progressed so much in the decades since. Thank you for all that you do.
      – Kory

  20. I love your paper so much, Kory, as it resonates with the way the people around me wanting to give “advice”, trying to help, while giving the wrong message, and finally seeing me the light that we’re good enough, just the way we are. And if we want to make changes, wanting it for ourselves and not for others, for others to simply stand by the sideline and cheer us, and also be there for us, without judegement, when we’re down. I hope many parents and SLPs read your paper, as it might be such an eye opener to many.

    Happy ISAD and keep talking

    Anita

    • Thank you, Anita! A lot of advice start out as good intentions, and sometimes we have to ignore or push back against these good intentions. It’s a learning process for sure.
      – Kory

  21. Hi Kory! Thanks so much for sharing. This is incredible advice for PWS, SLPs, parents of PWS, and the community. As a current speech language pathology graduate student, I hope to ensure students that stuttering is okay and that it is okay to sound different than your peers. We are all unique and should embrace our differences.

    • Thank you, Maryalyce! I’m glad to hear my message got an audience and may future kids grow up to be less self-conscious and more accepting of their differences. Thank you for reading!
      – Kory

  22. Kory,
    I really enjoyed reading your paper and all about what you went through with your parents throughout your life. This really is great advice to those PWS as one size does not fit all. There is no simple ”cure” to stuttering because everyone who stutters is unique. It is okay to be different, to sound different, and it is okay that you are different!

  23. Thank you for sharing your experience. I am a speech-language pathology graduate student. This semester I am learning about many theories about stuttering and the experiences of those who stutter. I think the experiences are teaching me the most and helping me develop more of an understanding that stuttering can’t be learned as one thing or one way to assess and treat or one way to experience. Your article really highlights how as a professional and in the field speech-language pathologists have a vital role in taking the initiative to seek out knowledge and research, but most importantly to get to know the whole person, how they experience their stuttering and stuttering behaviors, and how it impacts their daily life and also their emotions, mental health, and self outlook.

    It was impactful to read about how connecting with others led you to your own understanding that stuttering is so varied and people are so varied. Thus instead of seeking a one way treatment or aid or assessment, etc. come alongside and support and cheer on a person. Get to know them and what they want for their lives and daily experiences.

    So many articles and presentations in this forum speak to individuality and your post really highlights how that is true and it helps us to know the first and most important thing is to support and learn.

    Thank you!

  24. Hi Kory,
    Thank you so much for sharing your story. I think sometimes as SLPs it is hard for us to tell parents that things are okay if the the client is okay with how they talk or communicate. I love your last two sentences, no one is the same and we shouldn’t treat each person the same. We need to build rapport and get information from the client to help set up goals and work towards achieving the things they want to accomplish.